Does anyone else find that they feel like every movement is an effort or that they are trying to walk through soup/jelly when it gets hot? This was new for me this summer and both concerning and saddening. The weather is cooler this week and I feel like I can move again.
I am hot constantly. I had to turn down my thermostat to 62° to feel comfortable in my own home.
I fought my way through breast cancer treatments last year. When it was over I was determined to try to get my fitness back, despite my pain from tons of things. I started off walking a mile and it felt like I was walking theough quicksand with every step. Little by little I increased it to 5-6 miles but every part of my body would hurt for days. I discovered my BP was dropping dangerously low when exercising, 70/50. So my GP advised me to drink more water while execising and it helped. Of course now with wind chills below 0 it is too cold to walk and I find my Fibeo and arthritis are getting worse.
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It’s like my internal thermometer is messed up. I get hot very easily, but once in a while I can’t get warm enough.
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I’m glad that’s not just me. I react well to topical heat (sometimes heat packs or hot showers are the only way to get any pain relief- which is difficult with current temps at home over 30 degrees Celsius most days), but I don’t cope well with hot weather. Cold always means more pain- external temperature or applied cold (eg ice packs). Can’t figure it out!
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There are studies that show the autonomic system is messed up in fibro. The study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3392820/ explains a little about the autonomic system that includes the sympathetic nervous system and parasympathetic nervous system. It mentions the difficulty with cold temperatures. However, in addition to cold temperatures, the autonomic system can affect how we handle hot temperatures, too. For example, we may get orthostatic intolerance which is triggered when we stand and get dizzy or feel faint (some actually faint- like me). But orthostatic intolerance (neurocardiogenic syncope) can also be triggered by getting to hot or being in hot temperatures.
Jess. This is a New one for me also. I’ve always been a summer loving person but for 3 years now the heat is my worst enemy. I try to get out early while it’s not so hot or late after it cools off. We have a pool, which I love. It allows me to get a little exercise without getting overheated. But I do feel like a dead hippo when I get out. Gravity ain’t my friend!!! It’s gotten so hot so early this year, my pool already feels like a hot tub except for early in the morning. I guess this is another weird thing that Fibro has dumped on us. I do hope your day is going well!
I have these same issues. I cannot be in direct sunlight for long or I start to faint. On the other hand, the cold temperatures make my feet and hands dumb; I feel like I’m freezing to death, and I cannot tolerate that either. I used to love summer. Now I struggle through summer and winter. Even the falls and springs are tough because I live in SC and it is rarely comfortable around here. It;s either hot as mess or cold. So you are not alone. It is real.
I am always sweating. It’s awful and embarrassing.
It limits my getting out.