JayCS’s Fibro Blog

Symptoms & Treatments
1013

2022-11-15, Tuesday - Energy 20% / Sleep 90% / Feeling 80%-ish (nausea same, shakiness better.)

Successes:
:trophy: Less histamine foods → no sinuses.
:zap: Perhaps the jab sore throats were always a temperature / “thermostat” / circulation problem, so 1 or even 2 hot water bottles may be the solution.
:zap: Alternating the hot water bottles not just on feet but on pains incl. stomach / gut may be helpful.
:zap: psyllium/pectin at night may reduce peeing.
:zap: pure psyllium/pectin at night (local food store) may be better for my stomach.
:zap: more mouth gel at night and less drinking may reduce peeing too.
:zap: hanging at night for lower back unrest seems to be helpful.
:zap: Blinds open before getting up would wake me up too much, I’m often drowsing then anyway.
:zap: Cold at night: Wear more.
:zap: Will niacin improve ‘thermostat’? (A: Sometimes, but it can make me colder in the cold.)
:student: A popular nausea med is actually an antihistamine - how fitting! Not only 1st generation, so zombifying, but also seizures.
New Habits: :new: (15th: 1 less)
:ambulance: 5’ Worry time, 5’ plan time, 1-2h me time. (:white_check_mark:)
:ambulance: Back exercises evening and short at night. (:white_check_mark:)
:ambulance: Set alarm to limit longer night breaks. (:white_check_mark:)
:ambulance: Roll out mat 2x/d for back exercises. (:white_check_mark:)
:ambulance: Teeth every time I’m in the bathroom, except 1h after meals & 30’ away from nux vomica :white_check_mark:
:ambulance: Yoga Nidra if tired after lunch or not tired in evenings (:white_check_mark:)
:ambulance: Never “twist” torso while or after eating :face_with_monocle:/:white_check_mark: (realized in time…)
:ambulance: Cold shower every time I get lower back unrest. (:white_check_mark:)
:ambulance: Only sip and small amount of psyllium at night (:white_check_mark:)
:ambulance: Deleted & forgot a new one by mistake… :face_with_monocle: (:white_check_mark:)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-25%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (80%), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (2022-11-07)/MCAS/histamine-Symptoms/Triggers/Treatments (click for details): sinuses, paranasal and frontal with headache 0%, nausea 10%, 10% of the time, white lips 0%(?), "ill ache" off and on 0%, sliding around indoors 10%, temperature °C. burning tongue: 01:00 10% for an hour or two", new after that: itchy / painy alternating locally till 3:00, then cold ('thermostat' bust) for the first time in ages, but a fast alternate shower helped. But altogether lowering histamine seems to have helped quite a bit.

Jab#3 2022-11-07 at 12:00 (H1 2nd gen. antihistamine 4h before it and every evening)
Increasing: “Ill”, burning sinuses, burning tongue = reduce histamine again.
nausea: 0% →
sinuses: 0% → (headache) (nostrils)
“skating”: 0%-10%
white lips: 50% → 11:00 40%. 21:25 red.
eyes:
specific Ill Ache: 0%
temperature: temperature 9:32-38-45 36,6°C/36,1 feeling cold. 13:42-52-01 36,7°C/35,7! 18:23 35,9 (after almond milk at room temperature)/35,8, 18:43 36,6, then my mercury thermometer fell and broke :-1: :roll_eyes: cost me lots of nerves :grimacing:

SLEEP (click for details): 7h14, up 8x (49'), deep 6h+ ✅ ➔ Feeling 90-80% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. Nostrils 0% stuffy 100% of the night.

