Omega 3 is one of these things that you can take as much as you like of. It is harmless in overdose. Your body will take what it likes whether you have 1 or 100 pills, but no more than it can handle. Not all vitamins, supplements and minerals are like this so be careful xx
Stronger doses of them. Things like vitamin D in the shops are usually 400IU a day where as prescribed ones are 800IU to 1000IU a pill.
Basically taking two or more shop pills will usually be the same strength as one pharmaceutical pill xx
Me too... calcium, vit D, vit C, D -Ribose and Cod liver oil xx
yes i do i cant even walk up the stairs my pain get so bad i cant even bend its sucks.doctors look at me like i have three had nothing helps.topomax makes me sick but she doesnt care all i do get yelled at its got to do with the musles but try teling them that i see both of them next month im so sick right now.
L-Kitty,
I get the coldness in my left foot. But it doesn't last too long. I don't want to worry you but one illness associated with it is MS. It might be worth your while to ask your doctor about this, especially since it's spreading. And who knows, maybe it's a fibro thing too. Everything else seems to be.
Reducing your lyrica really is a boo boo and the pain you get from it can hang around for several days. We may not even feel like the med is doing much - but when taken away we hurt like crazy!
I have the radiating pain too and sympathize with you Jesse. Besides the fibro, I have Ehlers Danlos Syndrome and some of my pain is attributed to that, especially the pain in my joints, so I don't know what is fibro and what is EDS. From all the research I've done on EDS though, that may be what caused the fibro for me. I'm not totally sure. Like others have mentioned though, I take Gabapentin and that helps me tremendously. I had bad pain earlier but I stood up and had to put my hip back in joint. Dislocations and subluxations (partial joint dislocations) are not a fibro symptom. Those are an EDS symptom. Not a lot of doctors know much about EDS so I wasn't diagnosed until the age of 46. I think you've gotten a lot of good advice with medications, cold and heat packs and the like, so I don't really have anything to add but hang in there and I hope you find something that helps soon.
hugs and good thoughts
Susan W
You've certainly nailed how it feels, Hopeful. I had NO idea that other people with fibro suffered from this and have also talked to my doctor about it. I've been sent for PT but I'm worried that it's only going to make it worse. Sometimes I think they just don't know how to treat us at all and try to solve any fibro problem with PT. Well, we shall see...But I surely do relate to what you've said. And this symptom really BITES.
I know my daughter gets prescription strength vitamin D, 50,000 units to be taken once a week..
Yes Jesse I live with this, and sorry to tell you it's a fibro symptom, but with your back problems, that doesn't help either.. Fibro causes pain in all your muscles and lots of nerve pain, Different amounts of pain on different days It's a painful disease, As you are just now realizing.Soaking in a warm bath helps, and Tylenol or ibuprofen and even pain creams. The one I like is scent-free, Voltaren Emulgel. Another is made by RubA535, It's called Arnica gel and it's all natural. I have also found that vitamin D helps with pain and everything in the central nervous system, and sublingual vitamin B complex (all the B vitamins, not just one, in a little tablet or drops that go under your tongue--that what sublingual means) work the best for nerve pain of any kind, and fibro causes overactivity of firing of the nerves, causing widespread pain.As for "what next", there's another discussion about that subject right now. I seem to get another diagnosis every time I go to the Dr. and they really add up. They never offer a remedy, just another diagnosis. That's really common for people with fibro. Ask anyone, they'll list a dozen conditions. You just have to take it in stride and keep doing what you can for as long as you can. just do your best, leave the rest. Angels do no more.
Blessings, Sheila
Did you know tonic water has quinine in it, so many with restless leg syndrome drink that before bed. I don't think Jesse's is restless leg syndrome though.
mikejudd said
Forgot to mention that a small dose of quinine at night will get rid of leg cramps x
Hi Petunia,
Thank you. Yes, I was suspicious of ms too. I went to a neurologist 1 1/2 years ago. We did a head MRI and it showed no ms. So he kind of just moved me on, with no answer. The cold and pain has increased quite a bit since then too. It's on the list I'm compiling for my rheumy appt april 16. Poor guy, he doesn't know what he's in for! This place is a good way to recognize our abnormalities and keep a list.
Yeah, I was bad. I think my pain level is back to what it was before I reduced the Lyrica. To my drugged normal now. Man that was a learning experience. It helped me to remember how debilitating this illness is and how terrible others feel that can't use fibro meds. Made me feel like one of the lucky ones. But, pain and weirdness is still there, just not unbearable.
L-Kitty
Petunia, if your PT doesn't work will you be able to have surgery to correct that?
I wake a many nights the same issues. Some worse then others. My dr suggested me buying and electric blanket. It helps in those milder nights. My big problem now is the arms and shoulders. I sleep with them above my head and my dr told me to stop cause it will cause nerver damage. Anyone else been able to combat that issue
I did not know that... I think I was replying to someone else (or was in my mind) about the restless leg thing, it sounds like Jesse's is a form of sciatica. Quinine is usually used to treat malaria, strange how many drugs have dual purposes, such as lyrica (pregabalin) which is usually an anti seizure/epilepsy drug xx
I sleep that way most of the time too because of my upper back and neck, Glenn! Oh boy, we just can't win!
Really? Shoot, I've slept like that most of my life! Don't think I could stop if I tried. That's a weird thing to happen to us.
Thanks for the electric blanket hint. Can you keep it on all night or does it shut itself off after awhile?
Yes. I do. But mine starts in my feet and works its way up. Last week, one of my legs was giving me horrible pain. Had to take Hydrocone (?) to sleep. Thursday it hurt and then poof, he pain went away. The randomness of this thing is so wierd. Like this morning I was having a pain in my side and the exact same pain in the back of my throat.
Pain in the shines is what how fibro started with me, many long years ago. I know exactly how bad it hurts.
.
Yeah, electric blanket really helps when the pain isn't too bad. I have one of those smallish ones that I can carry around.
Hi Jesse , yes (if it’s the same thing ) it happens everytime I have a FLARE but I also get it in my arms as well at the same time. It makes it’s way over my whole body but my arms and legs being the worst. I can usually feel it coming on but mine starts from the ankles and goes up. It’s been going on ever since I started with fibromyalgia. 2007. My whole body is vibrating and pulsating from the pain. It’s no joke! I thought that’s what everyone on here was experiencing when the had a flare?? I’m sorry you have experienced such bad pain. It might not be the same as what I have going on so maybe letting the doc know about it since its new would be a good idea. : ( take care Jess. Keep me posted k? Fibroerr ( Lisa)
Hey Jesse,
I was having a lot of leg cramps and started taking Vitamin E at night because most of the cramps were at night and I read it helps. It did sometimes but since I got off of Hormone Replacement Therapy it is much better! I do get cramps in my legs or feet or toes sometimes if I move them a certain way. You might be low on potassium or calcium or any of the B vitamins or magnesium. Fibro patients tend to be low in magnesium from what I have read. I take a supplement at night. You might want to check it out with your doctor. ( I also get pain if I stretch before walking).
Good Luck and hugs!
Susan