Today is a hard day. My low back and spine hurt a lot from the AS and Fibro. I went bowling yesterday for 2 hours and I am paying for it today. It was so much fun yesterday! I scored the highest I have in a while on all 3 games (and that says a lot because I am not a great bowler). Yesterday I felt happy, alive, "normal" and pain free. Today, I am not that lucky. I'm limping around the house today because everytime I walk and put pressure on my right foot, my low back starts to hurt. I feel crippled today. I feel tired today. I feel defeated today. I'm trying to focus on the happy times of yesterday, but my body keeps pulling me back into this moment of pain. I have mild pain relievers that I use regularly to help control the pain, I had to break out the painkillers today; and I'm still not experiecing relief in my low back. It hurts all the way up and down my spine and I'm afraid to move because it hurts.
I'm only in my late 20's and I fear this diagnosis will get the better of me before I am middle aged.
i am glad you had so much fun yesterday. sorry you feel bad today. best to do what ever you can now to relax , heal, sleep, stay in bed. And to always savor the good moments.. By the time you are middle aged you could be better than you are, maybe you heal with some cures, effective drugs or miracles. Best to look ahead and envision wellness. thats my advice to you with love and HUGGGGGGGGGGGGGGGGGGGGGGGGGGGGGS
So sorry to hear you are suffering to-day. I gues that is the price you pay for having fun! I suspect it is always like that fo fibro. Have to pace yourself so you can rest the next day. That's what I do if I possibly can,cos you've got to have somr fun in life.
Meanwhile keep looking and searching for what helps you best, and hopefully sometime in the future there will be more help for us.
I sympathize with everything you feel. I also worry about the same things, we are so young and we are just trying to be “normal.” I will just say that you have to be in the moment when you feel good, remember all the sensations and smells. I have done this exercise with my therapist and I picked a random word that I think of and it triggers my happy place. Although sometimes the pain is too strong to go to that place, the word, “pastel” reassures me. Have you tried salon-pas on your back, or a heatingg pad, I have even gone to a masseuse to work out the knots. I am not sure whst the treatment is for AS, as my rheumatolgist ruled that out, but have hope. We just have to balance the good days with the bad, and accept it. Do you think you may have overdone it yesterday? Perhaps limit yourself to one game? I did yoga yesterday and I had a horrible headache and leg pains today. So I did too much, but will be more cautious when I go back. And I will go back.
hugs I hope you feel better and hope you feel stronger tomorrow.
I am glad you had a good time bowling. Do you do exercise during the week? You may have strained something. If it doesnt get better you may want to follow up with your doctor. I try and do things on days that I know I can rest the next day just incase I feel bad. I put my meal in the crockpot and make sure everything I need is in the house {drinks,snacks etc} that way I will have most of the day to rest. I hope you are feeling better soon.
Thanks for the responses and support. I am feeling better today, still in pain, but it doesn't hurt my low back when I walk anymore. I'm still trying to get use to this Fibro diagnosis and pain that is associated with it. It is hard to accept and be so limited. I find my mind drifting back to the times before the Fibro problems started and wish I could be there again; but, I have to keep looking forward and accept this for what it is.
Heather-I was feeling really good on Saturday, so I probably did over do the bowling and overestimated my ability to participate so heavily.
Thanks Suzie-I will try to envision wellness and keep hope that something will come along to ease the symptoms of this diagnosis : )
Purplebutterfly-I did exactly that yesterday. I rested, put a roast in the oven with carrots and potatoes and let it cook for 5 hours. It turned out great and I didn't have to do much but rest and do things at my own pace.
Anne-I sure do hope there are more things that appear in the near future to help us on a daily basis, gotta keep the hope alive!