A3 cold shower p0 Sleep 1:15- Why not 21:00? Tidy up addicted.
Memos: Lower Back: Back exercises in short stints, 6 free/chair, twist-stretched. backstretching. Yoga & hanging. massager.
1:30 3’ 90%/1/10% p0 st1 sip0 fw1’ doze gel
1:40 3’ 90%/1/10% p0 st1 sip0 fw1’ doze → A’sYoNi
2:25 3’ 90%/1/10% – st1 sip0 fw1’ deep → A’sYoNi itchy / painy
2:57 3’ 90%/1/10% p0 st1 sip0 fw1’ deep doze → A’sYoNi itchy / painy areas
3:06 16’ 70%/1/10% p0 st1 sip0 fw1’ deep doze → A’sYoNi need hang or FCS… no thermostat busted → FAS…
4:36 4’ 90%/1/10% p0 st1 sip fw1’ deep air
6:34 5’ 80%/1/10% p0 st1 sip fw1’ deep HWB#3 psyllium#3
7:42 12’ 80%/1/10% p0 st1 sip fw1’ deep air stomach (from psyllium?):drink. soft stools. hang just in case. Alternating 1HWB helpful.
-9:18 9:35 9:30 B1-4 ‘5 in sun, stools fairly firm.
Sum:Sum: 9h18-1h15-(3+3+3+3+16+4+5+12=)49 = 8h03-49 = 7h14, up 8x (49’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: ➔ TT 2:1 ➔ 80%/3 :x: webinar ➔ 70%/3 :x:, rest ➔ 80%/2, a bit stressed in between, esp. when I was trying to re-update this after having deleted it and then breaking my mercury thermometer ➔ 70%/3 :x:, but finally OK after eating, supps & rest ➔ 90%/1 :white_check_mark:
ACTIONS ➔ PAINS (taken neck out from Nov 13th): :white_check_mark: except GI :white_check_mark:, esophagus: Severe esophagus block from the D23 plus muesli, a dark brown capsule came out. :x:, jaw 0x5’’ :white_check_mark:, pee pain: 2xp1-2 :white_check_mark: lower back unrest :white_check_mark:
Touch: :white_check_mark: Covid: :white_check_mark: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:. But cold flash at 3:00, probably jab-sfx.

Treatments

Docs:
Online course ACT (acceptance and commitment therapy) starting Oct 24th, about 2h per week.
RSM Webinar on fibro on Oct 10th, on fatigue on Oct 25th - still need to get round to that and the MCAS summit before that.
Chinese Acupuncturist - Session #32 on 4th., after 14 days :white_check_mark: Energy pretty stable at 20%, despite jab-nausea.
Session #33 indefinite.
Alternative health practitioner: appt. on Dec 6th.
3rd jab on Nov 7th… :horse_racing:

SELF-PHYSIO (click for details): 2h01' (RR: 0). 12:00 Massager on left calf helped pain after stretching for feet.

