Hi, Everyone....
I am not new to Fibro, but I still find it difficult to deal with it!
Of course...some days are better than others, some are awful!
But the fog is what's been getting me down this winter.
I know pain increases for me in the winter but does the weather have anything to do with the Fibro fog??
I do work three days a week and I have been having great difficulty with my memory there....it's sooo embarrassing!!!
My family has become aware of my increased problems too.
Getting lost while driving is something that really worries me!
Can any of you related to any of this?
I fear sometimes it's not the F. fog, but old age....LOL!
I guess at the end of the day, I'm so frustrated and disappointed in myself....it's hard to be so aware of negative changes.
I can hide the pain much easier than the fog!!
Thanks for listening.....
Jeanette
I have the fog. Lol
Not funny. But really I do. My memory comes and goes. I have trouble finding the correct words. And I forget what I’m doing or what I was going to get. Yes some days are worse then others but most the time it’s a daily thing. The worst part is when my kids says I told you already mom. I forget things that are said to me. I even catch myself daydreaming when others talk to me then I have no idea what was said. I’m going to be 42 and I wonder if it’s old age too. Or signs of dementia or even Alzheimer’s. but my doctor tells me it is fibro and the lyrica which has increased the fog and will supposedly lessen soon.
I sometimes don’t remember driving to work or coming home. But when I drive I pay great attention. Just later when I think about my day I have a lot of empty spaces.
Joy
Thanks, Joy......
I just turned 59 ~not too excited bout that~ and these things do make me wonder!
Oh, forget recall on things like names, movie titles, what happened last week or yesterday for that matter!
Since I have become so painfully aware of the fog, I make a marked effort to be more "clear" about what is going on around me....like at work.
I do use lots of notes and I am thinking about using the recorder on my cell phone.
Then there's the memory loss at night due to the Ambien....that's to be expected though and I can't sleep at all, at night... without it, so I except that.
However, I do have the problem with ~sleep eating~ using Ambien. I make sure I don't take it until I am settled in bed without any reason to get up again.
As with a lot of our meds, we have to learn to use them in the best way, for each of us.
Okay....lets lighten this up.....my 16 yr. old Granddaughter made me sign a note one night b/c I thought I was totally awake and would remember talking to her.
Lets say....I don't argue anymore or sign notes!! LOL!!
It's a trial and error kind of life after Fibro, for sure!!
Jeanette ; )
I stopped arguing. And most the time I’m wrong when I use to always be right.
I take lots of notes in my phone and on post it’s. Also I set lot of alarms.
Whatever works right!!
That's for sure....Justamom!
On the serious side of F.Fog......
What causes it.....the Fibro it's self or the medications that we take?
Are there any good articles on it?
Jeanette
Jeanette,
I hope its not old age, I'm only 44. Before Christmas when I wasn't on any medicine I was at a Cub Scout meeting and was trying to tell the other parents, about 45 of them, if they needed help with their son's Pinewood Derby car to reach out to my neighbor and that is where I went blank. I couldn't remember my neighbors name, our older boys are best friends and I couldn't remember his name. I was so embarrassed. I just looked in his direction and said "That guy". I also get confused when I'm telling my husband or children to do something. I sent my husband to Kroger the other day and told him it was where the old mall was and gave him the name of the new mall. He called me back because he went to the new mall and there wasn't a Kroger in sight. haha He is slowly but surely listening to everything I say and making sure it make sense before doing anything. My youngest is forever telling me I said something that was different than what I meant. I try not to let it get me upset and just go with it.
Please don't feel frustrated or disappointing. It is not something you can help. We just need to slow down and be more in the moment its like our brains have gone on auto pilot.
Stacey
Hi, Stacey....
What you said at the end of your post is so true for me!
I have started to slow down, pay more attention, and think before I speak.
I don't know why it's so hard for me to admit that the problem is Fibro...
Well, yes I do....ppl just don't understand!
But all we can do is work with it!
Thanks every1 for your thoughts and comments....but mostly your support!
Anything I can do, just holler....I'm a good listener!
Jeanette
Thanks, Tracy......
For the encouragement!
I know it makes a huge difference to talk w/ ppl that KNOW what we are going through.
I still feel like I have to explain myself or justify why I'm in bed a lot or don't leave the house.
I feel so guilty when all of this effects my work....I only work three days a week.
I'm beginning to wonder how much longer I'll be able to do it.
It's very difficult to make these decisions.
Jeanette
Thanks, Tracy.....You take care too!
Jeanette
Jeanette
My doctor told me Friday that most of it is from the lyrica. But I’m not sure. I know it has gotten worse because of the lyrica. But in flares I still had foggy days prior to lyrica. The doctor says it will get better once I’m use to the medicine.
I’m seeking a fibro pain specialist. I need better answers. As do you.
We all do.
Oh, I hear Ya!!
I was so embarrassed at work the other day.
A library book came for me that I supposedly ordered online.
In our work situation, that's the only way to receive a library book.
I have no idea how I got that book!!
I do not remember ordering it and it's one that I already know and wouldn't want to reread!!
This all took place in front of two co-workers!
Geezzz.....I could have died!!
So, I getcha!!
Jeanette