Having a bad day? Are you flaring? Have your friends and family found their earplugs? Well, this is the place to let it rip! We are here to listen and we get what you are going through. The is is a safe place to share your feelings and to unburden yourself.
I have had a hard week.The week here has been rainey and cold one day and warm the nextday.This plays a game with my body and all the pain.Not to mention the depression.The trick is to try and stay positive and try and shake the depression off.
Feeling really low today. Fibromyalgia, no matter how long I’ve had this disease my husband just can’t believe it’s as bad as it is and chalks it up to anxiety or just making it up b/c I don’t want to do something (which is farthest from the truth). I hate this… I just want to sit on the couch or go to bed but he wants me to suck it up and take a 2.5 hour car ride (one way), visit family, stay at a hotel, visit more family and drive home (2 hour drive). I want to see family, but I don’t want them to see me like I am today. I’m in pain, moody, can’t think clearly… I want to be known as the fun, energetic aunt/sister/daughter-in-law, sister, daughter… not this pathetic fat, crazy old lady.
When I started this Fibromyalgia journey I had no idea it was a progressive disease. But I’m just getting worse, the symptoms more often and more intense. I don’t know what’s worse: the pain, coordination issues, the cognitive problems, or the knowledge it’s just going to get worse.
Is there anyone out there who can help me?
Yes I can identify with you. I’ve had fibro since 2009 and yes it has progressed. Besides the other pain what is so embarrassing is sweating profusely. It doesn’t matter if I’m at home putting on makeup or I went to the store I just begin sweating profusely. It’s terrible out in public which I don’t go much unless I’m with someone. Thank you for sharing. I hope you’re having a nice weekend.
I am really struggling with pain and fatigue, my everything hurts! I did laundry yesterday and it wiped me completely out and I am still in pain today even with having a chiropractor appointment this morning the pain isn’t gone. It got better but its still pretty bad, which sucks. I also messaged my doctor to tell him that gabapentin does nothing but make me feel sick from side effects and that I want to try something different. I was supposed to keep trying it till I was taking 3 pills a day, I can’t even tolerate 2. I get dizzy, nauseated, feel weak and its awful. I definitely don’t need those things on top of everything the fibro does. I just hate that it is hard to do things that seem completely simple for people that don’t have fibro. I hate that housework is so hard, that even getting in and out of bed or the bath is horribly difficult now and I am afraid of it getting worse. It just sucks and I really just need some help.
Hi Jenihuff21, sending a gentle hug your way. Fibro does suck in so many ways. Every day is a struggle with some days better or worse than others. Lyrica 3 times a day and extended release Tylenol helps reduce the pain for me a great deal with 0 side effects (at least for now bc no one knows the long term affects of Lyrica). It’s worth taking for me bc I value my quality of life more than worrying about the future. Resting without guilt is also helpful. Seems, everything gets done, maybe not as fast as I’d like, but it gets done and that’s what matters.
Gabapentin did nothing for me and I tried many other medications before trying the Lyrica. The point here is to advocate for yourself by being very clear with your Dr about the side affects you’re experiencing from the Gabapentin. Start taking notes about what you’re experiencing; date, time, event and take those notes to your next Dr appt. They’ll realize the medication really isn’t for you when you show them proof (I had to do that ) and will hopefully start you on something different.
Yes, Fibro sucks, big time, and finding the right medications is a process that often takes a long time but when the right meds are found the fibro will likely settle down. Then perhaps you can find a less painful place, a happy medium, that will allow you some easier days in spite of having the diagnosis of Fibromyalgia.
Gentle (((((hugs))))) and prayers for better days ahead.