We were more than fortunate that John Quintner, MD of Perth, Australia has joined our group and is sharing the findings of his work in Rheumatology and Pain Management on the subject of Fibromyalgia Syndrome. Here is his bio:
Hi SK - the links that you gave us, I can't find any info on the doctor. However, I am SO excited about Dr. Quintner joining the group! I am most anxious to read about all he has to say about Fibro and hoping there will be something out there to help us all! Thanks so much for the info. Laurie
Really interesting paper and the summary is a lot easier to understand. Not quite ready to throw away my meds yet, but definitely will look into the other natural type of therapies to add to exercise I’ve started, as it makes sense to me. Seems to be there was other research done that’s been posted that was somewhat similar, but not as specific.
Would be really interested in any other information he could provide us.
No, I won't be throwing my Enbrel away, but I have autoimmune complications, I just think that in addition to the meds, alternative practices help.
Dr Qunitner is sending me other info in a drop box to share, he thinks it is time the info comes to light. We will never be able to fully express our thanks to him!
Just read the article! Wow! It makes a lot of sense to me. Back when all my symptoms first began, my specialists believed I had a neuro-endocrine type tumor secreting "norpinephrine" in my system. After many tests, we were never able to find this "elusive" tumor, but I am very familiar with Substance P, etc. I specifically recall my electophysiolgist saying, "it's as if your fight or flight response system is being activated for no apparent reason on it's own!" I have been suffering with both Psoriasis and Eczema in no less than 4 different areas on my body for over a year now. My Rhuematologist sees absolutely no correlation with my Fibro and the skin issues, although I have totally disagreed with him, stating, "yes, it is related--it has to be!" I went through a ton of trauma from 1990-2006 with initial symptoms beginning in 2003. I lost my dad suddenly at age 58, lost my 16 year old son in a horrible vehicle accident followed by his dad--my first spouse suffering a massive cerebral aneurysm at age 39, then lost my only brother from a freak accident when he was 45---and the challenges just kept coming. I remember asking one of my cardiologists in the beginning, "Is it possible that all the trauma and loss could have caused my heart to suddenly go berzerk along with all these other issues?" Of course, he didn't have a clue--nor did he really care. I am bringing this article to my next appointment with my Rhuematologist! Thank you for sharing this and thanks to Dr. Quintner for his part in this research! I'm just blown away right now!!!
He feels it is time for this info to be distributed!
I told him I could certainly relate, rainey, bless your heart, you would be the poster child for this! I am so sorry for all of the trauma and loss you have been through, how could those Drs not relate one to the other? DUH!!!
Mine opened with office, so did Renie's she is trying to figure out how to share the info he put in a drop box for me to share with everyone. My computer skills are surely lacking for this, but Renie should be able to figure it out!
I saw at least 7 different specialists, even made the trip to see Dr. Eugene Woltering at LSU who specializes in neuro-endocrine tumors, and to see a specialist in Fort Worth. I have been to 4 different endocrinologists also, each one, dead set on looking for a tumor that did not exist! Amazing how none of my doctors bothered to communicate with each other and most of them totally failed to "listen" to me. My first cardiologist was convinced it was endocrine related and whatever was wrong would only be found in 1-2 % of the general population. My NP worked harder than all of them combined trying to figure my enigma out. I am seriously considering going back to her because of this fact. I will say this much. Our endocrinologists in OK seem to be so lacking in current knowledge and information. I have a nephew with Polyendocrine Failure Type I and he is about to be forced to go to the Mayo Clinic to get adequate treatment because Oklahoma endocrinologists have simply failed him in the worst ways. He is only in his 20's! Reading Dr.Quintner's article confirmed to me that my own instincts and intuition were probably right on target all along. Who knows our bodies better than we? The very process he speaks of involves our "fight or flight response" system which is there to protect us, but is derailed due to trauma or prolonged stressful events in our lives. I am so grateful to have this information I could just cry!!
He is such a nice man, I'm sure he would appreciate hearing from you, if you would like to send him a message, He told me he thought it was time the world knew this information! I agree!
I couldn't have asked for a nicer present than the best of his life's work. He's in his 70's, still consulting and writing! He's way up there on my 'hero list'!
Fascinating article. The loss of homeostasis seems like it would also agree with Yunus' theory of dysregulation. OK, I'm a nerd who reads pubmed & immunesupport.com research articles for fun.... Still, I learn a lot.
With central sensitization and chemical sensitivities, there is a "windup" dynamic in which each exposure adds to wind up the reactions to a higher and higher level. With fibro, I find the same thing happens with auditory stimulation - too much noise!
Hi SK, do you think he would respond to us if we put together a list of questions for him. I’ve never had a 'hero" list but the fact that he reached out to us, is pretty special, maybe I’ll have to start one. I’d love to find some way to get off the pain meds as they along with the other meds I have to take just sap all my energy. Wondering if he’s heard of a Dr. Ian Hyamis, originally from South Africa, then England and now in my neighborhood, that seems to be doing a lot of work with fibro. I’ve been referred to him, but don’t know how long it will be to actually get an appointment.
Probably dreaming in technicolour, but it would be nice to have some energy. Hope all is well with you, and you’re rebuilding your energy for those grand kids.
Is it possible for someone to briefly summarize the findings in this paper? I don't have Office so could not access it but I very much want to be aware of any new research or theories pertaining to fibro.
Here is a link that was sent to me by my computer repairman, so It's safe. He has sent me TONS of info that I am working with Renie on to allow everyone access. You will need office, here is the link:
I’ve been diagnosed 3 years ago but now my pain is worst, can’t be on medication for it cause what I am taking. Only using heating pads and I cry every day. I don’t know what else to do, yesterday my doctor said I need to go into physical therapy and pain management. I can hardly walk most of the time, if I do after a few hours I’m too exhausted and in extreme pain. Does anyone have any suggestions for me. Please include need some type of relief till I can find a physical therapist. I can’t stop crying.
Oh, Cynthia, I'm so sorry to hear that you are going through this. First, may I suggest that you ask your doctor for referrals to a physical therapist and a pain management specialist? It will also speed up the process. I'm not sure what you're trying to say about medications, but I would not give up on these two specialists. I have been in physical therapy multiple times (for different injuries as well as fibro). The knowledge you will gain is something you can carry with you for the rest of your life, as well as providing relief.
Are you aware of chronic myofascial pain? Trigger point therapy is often used to break up spasms. There will be a hard spot - usually in the middle of the muscle. If you press on it, it will hurt at first, but keep pressing. This deprives the center of the spasm of oxygen, forcing the spasm to release. Physical therapists use this as well as other techniques to relieve pain.. Stretching gently is essential as well, but keep it slow and gentle.
I have severe fibro & chronic myofascial pain, as well as spinal injury, and my heart goes out to you. I have a favorite crying corner, and there's nothing wrong with crying, as long as we continue to turn to each other for ideas and support. I admire your strength in doing this. You are stronger than many people I know, and will get through this.
While you are waiting for a physical therapist & pain management specialist, you can research myofascial pain release, trigger points, and accupressure. These are all terms which relate to it. By doing productive research you get two bonuses: a sense of hope and the knowledge that there are still things that can be done to ease the pain.