Today is just not my day. Woke up with a splitting migraine, couldn't stand for more than 2 minutes before I had to rush to the bathroom and throw up. My whole body feels like it has been injected with cement, I seriously struggled to even get up out of bed this morning. It's so frustrating to feel this way all the time, but today has been especially delightful. I had to call out of work which I hate doing, and even though my manager also has fibro, she gets mad at me because if she can do the work than why can't I, she doesn't understand that while her fibro is light to moderate, mine is SEVERE. I have even shown her a note from my doctor and she brushed it off. Days like today I just feel so useless and burned out in every way possible. Oy ve. Anyone out there feeling the same today? I could really use some support.
hi ahava.. I hear you and i feel you.. Everyone has different levels of these illnesses. there is no one size fits all. sigh
I was diagnosed with severe case of chronic fatigue immune dysfunction( CFIDS) about 28 years ago as was bedridden for the fist 10.. I had everything wrong with me that one could think of. I could not do anything at all for myself., not even feed nor wash myself. well the list goes long. I have pain from the cfids, fm osteoarthritis and spinal disease. I wont go into the rest of the list. just giving you a small picture. As you can see that i am here lets you know i can type and read and some other stuff. thank goodness. Ok getting to a point here. lol. A friend of mine drove from 2 states to visit me. She has a mild case of fm plus back issues. She works part time doing things she loves like photography.. But when she told my husband " i have what your wife has" He nearly bit off her head. He has seen me litter-ally disabled , having grand mal siezures, aphasia and as i said the list goes on. He so resented her saying she had what i have when she was quite mobile and her only symptoms were mild pain and fatigue. But i guess it is all relative. People who have relatively good health and good functioning level cant imagine how someone with an illness with the same name has it harder. You sure do have my support and all the best for your well being. HUGGGGGGGGGGGGGGGS
Oh how awful for you, someone who might understand this condition obviously doesn't! There are many layers to this Fibromyalgia. All I can say is , if you are still working full time, good for you - often people can't work full - time. For some people if you are working at all that is a bonus! I wish you luck.
Oh hon, it is ok. We are all human and need to take breaks from work now and then. Even non-Fibro people take "mental health days." I am sorry it has been a rough day. Whenever I start to feel down I try to remember how far really I've come in this journey. Yes bad days happen but so do good days. I try to keep my mind focused on the positive as much as possible as it helps decrease my stress and that in turn helps me sleep better and feel better. Please hang in there and I hope you feel better soon. Hugs, Michelle
Thank you everyone for your support, living with fibromyalgia is definitely not easy to say the least. It does help me to know that there are other fighters such as yourselves going through what I am going through. Trying to explain my condition to others is so exhausting, often I get "you just need to exercise more, you're body is tired because you don't move around enough" or my all time favorite, "but you don't look sick". Oy ve. I wish that people would start to grasp that concept that just because I may look healthy and have to put make up on almost every day for work, it does not mean that I feel up to par. Not in the least. It just seems that no matter how many articles I print out for friends and family no one can understand what I go through, and to be honest, I really don't expect them too. It is very hard for people who don't have this multi-faceted disease to comprehend what we walk through on a daily basis. I always say, I know that you can't understand what this disease is like, and I don't expect you to. Just please have mercy and realize that for me this is my life, this is my struggle all the time even if it is invisible to the human eyes.
Thank you all for your support and I am so sorry to hear about your struggles also. It is very difficult to make it through each day, but we are all incredibly strong to have such a terrible disease and still fight through it every day.
I have definitely been where you are at. It is a constant battle of up and down. It IS frustrating when people don't understand, but each case is different. I would except your boss to have a little more understanding since she has Fibro, but since her case is different for her, she can only relate to how she feels, which is unfortunate. On days like these, I have felt like giving up and pulling to covers over my head, but I remember that good days will come and those are what we live for.