I have had fibro for a long time now and during the winter I would hurt extremely bad and have very few flare ups. I learned to pretty much tolerate things in the winter. I live in northeast Tennessee and right now it is about 94 with a heat index of over 100 and very humid. I have had 3 different flare ups since May and I am not sure if it is consistent or if they go away and come back. Right now I am in terrible flare and I was just wondering if anyone else has worse flare when it is really hot outside. The heat seems to make me hurt worse then the cold. I can barely get out of the bed due to the pain in my hips and legs. My fingers and hands are swollen twice the size they are suppose to be and I just generally feel bad. I have terrible fibro fog. I have a 6 month old grand baby and it hurts to even pick him up. That truly breaks my heart. I went to the dr on Monday and he gave me a few pain pills till I can get over this flare. I am already on 200 mg of Lyrica a day which seem to work most of the time. Does anyone have any suggest or experience the same problems during the summer?
Im on 600mg of gabapentin,100mg of palexia and 15/500mg of codipar a day not including my normal meds.The heat does affect me.I like cold weather but i also have lupus as well as fibro and possibly ankylosing spondylitis .I really do feel for you being in that kind of heat s3ending gentle hugs and good vibes your way xxx
Sending positive thoughts your way, I know you are dealing with so many things. For me, I suffer terribly with cold, especially my left foot, which turns into a block of ice! But, like you I have learnt to deal with it. In UK we don't tend to have extremes of temperature for long periods.So it surprised me how the heat affected me, when we had a hot spell recently. I felt exhausted, which made the pain more difficult to deal with... it was not good. Maybe not too useful, but I think many of us here do find extremes of temp cause flares, we are dealing with so many different things on many levels. I wish you well.
Mandy, I tried gabapentin for a while and was on the max dose you can take an it really did nothing for me. They switched me to Lyrica which has helped tremendously on normal days. I hurt every day but nothing like this flare. I went back to the doctor and they gave me some steroids and Lortabs for a couple of weeks and after about 4 days of them I felt a lot better. My medication usually works but this heat wave is just brutal. The heat index was 106 today.I think the biggest problem right now is getting treatment for pain. I live in Tennessee and it happens to be the 2 largest place in the US for opioid abuse. So getting treatment for pain in this town is terrible. I have a cousin who has lupus and I feel so sorry for you. I see her in pain and her body doing all kinds of stuff and just being sick all the time. I am so sorry you have to deal with that. I did have a positive ANA test and need more testing cause my regular dr thinks I have lupus but the Rheumatologist in this town are terrible. I went and seen him and he said well you have fibro and a positive ANA so you are going to hurt have a nice day. My regular dr is awesome though so we are going to figure this out ourselves till they can find me a Rheumatologist that is worth something.
Anne,
I also suffer from the cold and my feet and hands turn to a block of ice to but I really think the heat has just flared me up really bad. I hear the weather in the UK doesn't go to extremes like here in the US. I feel so exhausted from the heat it is terrible. I think these extreme temperatures should be outlawed lol. It would be nice if it could be 70 degrees year around that would be awesome.
I wish you both well. Gentle hugs and good wishes for both of you.
I hope this finds you feeling better! My flare ups have been triggered by being in the sun and heat too long but I seem to be on a Rollercoaster of good and horrible days right now. Opiates don’t do anything for me but after reading what you’re going through, I think you need to move to Colorado. Very little humidity and we count the number of days we’re in the 90’s. As an added bonus i can introduce you to my pain specialist. He doesn’t listen, doesn’t believe that fibromyalgia is real and will drug test you every time you walk through the door for THC, positive and that’s it, he won’t see you again however he loves his Opiates. I’m trying to get off what he’s had me on for 2 years right now and switch specialist. Thought this might make you smile. Take care of yourself. Best wishes for happier days.
I think moving to Colorado is an awesome idea. Just a question. If THC is legal in Colorado how can he not treat you if you test positive? I am sure he has some kind of paper you have to sign. I have days where I feel like I am on a rollercoaster to and I don't like them at all. I feel you pain. I don't think I really want you meet your pain specialist. lol. I wish you the best of luck with finding the help you need. Thanks for making me smile I need that. You take care of your self.
You called it! Have to sign paperwork every so often. 1. For if you miss an appointment, that you agree to a fee of $170. Which has to be paid before they’ll allow you to schedule an appointment. Only did that once! Lol but really, hello haven’t you heard of Fibro Fog? Oh yeah, that’s right fibromyalgia is a "band-aid " doctor’s use to “label” people with who they can’t figure out what’s going on with them! Like I said, horrible doctor but the opiates worked for a few years. 2. Have to sign an agreement that if you test positive for THC, you will no longer be able to be seen by anyone at that office. Even though THC is legal here there’s still a lot of legal issues surrounding its usage.
My husband’s uncle was using a THC cream up until he was put on a morphine drip and he said it worked wonders.
Thanks for making me smile too! Laughter really is the best medicene. I agree princessrenee, extreme temps should be outlawed, and 70 all year round would be wonderful! We wish. On a serious note, I do wish you all well, just keep on reaching out, being here for each other is so important.