I have been in this fog for so long now that I don't even feel real. Working is out, driving is out, socializing is out, strange feelings in my body and pain are the norm. A full head with rushing thoughts running in circles, but going nowhere is the norm. An extreme exhaustion has taken over this body I occupy. And I sit here still waiting for the illusive neuro Dr appointment that never seems to come. And yet my fear is that I could be told they find nothing and all is good? Isnt that what we want to hear? That should be awesome, but only if these symptoms would go away with the diagnosis of all is good.
Debra, I hope at least that expressing these feelings has done you some good. I also hope that neuro appointment arrives soon, and that you learn something that will help you. Hang in there.
The more I read and try to understand this condition the more baffling it is. As you say, wouldn’t/shouldn’t we be glad to know nothing is wrong? I have to say no! I’ve described my symptoms so many times to have them pushed aside and shrugged off, I now see it as a step in the right direction that eventually my rheumy has decided that fibro is the culprit (not that he’s given any treatment). I felt very tearful with relief that my symptoms have at last been recognised. Hope you get some answers and relief soon. Sending you a hug, sounds as if you could do with one { } x
It does help to vent and helps even more to know I'm not alone. Don't like to feel so disconnected and lost. This will pass. Thanks for the support.
Sorry you’re going through this confusing patch. You’re not alone here. I hope you get some satisfactory answers soon, hon.
It's awful. I feel your pain. Being afraid they will find nothing-feeling crazy for wanting them to find something. But you KNOW something is wrong. Hang in there and know you are not alone. HUGS!
I got a phone call today. My neuro appointment is Tuesday. Wow.........Feeling happy and scared at the same time. Scared to find something wrong and scared not to find anything wrong. I know ya'll understand that feeling and its nice to know I can say that and not be thought of as crazy :)
Im sorry you r going thru all of that I went thru it also and the doctors told me everything was fine and that fibro that's how it normally is...but that the person has so many issues after everything is rulled out then its fibro...I know it seems it would be better to have something on the tests to deal with.
I just wish you the best with everything
hugs Wings
Thank you for the support. Its awful to say I'm worried they won't find the problem. I find this to be very common among us Fibro sufferers. Testing seems to rule things out without giving us any answers. Hanging in there. On the good side the weather has been favorable for less pain. I am grateful for that. We need to look at the cup half full. That is my goal. Wishing all the best to you too.
I'm sorry Debra. I understand what your saying here completely, I think almost everyone has felt these things and spent hours worrying over it. I know I have. If I could recommend something, it would be to find something you can do especially in your down time to cheer yourself up and feel a little productive. For me that is painting, drawing, writing, writing to you all, or even just watching a feel good movie. It doesn't seem like a lot to the person who suffers from chronic pain, fatigue, fog, etc. But every little bit really does help in the long run to make us happier. I hope you are feeling better today, keep your head up.
Blessings and prayers
Debra I’m very sorry for what you are going through. I really can relate. I am in a fog most of the time. I always have to double check every thing I do. I have had FMS for 21/2 years. I had to leave my job and go on SSD. I am very happy that some of the people dealing with FMS are still able to go to work. I see a neuro and he does the best he can but sometimes it isn’t enough. I’m in hopes that one day we will have a cure. Please stay strong and hang in there. What meds are you on so far? Please take care of yourself!
I finally had my neuro appointment yesterday. Needed time to process my new diagnosis. Its been about a year since I had an accident with a blow to the head that knocked me out. After 2 CTs and an MRI showing all is ok I was under the illusion that my brain issues were related to my fibro fog. I'm sure in part it is, but the neuro Dr says I have a closed head injury. I may get better over time if I can stay away from stress :/ Wow.........stay away from stress............My husband is the king when it comes to stressing me and upsetting me. He has a hard head and is having trouble getting ahold of the fibro diagnosis. My son has full disability from traumatic brain injury from the war and my husband has been unable to accept his disability. Heres hoping he will get ahold of this one so I can get better.