Hello.....this is my first time! I would like to know how many other fibro sufferers are affected by weather. This weird weather we have had lately in the UK has been particularly painful. I couldn't stand the shower on me this morning....sad or what? I do have osteo arthritis as well so it may be that. Any ideas?
Do you know something.....I think fibro sufferers are a very strong lot of people that we still try to live normal lives doing stuff we know we shall pay for but still carrying on. One of the horrid things is trying to keep up a social life in the evenings.....it is very rare nowadays!!!
Delighted to read your first post, especially as it is a subject that comes up quite often on here. Undoubtedly the weather does affect us Fibro Warriors, I have read about this many times. For me the rain can feel like sharp needles on certain parts of my body. Also, cold and/or heat seems to affect many of us, to the extent that I know of people who have moved to a place where the climate is more agreeable to them. For me, the warmer weather always lifts my spirits, and in my opinion, this can be half the battle for us.
I totally agree that we are strong, how could we suffer this day after day, and not be!
100% on point. Between my mother (who is 85) and me we do better than the weather casters. I read a guys research who said that there's no connection. If you ask me it was written buy a person who doesn't have it. I as well have Osteo Arthritis. and they are looking at possible RA as well. (I definitely have got to come up with something else better to do.)
Thank you for that...I have also had bloods etc done for RA but all came back negative although looking at my hands they certainly show all the symptoms and are very painful. Do you have Osteo in your spine? I do and I have a neck collar and a back brace which give me some reprieve but obviously one cannot wear them all the time. But they help!! My Dr. prescribed Gabapentin which I took for a while but didn't seem to do much for me....has anyone else tried it? Maybe I needed a higher dose! Isn't it odd that Fibro seems to be immune to pain killers?
I hope you have a good day.....Tricky.
emt21902 said:
100% on point. Between my mother (who is 85) and me we do better than the weather casters. I read a guys research who said that there's no connection. If you ask me it was written buy a person who doesn't have it. I as well have Osteo Arthritis. and they are looking at possible RA as well. (I definitely have got to come up with something else better to do.)
Poor you! What do you do for yourself to help in a flare up...I go to bed! Your weather totally different from mine in England but it still affects us all with Fibro. Cheeky question now.....Do you find it hard finding clothes especially bras that don't hurt? I have tried sports bras and those wonderful old fashioned ones my Grandmother wore but they all are still uncomfortable. I am no longer at an age to go braless! (although I do at home). Keep smiling LaDonna.
LaDonna Brown said:
Yes I'm in a flare up now due to weather here in Mississippi
Yes, the weather makes the pain worse…It’s like I can predict the changes in
the weather…mostly I have pain in my neck, head and shoulders…In the winter I have pain and in the summer heat my muscles are sluggish…I know I need more exercise and that would help some…I do try to heat healthy and make most of meals from scratch, lots of chicken and vegtables and some fruits…I try not to take to much of my pain meds because it constipates me…if I become constipated the best thing that I have found is to drink some prune juice…fatigue is not as bad the last few years but I do find myself laying down quite frequently throughout the day…even if it’s just 30 minutes
As far as the weather and seasons this is spot on for me. I feel as if I can tell a thunderstorm is brewing a good half hour before it hits just from pain in my neck shoulders and back! I’ve also noticed recently my muscles feel sluggish on hot humid days. Thought it was just in my head but it’s been occurring so often I have to admit it’s real.
I also have pain when the weather changes starting approximately 48 hours prior to the bad weather arrives. It last until it leaves. The way I do best is I start utilizing my tramadol before the pain gets bad. I also combine it with aleve 440mg. The earlier you start your pain remedies the better you are off. I also take lyrica at bedtime. Lyrica i take nightly but my pain meds are only for flares, because if they’re used too frequently the body builds a tolerance and doesn’t work as well. I hope this helps and best wishes to you. my credentials are not quite a pharmacist. I am a clinical pharmacy Technician. My advice is based on my personal experience and pharmacy training.
The weather affects me,too. And you are right, we are strong. Out in public, we put on the, “I am fine face”, because who wants to hear the truth about how we really feel? I push myself daily and after a few days, I crash for a day to recover. Living a normal, active life is a thing of the past, unfortunately. I am only going to be 60, I should still be able to do what I want to. One day at a time, sweet Jesus, thats all I’m asking of You…
i have had fibro for 37 years and just fought through it raising family and working. i am 74 now. started cortisone 8 years ago and that has cause osteoporosis in me. also took norco, ten a day, which now has backfired with terrible “rebound” pain. i had hallucinations with most meds. i have also recently noticed that the changes in weather bother me. as a 30 year old i laughed at old folks talking about the weather. SHAME on me !!! now its true, it does bother me. i have just started Gralise which is a time release gabapentin and hope it helps me. Lyrica cause problems.
