Silent, I have it all The time. A lot of the time I think its hair or for peers sake a flea. The heat is killing us this summer in brining us them little huggers this year.
Hi Punkin2x74
Ya, it seems the feeling is common. Many have responded saying they get it to. I,m glad I asked and I feel better that I did. I can't thank everyone enough. I just know its going to be easier to accept this disease and manage some kind of life now that I have this great support group.
P.S. Here in Vegas we are over the hundreds most the time, what is it for you? And what type of work are you doing? and does someone take you there and pick you up? How much pain are you and do you go to sleep right when you get home?
Yours Truly
Silent
Awww that is weird that you say that. I started of with little lumps that I thought were bites and I was itching all over and both of the palms of my hands flared up and redness spread down my wrists and they were itchy as hell them felt like they were on fire. Is that the same? I am just finishing antibiotics which has helped but it keeps hitting different places. Please could you tell me if this is what it is and what the best thing to do is. It's driving me insane (well more so lol). Is it a fibro thing or something else?
Jo
http://www.needymeds.org/index.htm
Silent, call them see if they can help you with your meds, please?
Silent, the usual summer temp is probably around 73. Sometimes we get into the 90’s. I know it seems like we live in the antartic compared to your hot temps but we like our somewhat mild temps lolol. I could.t handle tripple digits. I am pretty sure I’d get used to it but as my husband aptly calls me a heat weenie lol.
I guess you could consider me a office angel lol. I can generally do anything office related. From 1999 till 09 I was a Paralegal. Then because of the accident my Boss had to bring in another person and well after I returned to work he suggested that I go down to one day a week. I told him I couldn’t do that because I was driving 52miles one way and it wouldn’t be worth it. So we shelved that conversation for another time. Well he brought it back up in December and I knew that the relationship had to be severed. So I have been looking for a job ever since. But as we all know there are more people out there needing jobs than there are jobs in their field. I digress, so I am an office assistant for a pull tab company. I make the prize boards for games that when you get a code when you open the ticket you win a prise instead of money. And I drive. I drive myself everywhere! I also volunteer at the different sports arenas when there are games. Drive there also. It would kill me if I couldn’t drive anywhere. I am in pain. I’m in a ton of pain but I’d rather be in pain and working that in pain laying in the dent I’ve made in my bed! Lolol
I get it a lot in my left leg and left arm, although sometimes it's in both arms and legs, all the way down to my feet. It is a horrible feeling. If I forget to take Cymbalta for a couple of days because I haven't had the energy to go to the pharmacy after work, then I get dizzy spells. I think that's because of not taking the medication. The burning, throbbing pain that's always there is the worst, though. I constantly feel as if my hip needs popping.
I wonder if your hip does need popping? Sometimes our spine gets out of alignment and we need it realigned. Chiropractors can do this. I've had it done and it got rid of that feeling, Still hurts tho.
yes it happens to me but usually going thru my spine upper back which is where I seem to have most problems, it feels cold too like crackling ice wow is there a body part this disease doesn't effect?
Thank you! I appreciate it. Welcome to our website. It really is a nice place to be and there's a lot of useful info and great people.
Petunia
I think it could be the very tip of my pinky toe…tee hee.
Hi you are not weird I have that sometimes too. I also itch sometimes for no reason it's just part of fibro. I have also had the electric shocks run down my arm. I think that comes from our nerves being over active. Don't ever think you are weird because fibro is something that is hard to accept to begin with. Even when people know you have it they still think we can keep up with them. They don't really understand that we don't know how we will feel from one day to the next. Hope we can be friends i am sending u a friend request I am new here too.
Hi everyone, so glad all of you are here, and you all write down your experiences. It sure helps me out, sometimes I would think I was going bonkers, when I'd have those feelings like things are crawling on my skin. And, the jerks in my legs at nite, I was diagnosed with Restless Syndrome. But, they did not give me anything new, just told me to continue to take the muscle relaxers. The past 2-3 days have been bad for me with pain. I've tried everything...hoping not to have to break down and take pain meds. But, I've had to each day. I have Doggie Duty from 11 am - 1pm and it's been tough meeting all my requirements and being in so much pain. But, I will prevail, somehow. I'm so thankful this site is here, and all of you are here. Be blessed today and always.
Hi Sandra
Thanks for letting me know you have this happening to you too. I'm with you on the topic of people around me still not getting it. I have heard many others in the support group stating this as well. I'm not quite sure what the answer is going to be. It may be that the ones we need to understand and accept us now may never do so. But I am starting to feel like this is going to be fine.
Thanks for the the request I'm right on it.
xoxo Yours Truly
Silent
Dear Teresa Ferenz
Thank you for responding to my thread. Its so weird to feel the crawling on the skin. Its not contained to just one area, which makes it even more annoying. I find it makes me tired just from all the swiping. I can accept this as being part of the fibro. And I'm feeling so much better with everyone sharing the same information.
Hi Jillian
Yes! That is what I'm talking about "ALIEN-LIKE" It is so weird! I hope your specialist can get down to the numbness and tingling, I started having this too. I was told it was my thyroid. But now I don't know? So many things coming to light with being diagnosed with fibro. Thank you for responding to the post hope you have a good doc appointment.
Yours Truly
Silent
Hi Kambi
Wow. I just hope I don't start feeling it in my spine, or a crackling ice feeling. There really is nothing there! Its really weird! If I was watching my self...and I did not know it was me... I would think...something is really wrong with that lady! She is always swatting at her-self. I guess its kind of funny!? In A way!?
Your Truly
Silent
Hi uk2fla
Thanks for letting me know you get it to. I stopped my Cymbalta to. But I have not gone back on yet! Its been 2 months. I was wondering if you know that you should not miss any days of that med. Also, I know I was suppose to go off it slowly. uk2fla... stopping the way I did made me very sick for quite a while. I even had problems seeing. Go get your meds, or see if you can't have them delivered or even yell out the door to a neighbor if they would help you to get them.
Thinking of You tonight
xo Silent
Punkin2x74
73 sounds so good! It was like that here today and we even got rain. Strange how that works hu? What you do sounds so net! You sound very happy about driving. I like to drive to. You get to get out and do the things you like and you are enduring the pain and tiredness so that you can. This is so great, I'm a little jealous, but It feels good that it can be accomplished.
Yours Very Truly
Silent xoxo
ok.
love silent
Thanks Marygrace,
Men huh!! No wonder we have to nag. Thanks for the niacin idea. I will check it out.
Jo