In need of a little down time

General
1

Thanks for all of the messages, I'm just not feeling well, not sure if it's the UTI, the antibiotics, if they're working for me, against me... Not sure if the Enbrel has lowered my immune system too much. Plan to get to my Internist Monday or Tuesday. He is only about 5 or 10 minutes away, he and his wife have cared for me for years.

With this high cholesterol coming out of the blue, I think I want him to check my thyroid again, but he will know best.

Have been very tired, shaky, and irritable, to top it off, my husband, who is in Washington state visiting his best friend, fell ill and was not able to return home, keep down his meds, then ran out of his meds, he is at the VA hospital in Portland Oregon at this very moment, so whatever it is, I know they will care for him, check him out, stabilize and give him his meds.. I have had to do a lot of talking to get him to go.

His best friend is a retired Paramedic/Fireman, so he is in good hands, he took him, but I still worry. He is getting terribly close to the 9-11 date to be flying too. I want him well, very well before he gets on a plane, and I don't want it to be Sept 11.

I'll be back when I'm feeling better.

Wishing all of you well,

SK

2

Take care of your self SK hope you and your husband are better soon.

HUGS PB

3

so sorry to hear of your troubles of you and your husband. i send you loving,healing prayers..

suzie xoxoox

4

Hi SK,

I'm very, very sorry to hear that you're so sick...and your husband too. Do YOU have anyone to look in on you to be sure you're ok? I wish I was within driving distance so I could check in on you. It's scary that you're both so sick and he's so far away. But thank God you got him to go to the hospital and he has a good friend around. I hope you've got someone too.

UTI's can be just miserable! I saw a lot of people suffer from them at the nursing home and they were pretty messed up from them. I'm glad you'll be going to your internist soon. The sooner the better!

Oh, and yeah, make sure that your hubby doesn't get on a plane on 9/11! No matter what, it's a cr@ppy day and even more so to fly on.

Boy, why do you have to live so far from me?

Get well soon, SK! Kick that UTI in its butt! I know you will. :-P

5

Hi SK,

Sending love, hugs and flowers!

Love Lucy xx

6

Hi SK, So sorry that you aren't feeling well. And that your husband is sick too. It's probably not making it any easier on you, for him to be so far away, with the both of you not doing well. Hoping he won't have to fly on Sept 11, but if he does, he will probably be fine. But for your sake, I hope he will choose to fly another day! Anyway, please take care of you! I know you are going to be missed here while you are away!

Hugs, Vicky

7

Please feel better soon, SK, hon!

8

Hope you and your husband both feel better soon and he makes it home safely. Hugs and prayers

9

So sorry you both are under the weather! It sure doesn’t help when he’s across the country. I totally agree with you about flying on 9/11 - a little superstitious here!

Hope the doctor can get you feeling better soon - you are surely missed! hugs~ Sandi :slight_smile:

10

I hope that you both get feeling better soon! I will keep you in my thoughts! kep resting and feel better soon!

11

Feel better soon Susan. Sounds like things could us a turn-around. So your husband is/was only 30 miles from me at the VA Hospital. It's quite a complex of hospital buildings and clinics up there on the hill. Hope he got some good treatment. You get in to your doc and get well soon.

Take a break and get some rest.

Love and prayers,

Kitty

12

SK my thoughts and prayers are with you and your hubby … It’s gotta be so hard having him far away and sick on top of it :frowning:
I’m here if you need to talk, vent what ever …
Sending hugs
Prayers , thoughts and blessings
dee B

13

Hi everyone,

The VA was able to work on my husband, and stabilize him, he was dangerously low on potassium, which regulates the heart beat, and was also dehydrated. He was in the ER for 10.5 hours, and finally I had to go to the medicine cabinet and read off all of his meds, as their computers were not co-operating. I had no idea he takes so many heart meds!

He had already paid for a round trip ticket, but to re-book to fly this week the prices jumped to an additional $700.00 and up for a return flight, so is booked to return Tuesday, paying about half that amount. He will have to return to the VA ER to get more meds, but that is a relief, as surely they will recheck him.

I saw my Internist yesterday, and he is thinking that the Sjogren's Syndrome is responsible for the crushing fatigue and shaking, as 3 brain scans in the past show there is no MS or SLE. He is the one who discovered the Sjogren's and the tests results were extremely high. He said that just because the set medical classifications consider this a secondary condition, does not mean it is not worse than the Primary one.

My appointments with him are every 2 months now, so I see him again in a month, at this time, he will run bloods and check the white blood count, as with Sjogren's the white blood cells attack all of the moisture producing glands of the body. He wants me to be clear of the UTI before running this again. My Rheumatologist runs my blood work every 2 months, but things can change rapidly. I never have to wait more than 24 hours to see him (my GP), and if I need him he nearly always sees me that day, he is about 5-10 minutes away,so I am covered, and not alone, my Mom lives with us, so she is here, and she is a wonderfully caring lady.

He changed the antibiotic for the UTI, and also gave me a med used for fatigue in patients with MS.

So we'll see...

Thanks for the support, and all of the messages!

Love to all,

SK

14

http://gma.yahoo.com/terror-threats-mar-9-11-anniversary-154709021--abc-news-topstories.html

http://punditfromanotherplanet.com/2013/09/11/benghazi-office-of-libya-foreign-ministry-hit-by-bomb-on-anniversary-of-sept-11-attack-on-u-s-consulate/

I'm starting to wish he would just hitch hike home!

15

You and your husband have had an awful month so far. I'm glad that your brain scans don't show MS or SLE (WHEW!) Is there anything that can be done for the crushing fatigue or the shaking other than resting? If not, then please get a lot of rest. Oh wait, I see that he gave you an MS med for fatigue. Wow, that's an interesting approach! Is it for the short-term?

It's so, so nice that you've got your mom there to keep an eye on you. Warm fuzzies with that thought.

Question about your hubby: did he purchase travel insurance when he booked the flight? If so, he should be able to get some of the money back. Too bad he has to wait to return, though. But thank God the hospital got his potassium level up because YIKES, it's scary to think of his heart being so deficient of potassium! Did the hospital know what caused the low level of potassium?

At any rate, take care of yourself. We all understand how overwhelming your illnesses are. You are a typical overachiever but even you have to slow down at some point so you can take care of yourself. Save some of them spoons for yourself, girl!

16

Can he take Amtrak? (I can't believe i just said that!) Or (ugggh, shudder) Greyhound?

17

Sk. I’m sorry to hear about your not feeling well. I’m sending healing wishes your way. Have you had you blood glucos checked. Some of this sounds like low blood sugar. But as we are all very aware that with our bodies it could be just about anything! Why didn’t they take him to the VA hospital at Joint Base Lewis Mchord? Or in Seattle? I hope he is feeling better.

I hope you get this figured out!

Miss you much.
Danielle

18

Portland was the closest ER to Vancouver, the local one did not even have an ER, but they took good care of him, he sounds much better, now hopefully he'll get more meds, and make his flight next week without any other setbacks!

I think those are possibilities, Pet, but hopefully he'll be able to fly Tuesday.

No, all of my glucose is fine, not anemic, they've checked all of this continuously... it's the autoimmune kicking me down. The Rheum keeps saying how long I've had all of this. I've always had the pitted fingernails, always had dry eyes, dry mouth, cracked lips, and a sore back, so perhaps this has worked on me since birth.

Thanks everyone for your well wishes. Hope all of you are well, or feeling better if you are also one of the unlucky ones not feeling well at present.

With love,

SK