I live in Michigan and for several days now my Fibro has been out of control. Today we got an Alberta Clipper Snow Storm with temps in the teens and tons of snow. My body told me that it was coming days ahead of time. Even with my water therapy, hot whirlpool and no relief. I’m headed to aflorida for the winter on a Christmas Day. I’ve been going south and seems once I get there I get so much relief. I get plenty of exercise in each day, go at a slower pace and I feel so much better.
I live in UAE, its hot and humid (which I hear is great for fibro) but it actually isn’t different.
Strangely when I travel to Europe or US where its freezing I don’t feel pain at all, I’m fibro free. But I think it’s psychological for me, I’m away from stress
Hello Tricky and everyone else. A warm felt Happy New Years to all.
Regarding your topic, yes the cold weather does affect many suffers. My husband has been going through the motions with this junk. The one thing I do when it is cold is keep him warm, is to wrap his body in heat. I purchased him an electric blanket and I use that on his legs. Works great… I have tried many things for him and yet I have found the hardest is him getting dress or something simple as his socks in the morning. So I got him that sock gadget and it helps a great deal.
I have to say I agree with your statement that fibro suffers are very strong indeed. When I watch all that he has gone through, I personally want to for him, as this is pain we have never gone through.
My thought for today, I have never felt so much hurt and pain for my baby. To know that he suffers and there is nothing I can do. I pray and encourage him everyday. I remind him that I am 100% with him and that he will not battle this alone. I know it doesn’t cure the pain. But, he knows that he doesn’t have to go through this alone.
Hello all,
I am new to Fibro as of my 47th birthday. Had no idea what was going on and was scared. Legs went numb first and it spread to chest and hands after few days. After two weeks I wasn’t eating and could barely walk my legs were so stiff and muscles sore. Hospital trip told me nothing so I looked symptoms up online. It was easy as after two more weeks the nerve pain in my feet and swelling started. I couldn’t walk for the pain felt like my feet being ripped apart. Legs still stiff. I went to my doctor, he prescribed gabepentin 100mg 3x a day told me can increase as needed. In 3 days I was up to 1200mg. I’m now not taking anything. I wont take presrips any more. I’m thankful I found this site. God bless all for living with what God has given us to bare n share knowledge with others. NOTE to dancingwolf… Its wonderful you support your husband. I’m in a new relationship and we started talking before all this started. He’s been great so far. I’m hoping he can understand while I find therapies that work for me. Xxx
Hi this is my 1st post. I am in central Wisconsin, and have found the weather dose play a big factor in my pain. I have lived with pain for 18 years now. But only been diagnosed with fibromyalgia about a year or so ago. I have tried many things to help my pain. Not all have helped, and some don’t all ways help. For many years I just battled the pain and tried to keep going. But I find my pain only getting worse. I am taking some meds now that help, and do find that my faith dose help a great deal.
Hello Ms.Tricky, Here in New England, we have different weather everyday. I’ve wondered about the barometric pressure & as it goes way down. How do u feel? I feel very tired & achy. Yes the weather affects me greatly. Spring is the best. But summer heat & humidity kills me. I stay in my bedroom with my little AC running all day. Not a great way to live. I did get a Happy Light from my daughter for Christmas which is supposed to improve my well-being. Time will tell.
Take care, Sharyn
I do take gabapentin 3200mg at bedtime & some days I take 2400mg during the day if I’m not driving anywhere. Of course I had to build up to this dose but it really helps. But as with most things that help us, they’ve started regulating it as a narcotic
Its overcast in Trinidad and I am in a flare in the office. My muscles have been twitching like crazy. Its amazing how the weather affects us. My wife does not need to watch the weather news, i can tell her if its going to rain. Do you guys also smell and feel the moisture in the air? My sense of smell, touch and taste has been heightened due to Fibro.
This is my first post having been diagnosed with fibromyalgia by rheumatologist about 10 years ago. I am from Scotland and the cold weather really affects me…I stay inside and stay warm hoping for summer. At the moment it is -2 and set to get colder. Heat helps me. It’s strange that some of us experience these differences.