Always at the end of a work week I can barley move, muscle are so weak…I’m tried of crying. …is this really my life? Any suggestions or story’s to help me? Thanks
Awww thanks you guys …means a lot…do you work? My job is so stressful. …
Yes, I work. I have a salary management position in social services with folks with disabilities. This means that I might have to work 40-60 hours some weeks. I am also on call 24/7 with a few weekends off here and there. I admit there are times it is so incredibly hard but luckily my boss is really flexible and I do have some flexibility. I am also able to work from home sometimes which does help, as I can be in pajamas and in bed doing reports, etc, instead of at a desk. But often I feel like you, completely exhausted after the week and all I want to do is sleep. Unfortunately sleep doesn't come easy but I try to rest as much as possible. This week I worked 3 half days as I have had a rough time. But sometimes if I can just make it out of bed, dressed, and to work I feel marginally better. And sometimes the work does help distract from the pain. But not always. There are days that I can't push past that. And I have broken down in tears in my car on the way to or from work more times than I can remember, so I understand that. Another thing I do is work very hard at minimizing stressors as much as possible. My job is stressful at times to say the least but if I can put off more stressful tasks to a later time when I feel really crappy than it helps. Of course that isn't always possible but I try to pace it as much as possible. Hugs.
How long you had this fibro crapo.The first few yrs are horrible but with time you will level off and then pain will start to diminish..I just started the d-ribose a few weeks ago and fell it has helped with the fatigue,not the pain..Hang in there,,,wayne
p.s remember if all else fails get your doctor ducks in a row so you can get your ssdi.
Hi, Necee.
I just wanted to say hello. Please keep coming here for support. It helps alot to know you aren’t alone in all of this. I still work. I find it very stressful and it is truly a challenge, but I found it is much easier to cope with support of friends, this wonderful board, and good doctors.
Hugs, hon.
L.
Thanks, it’s been a year and it’s sucks…I’m glad I found this site…
Have you tried hot baths with Epsom salt? That usually helps me a lot when I’m the worse. It will maybe help you relax as well and get a better nights sleep. And a heating pad also helps. That was my life until I could no longer work so I can’t say it will get better. I am so sorry you feel so bad. I admire you for going to that job every day. I know how hard it is.
Best wishes,
Melyn