2022-11-21, Tuesday - Energy 20% / Sleep 85% / Feeling 80%-ish (nausea same, = 20%)
Successes:
Back exercises late, but more.
Energy up again(?)
My To Do Hub doesn’t nec. need the order to be repeated as the day goes on, it gives me an overview all the same on days where it’s fairly clear what I need to be prioritizing.
Learnt: 
Xylitol isn’t fully proven to benefit teeth, but a tendency is there.
New Habits: 
5’ Worry time (
), 5’ plan time (), 1-2h me time.()
Lower back: More exercises , hanging , massager , HWB ()
Roll out mat 2x/d for back exercises. ()
Teeth every bathroom time, 1h after meals, 30’ from nux ()()
Find a better way to take pure Psyllium at night. - but still stomach ache.
Calves: massager(, heat(), stretches(, squat , arnica ()
Reduce chocolate cos of histamine () - sinuses praps a bit more severe at night…
Drink even more when taking pills. Breaks? (not yogurt!)
Spit xylitol out after rinsing my teeth with it, as it’s a sugar (lipids).
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 10 of 12: Fatigue 3 (80%), insomnia 3 (15%), fog 2 (?10%), headache 1 (30%), GI 1 (20%), depression 0
Last focal seizures: Nov 22nd: 13:50-14:20 aura, so along with slightly increased pee pain trying a small GABA increase. Nov 21st: 2x.
Last esophagus blocks: Nov 22nd (from yogurt+supps). Nov 20th.
Triggers & resulting Symptoms
JAB#3 (2022-11-07)/MCAS/histamine-Symptoms/Triggers/Treatments (click for details): "20%" altogether. Sinuses, paranasal and frontal with headache 30%, nausea 20%, white lips 0%, "ill ache" off and on 0%, sliding around indoors (fatigue & nausea) 0%, cold intolerance (cold shower?) 40%. Nov 17th 15:00 breaking down 'ill'. 18th directly before getting up energy suddenly down from 20 to 10%. 10th/11th day after the jab.
Jab#3 2022-11-07 at 12:00 (H1 2nd gen. antihistamine 4h before it and every evening)
Increasing: No.
nausea: 20% → 0 off and on. Not more before midday meal though.
sinuses: 20% → (headache30%) (nostrils20)
“skating”: 0%-10%
white lips: 20%. Chapped, hurting since yesterday.
eyes: 0%
specific ill Ache: 10%
cold intolerance: 40%
sore throat: 15%
SLEEP (click for details): 7h12, up 3x (18'), deep 6h30, woke up cos of stress dream, playing in a play for which I needed to nibble pumpkin seeds which my ex-singing teacher should have given me, but hadn't, so I to get them myself. (Spawned by stress from the How Are You project meeting last Saturday, the phosphate deficiency making pumpkin seeds essential, and my singing teacher not having given me my last 2 singing lessons I'd paid for.) Dissolving the psyllium in more almond milk worked better, but a strong pee urge got me up again 1h20 later and a bit of additional different stomach ache. ✅ ➔ Feeling 60% well, Ache 3 of 7 ✅, getting up: 70%/3 ✅. Nostrils ?20% stuffy ?20% of the night.
A3 teeth alternate, then cold shower p0 A4 Sleep 1:10- Why not 21:00? Me-time.
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
3:10 5’ 80%/1/15% p0 st1 sip fw1’ deep air cream gel HWB#
(nostrils10% nauseous5% Sinuses5% headache5% sore throat5% stools firm%)
6:40 8’ 60%/3/15% p0 st1 sip fw1’ deep air plugs PSYLLIUM cream HWB#
(nostrils20% nauseous20% Sinuses20% headache30% sore throat15% stools firm%)
8:15 5’ 60%/3/15% p0 st1 sip fw1’ deep air plugs
(dito: nostrils20% nauseous20% Sinuses20% headache30% sore throat15% stools firm%)
-8:40 8:50 B1-4 5‘ in sun, stools firm?
Sum: 8h40-1h10-(5+8+5=)18 = 7h30-18 = 7h12, up 3x (18’), deep 6h30, woke up cos of stress dream, playing in a play for which I needed to nibble pumpkin seeds which my ex-singing teacher should have given me, but hadn’t, so I to get them myself. Then taking psyllium with more almond milk worked better, but a strong pee urge got me up again 1h20 later.
