I just started a pain journal and hoping it will help me track my good and bad days. I think it will also help me keep track of my extreme mood swings. Does anyone else keep a journal?
If you are technically inclined, there is a free pain coach app: https://itunes.apple.com/us/app/webmd-pain-coach/id536303342?mt=8
I try to keep a journal. I have a word document that I labeled Pain living in me everyday. So my intention was to keep up with expressing all of my negative thoughts into a letter as if I was going to send it to some one that might be able to read it and help me. But I find I can't seem to remember to put that time into in on a daily basis. I keep thinking I can record all of my pain experiences in my head. Oh it is useful when I write in it, but making sure I do this everyday would probably be better. I need to be more organized with it. My mind goes in its own direction about pain. I don't think I make any sense.
But then there are times when it makes a lot of sense. And it does help to write it down to get it off of your mind. I also warn anyone that the content in any of my journals, have not been rated. There are no lifeguards there to pull you out of my troubles while reading it. I have found that many days a journal has been my only friend since I have been dealing with fibromyalgia most of my life and no one ever understood me. They say I talk crazy, and I might be bi polar. I'm not bi polar, just I mimic an untreated bi polar person when I am expected to do more than I can without complaining. Because I'm just the say as everyone else. I think its a spit personality that I have, I have short periods where I feel relaxed and well my personality and attitude shows so much gratitude and feel as though I have been cured some how. But then that short period goes away and then I'm back to my miserable self of pain. Then my personality and attitude changes and well I hate the two different sides, And while I'm in pain, no one wants to hear it, it is as if I offend them by even saying such a thing. But then they want to know why I talk crazy or get a short temper, and wonder why I hold grudges for so long. How can I live in a world who thinks every one lives as good as they do?
Well, I've said more than I wanted to . I didn't mean to start my journal here.
Audrey
Well, my doctor asked me to keep a journal on something. Can't remember if it was pain or something else. When I remember what it was that I need to track, then I guess I'll do it. Until then, ignorance is bliss.
Hi, I just wanted to share an alternative to a journal. There are many pain apps out there tat will do the same thing and much more like track all the weather. I use Pain Tracker Pro and it does woes wonders. It even prints my notes to PDF if I so desire. Just wanted to add another option.
I do not keep a journal, but have been thinking about it. You just put the fire under my butt, that I needed. How long have you kept a journal? Have you noticed any patterns? Maybe, we can compare stuff in a month? My name is Stephanie, by the way. I am new here but loving it. It is good to know that you are not alone with this diagnosis.
Thanks Kas,
I will try that app out.
I'm tickled to find out what I have and then find this web site. I'm am so relieved to know that I am not the only one. Glad you are here, my name is Audrey, nice to text you.
I have only been keeping track for a couple of weeks. I hope it will help me at the Drs and also, get these negative feelings and thoughts out so I can sleep better. I would love to compare notes.