I am just back from rheumy appt and she has added Arcoxia 90 mg into my meds to see if it will help. Was speaking to her her about my other half who was complaining today that I kept waking him last night to tell him I was in pain. Apparently I was talking in my sleep and kept saying I'm so sore. I told him that it was an improvement as at least due to meds I was sleeping.
He was also asking if we would be going on vacation this year. I told him I don't think so as I am unable to and don't want to go through the hassel of airport and packing and taking cases to aiport, lugging them around and arranging everything while trying to ensure he has support also. He appeared to be disappointed but didn't say very much about that.
Then he asked me if I thought I would be able to carry on working for much longer, my answer I don't know. Still waiting on MRI re Trigeminal Neuralgia, newly diagnosed. He is disabled and I am his main carer but sometimes I feel like giving him a shake, He is usually very supportive but sometimes he just doesn't get it.
Whine over. It is good to get this out where there are others who understand.
Hi Ann,
Vent all you want !!! We do understand, I have to look up the arcoxia not familiar with it.
The scary thing about fibro, is you don’t always know what to expect… So I understand your answers of I don’t know…
I hope you have a better day…
Hugs & blessings
dee
Thanx for the support. Arcoxia is etoracoxib and is a cox 2 inhibitor normally used for severe to moderate pain in arthritis and muscular pains. Also used post operatively. I also take Tegretol and Cymbalta and Tramadol for breakthrough pain. Rheumy said if this does not work next step will be morphine based tabs. Sorry don't think it is licensed for use in USA.
I can completely relate to what you are saying. I went on a trip last week to Seattle from Sacramento, CA. I was really anxious to go because of all the items you listed above. I was also going to be alone which made things even worse. I came back and had a bad flare for a couple of days.
The one thing I started dwelling on was the fact that I would never be able to enjoy a vacation again. Then someone close to me said that I will not enjoy life if I start being scared to do anything. You can plan a vacation to make it the easiest on you. I had to do this work thing but when I go on vacation I can do what I want to do and go where I want to go. Certain environments and transportation will be better for you too. If you plan you can enjoy things. Maybe start out small to see what kind of travel and accommodations you can handle and then move on to longer trips. Live your life and enjoy it when you can.
I try to. The problem is my other half is unable to help at all and I have to do everything before going, during the journey and then again on way home. I don't mean to moan as I am very lucky, some people don't/cant get on vacation at all. It is just when I feel so tired and sore I don't want the hassel. Fortunately the new meds seem to be working and I got 10 hours pain free today after taking them last night. : )