ACTIVITIES (aim: 40% energy) ➔ ACHE: light garden work ➔ TT 4:1 ➔ 80%/2 ➔ 0%/ 
ACTIONS ➔ PAINS: except GI: stomach ache from the psyllium, so I think I may stop it or at least research what its mechanism is, if it can really work /, esophagus: better now I’m drinking more with the pills, and during meals (which I’d learnt from yoga etc. isn’t healthy, but still…) , bad trying jogurt instead of drink today , jaw 1x5’’ , pee pain: 0xp1-2 lower back unrest
Touch: Covid: Weather: Indoors Outdoors . Too warm for a thicker winter hoodie over my normal one today, so back to 2 normal ones.
Treatments
Docs:
Online course ACT (acceptance and commitment therapy) starting Oct 24th, about 2h per week.
Chinese Acupuncturist - Session #32 on 4th., after 14 days “Energy still pretty stable at 20%, despite jab-nausea…”
Session #33 indefinite. A bit more energy today, so lets see…
Alternative health practitioner: appt. on Dec 6th.
3rd jab on Nov 7th… 
SELF-PHYSIO (click for details): 94' (RR: 0)
white_check_mark: airing 5x2’, cold shower 0x(10’), alternating shower 1x(10’), cream/oil fc/ey/hd/ft 5x1’, teeth 2x2’, HWB 1x3’, breath exercises 6x1’, Y. Nidra 0’, massage gun 3x3’, plantar/calf stretch 12x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 2x1’, twist-stretch 1x1’, yoga/stretching 1x1’, sun1 3x5’, hang 2x1’. hunchback-pillow 0’, wart x1. neck 1+ x1’, RR:
Combine: next?
neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps Nov 19th (46 supps): Supp costs:~426€/m (19th): 22nd: Try less psyllium at night in almond milk: then pectin? 20th Checked & corrected the pill amounts per tub now that I'm simplifying the system for preparing them.... still differences. 19th: Found some more I'd forgotten to take x30 for the monthly cost. Nov 19th: Changing from annoying small compartments to tubs for each time of the day will make me more flexible and stop things from jumping out easily. Nov 19th: Vit.C not with copper I found a note, so Cu in the evenings and vit. C the meals before till I get tat sorted. Nov 17th/18th: Resuming olive leaf extract and normal reduced glutathione, starting TMG (in same amounts as B3). Adding aloe vera to this list. 14th: Started Levagen+PEA. Nov 14th: Increased B2 from 1x to 3x400, cos of the deficiency (max 1.5g)! 14th: Increased B3/Niacin/nicotinic acid powder to 0.8, 0.8, 0.6g (evening less). 14th: Need to remember A1 early. 7th: Check fisetin. 4th: +Cu for high dose vit. C again for 8 weeks from Nov 4th. 4th: Energy better since restarting quercetin & feverfew. New idea: Creatine? ATP again, encapsulated, for phosphate?? PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, mum, NAC 1*.5g, NADH, Rib, Se, Sr, Zn.
REGULAR as of Nov 18th (46 supps: R-ALA .2g, aloe vera juice 50+ml/d, alpha-GPC 1x150mg, apigenin 1x50mg, vit. B2 3x400mg, vit. B3/Nia 2x0.8+0.6g, vit. B5/Panto: 1-3x.5g vit. B12 1x5mg/4m, vit. C up to 3x2x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 2mg, vit. D3 20.000 IE = 500mcg, + vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, Ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2, Feverfew (fev) .4g (+.2g MSM), Fisetin (fis): 0x196mg. GABA (Ga): back to 3x0.3g+2x.6g=2.1g, ginkgo (Gi) 3x168mg, Glutamin (gltm, glu): 0.6g, Glutathione (gltt) 4x250mg, Honokiol (Hon) (2%)x2x.4g=16mg, huperzia (hup) 1x0.2mg, Luteolin (lut) .2g, Ω3 1x5mg, Magnesium Glycinate (Mg gly) 2x50mg, Malate (Mg Mal) 2x45mg, Threonate (Mg threo) 50g, monk’s fruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, P5P (= vit. B6) 0x27mg, Levagen±PEA 1x0.4g, Psyllium (Ps), passiflora (Pf) 3x.35g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, Rutin (ru): 1x522. SAM-e (Sa) .1g, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), L-theanine (The) 2x.2g (+.15g polyphenols), TMG: as much as B3.
What-when-details: Updated Nov 20th.
EARLIER!
0 +0.25 GABA?
/18:50 D4
/19:25 myo-inositol
/19:30… 0 “16:15” preparing pills
/19:30 “18:15” A1 PF#1 2 mg mal, mag threo. 1Lut.
5’ empty = praps-worry time.
“18:30” myo-inositol (try → every evenings) + teeth
/20:00 “19:30” A2=12+1 B2#1 “2"xvB3 B5#1 2Cr#1, PF#2, Qc#1. Cu .3gGABA CoQ10 (oil) TMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monk’s fruit. Cu with amino acids (to counteract high dose vit. C, but not together with vit. C?: 0(?)