white_check_mark: airing 3x2’, cold shower 1x(10’), alternating shower 1x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 4x2’, HWB 3x3’, breath exercises 3x1’, Y. Nidra 0’, massage gun 3x3’, plantar/calf stretch 5x1’, acupressure 2x1’, palpate 0’, belly 2’, back 12’, !!aloe vera 0x1’, twist-stretch 10x1’, yoga/stretching 6x1’, sun 4x5’, hang 3x1’. hunchback-pillow 5’, wart 0x1.
RR:
Combine: next?
:x: neck 1+ 1x1’, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Nov 14th (40 supps): Supp costs:~315€/m (Nov 14th: Realized I'd forgotten to x30 for 2 supp costs per month.). CHANGED (15th): Nov 15th: I‘d trebled B2 to 3x600?mg, cos of the deficiency (max 1.5g)!, but better go down to 2x600mg and then 3x400mg, if that doesn't work (cos of praps SIBO) use the normal riboflavin instead of the R-5-P=FMN-form. 15th: Got Levagen+-PEA the (1.75 more bioavailable?). Found someone saying the special glutathione forms have not been proven better than the normal form. 14th: Increasing B3/Niacin/nicotinic acid powder to 0.7, 0.7, 0.5g (evening less). 14th: Need to remember A1 early. 14th: Ordered luteolin and Olive Leaf Extract now. 7th: Fisetin has run out, recheck what it‘s for. Started psyllium again at night 13th in almond milk, successfully. Perhaps pectin at night too? 4th: +Cu again for 8 weeks from Nov 4th, cos - in August, forgotten October, needed to counteract high dose vit.C. Since quercetin and feverfew Nov 4th energy better (now able to use the energy carefully by controlling the jab-nausea). New idea: Creatine. Praps trying ATP again, encapsulated, since my phosphate is deficient. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, mum, NAC 1*.5g, NADH, Rib, Se, Sr, Zn.
REGULAR as of Nov 15th (41 supps, some changes tho since 4th): ALA .2g, alpha-GPC 1x150mg, apigenin 1x50mg, B2 3x400mg, B3/Nia 2x0.8+0.6g, B12 1x5mg/4m, C up to 3x2x.5g, Cr 8x0.6g, Cu 2mg, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 0x196mg. Ga: back to 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: 0.6g, Glutathione 4x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo 50g, monk’s fruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract 0-(1)x.75, P5P 0x27mg, Levagen±PEA 1x0.4g, Ps (Pe?), Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin), The 2x.2g (+.15g polyphenols).
What-when-details: Updated Nov 14th
EARLIER!
/19:50 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
/19:45 “16:15” preparing pills
/19:40 “18:15” A1 PF#1 2 mg mal, mag threo. 1Lut.
0 5’ empty = praps-worry time.
/20:00 “18:30” myo-inositol (try → every evenings) + teeth
/21:20 “19:30” A2 PF#2, 1x300mg GABA Cr#1+2, 0(-1)P5P, Qc#1. Meal: 1PQQ, 5ml Ω3 & 1xHon. CoQ10 (oil). 500mg B2#1 (draxe) also for sore throat (lifescience)) monk’s fruit. Cu with amino acids (to counteract high dose vit. C)
/20:15 Meal ’ +xylit0 0ack exercises0 Soak seeds/
/21:20 “20:30” pre-A3 agigenin 1h before bedtime + teeth
0 “20:30” chamomile
/00:00 “21:00” A3 PF#3 300mg GABA & .6glu & Qc#2 1xHon + 0 Rupafin.
“23:00” A4 300mg GABA + teeth
2Psyllium.
0 added 250mg GABA.
/9:40 B1-4 5’ overast “07:00” ALA, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 0(-2)xNADH.+Rut. Back exercises. Soak seeds.
9:56 temp 36,65°C 10:07 axill 36,5°C.
Teeth. Meal 0’ in sun 10:05-10:20
/10:05-10:20 “10:30” 5’ in sun C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, pine bark#1. 2x.5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 500mg B2#2. 2x eleuthero. 1x hup. 0(-1)OlivLeaf#1
0 “after muesli” C5 glutathion
/10:30 xylit
/12:10 nux
/13:25 teeth
/13:00 “11:00” D0 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
/15:00-40 “14:00” 0 Meal 10’ in sun
/15:40 “14:15” D2/3 ’ in sun 2x.5gC#2 , 3!Cr#3, .6GABA#5, gink#3 0(-1)OlivLeaf#2, pine#2.
0 “after lunch” D3+ glutathion +xylit, 500mg B2#3 cos of severe deficiency.
temp
/16:40 “16:15” teeth
20:00… “16:15” preparing pills
0 “16:15” nux
0 xylit
/17:45 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
/20:00 A1+myo-inositol “18:00”
/20:15 Meal
/20:50 A2
/21:20 apigenin
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c. 2022-04-10, last: 2022-10-25?)

The day's 16 supp-compartments (10', plus 5' making capsules), Nov 4th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3f-f: C3,D3. B3f: A2,C3,D3. C:2C3+2D3 8Cr: 2A1+3C1+3D2, Ell: D1(ex-C4)+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D1 (ex-C4),D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A1: 2x mag mal, Luteolin. mag threo. A2: 1xCu (separate from P5!)+0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). B1:Fis.B2: ALA+2NADH B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia. C2:0Zn 2Gly C3:PEA+Ru+vitB2, (A2:Ω/Pq:meal, A3: apigenin) DAO before risky meals? monk’s fruit usually evenings. D3 1x/wk. myo-inositol 1x/2d.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)

Development

‘Research’ today: Lipid webinar 15h Nov. And sorting supp information.
Lessons in self-care #480 Coped with quite a bit of stress today, but need to keep it down tomorrow.
Reasons to be cheerful #507 Flowers, birds, and all ended well too…
Reasons to be cheerful #508 Histamine-y sinuses solved by lowering histamine in food.