20:00 Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
/21:05 “20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
/21:05 “21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
/21:00 Back exercises.
/0:50 “23:00” A4 300mg GABA + teeth
/6:20 1 Psyllium.
/8:50 B=11/5 ’ in sun “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM + Sily +2The /9:50 Teeth.
/10:00-20 Meal ‘5 in sun. aloe.
/10:20 5’ in sun C=23/ with meal: vit.B2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 TMG#2 alpha-GPC 2xEleu Hup 2gly PEA Rutin = 23. (vit.D3 1/wk) 20th: ONLY 22 IN THERE, WHAT’S MISSING? A TINY ONE?
/10:25 “after muesli” C5 2xglutathion
/12:05 nux
0 xylitol
/12:45 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
/12:50 teeth
/13:00 Soak seeds.
/15:05 “14:00” 0 Meal ’ in sun +aloe
/16:00 14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
/16:00 “after lunch” D3+ 2xglutathion
0 xylitol
/17:15 “16:15” teeth
-19:20 “16:15” preparing pills BUT: in C there are only 20 pills instead of 23, -1 eleuthero = 22, -1 vB2 so 1 missing?
/19:15 A1 “18:00”
/19:05 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4, Rs#2, Ro#2
/19:05 myo-inositol
/19:20 Eat + 19:50 aloe + 21:30 PQQ+Ω3
/20.45 A2
/21:00 Back exercises
/21:30 apigenin
/22:55 22:00 “16:15” nux
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c. 2022-04-10, last: 2022-10-25?)
The day's 16 supp-compartments (10', plus 5' making capsules), Nov 20th
Pf: 1A1+1A2+1A3, vB2: A,C,D. vB3: 0,7gA2,0,8gC3,0,8gD3. vB5: A,C,D. vC:0A2+3C3+3D3 8Cr: 2A2+3C1+3D2, Ell: D0+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D0,D3 Glutamin: A3 (0c1) Glutathione: 2x"C5", 2x"D3+" (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A1.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A1: 2xMgMal, Luteolin. MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol). (A2:Ω/Pq:meal, A3: apigenin) B2: ALA. B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: alpha GPC. 2xeleuthero. huperzia. C2: 2Gly C3:PEA+Ru, DAO before risky meals? monk’s fruit usually evenings, aloe vera. D3 1x/wk.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)
KEEP TALLIES UNTIL IT SEEMS CORRECT, which it doesn’t yet…:
A1 Pf#1 Qc1#1, Lut, 2MgMal, MgThreo… + myo-inositol + (DAO?)
A2 vB2#1 "2"xvB3, vB5#1, 2xCr#1, Pf#2, Ga#1, Hon#1, Cu, Q10, TMG#1 = 12
+Ω3/PQQ/aloe +monk’s +apigenin
A3 Pf#3, Ga, Gltm, Hon, Qc#3
A4 Ga
B = Qc#3, Ro#1, Rs#2, ALA, 2xSa, 2Th, EGCG, Fev/MSM, Sily + (DAO?)
C = vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 apha-GPC 2xEleu 2xMgGly hup PEA Ru = 23
C5 2Gltt
D0 Ell, Gi + (DAO?)
D vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 = 15
D3+ 2Gltt
E = Ell, Qc#4, Ro#2, Rs#2.
B12 4-monthly, D3 saturdays.
Development
Decided to put the focal seizures and esophagus under the fibro criteria symptoms, as they are separate more major issues.
‘Research’ today:
By checking the spelling of xylitol (not xylit or xylite like in Germany) I saw on wikipedia that the evidence for xylitol being good for teeth is only slight, according to a Cochrane review from 2015. Checking on pubmed though, more recent reviews tend to support using it, e.g. in chewing gum:
whilst one seconds Cochrane: Effectiveness of the use of xylitol chewing gum in prevention of dental caries: A systematic review - PubMed
Stevia chewing gum might be just as good as xylitol: Comparative evaluation of Stevia and Xylitol chewing gum on salivary Streptococcus mutans count - A pilot study - PubMed
Xylitol varnish improved non-cavitated lesions: Prevention of non-cavitated lesions with fluoride and xylitol varnishes during orthodontic treatment: a randomized clinical trial - PubMed
ToDo: RSM Webinar on fibro on Oct 10th, on fatigue on Oct 25th, on lipids Nov 15th - still need to get round to that and the MCAS summit before that.
Lessons in self-care #487 Need to watch out cos of the seizures: more GABA.
Lessons in self-care #488 Sinuses at night may be histaminey, also: more GABA.
Reasons to be cheerful #516 Energy still pretty good: TT 4:1! Birds & flowers fine!
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries