2023-01-15, Sunday - Energy 12…% - runny nose, 2nd seizure from pee urge, white lips… - not the best of starts of a day, so my wife sez be careful playing 
- we’ll see, sometimes it helps, via movement & fresh air… well 4:0 despite a small seizure in between and pain going up from 3 to 5, then after couldn’t resist some simple gardening, removing fungus-sy leaves from ivy bushes until I got scolded by my wife… 
Burning sinuses after runny nose now clearly indicates too high histamine, seizures too low serotonin, so I need to increase GABA, burning sinuses again in the evening. Could all be from the cellar mould yesterday evening (but with mask), but also from increased feverfew this morning, the nausea making me reduce GABA Friday evening… * sigh * - quite a few possibilites. Main thing is I think increasing GABA and reducing feverfew should do the trick by tomorrow. And that may also solve my high pee urge, if I’m lucky… Not sure how to judge the energy amount, since TT 4:0 despite all this…! But I think my white lips are more telling than the TT.
Sleep 90% / Feeling 70%-ish / nausea 5%, fog 10%
New Habits: Click for details of those I'm still working on. Last change 14th: deleted B-supps & earlier antihistamine & leg stretches and turned daylight lamp & back exercises & teeth into reminders, leaving (reduced) 4: bed, ACT, stretches & cold food out.
Bed 23:30-8:30/9:00. (
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Note thoughts and emotions (ACT) /()
More leg stretches. ()
Cold foods out of fridge 2h earlier than eating. ()
Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: 0 (click for details)
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0
Triggers & resulting Symptoms
JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to 15-20%. 14th: Like yesterday strong flushing from nicotinic acid: why? The GI nausea was unlike the jab nausea. 15th: Runny nose in the morning for "no reason", white lips 80%, 13:50 sinus burning for quite some time, 19:00 again or still sinus burning.
JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd. Up: 3rd, Down: 4th. Up: 5th.
Unsure: 6th. Sinuses after 80g of baked beans, but not a 2nd time after 70g whilst having taken my antihistamine again, after the 3rd time tongue burning (left side) → for 12h → 24h,… plus eating half? a walnut at 2 by accident, my tongue tip started burning a few minutes later too. 7th: Up (TT 5:1) until flustered by having to get something to the post, making art exhibition very difficult, better after rest.
8th: First down (TT 3:0), then OK-ish - de-cluttering etc. slowly for 4-6h. 9th: Unsure, seemed OK. 10th: 1 DAO allowed 120g of baked beans and half a walnut without tongue burning. 11th: Ache all over, lips white. 1 DAO allowed 120g of red beans with only a bit of tongue burning. 2x 12th: Needing one hot water bottle again at night. Lips even paler after the tooth cleaning. No tongue burning after DAO/red beans. 13th: Better, don’t think the GI problems have to do with the MCAS. A tepid or warm shower hurts more after than a cold shower during it. 14th: Like yesterday strong flushing from nicotinic acid: why? Yesterday’s nausea was definitely GI, unlikely the jab nausea. 15th: Runny nose in the morning for “no reason”, white lips 80% at 10:45, 13:50 sinus burning for quite some time, 19:00 again or still sinus burning.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.
SLEEP (click for details): 7h48, up 3x (70'), 7h deep, hope I'll be tired earlier tonight. ✅ ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/1-2 ✅. Nostrils 10% stuffy 20% of the night, sore throat 80% at 5-6, have to watch out for HWB, cos it'll be getting colder & drier now.
A3 A4 teeth cold shower p0 Sleep 0:52- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
2:10 50’ 80%/1/15% p0 st1 sip fw1’ deep air A5 cream fw15’ → 30’ 6
(nostril/s0% nauseous0% stomach5% sinuses5% headache0% sore throat10% )
5:45 10’ 80%/1/15% p0 st1 sip fw1’ deep air PSYLLIUM cream → 2HWB#1
(nostril/s0% nauseous0% stomach5% sinuses5% headache0% sore throat80% )
8:30 10’ 80%/1/15% p0 st1 sip fw1’ deep air cream B → plugs
(nostril/s10% nauseous0% stomach5% sinuses10% headache0% sore throat10%) - so it was getting cold that caused the sore throat, and HWB helped
-9:58 8:35 B1-4 0‘ in sun, stools firm?
80%/1/15% p0 st1 sip fw1’ deep air cream B → plugs
(nostril/s10% nauseous0% stomach5% sinuses10% headache0% sore throat10%)
Sum: 9h58-1h-(50+10+10=)70 = 8h58-70 = 7h48, up 3x (70’), 7h deep, hope I’ll be tired earlier tonight.
ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/1-2 ➔ TT 4:0 (picking up 0 balls) ➔ 80%/5 , gardening ➔ 80%/4 , rest ➔ 80%/2 .
Picking off the I think bush ivy leaves with I think phoma fungus.
My wife says I should ask the 2 gardeners we know about things, but actually I like discovering all this stuff generally via the web and keeping our friends for questions I can’t find out myself. Haven’t ever posted photos of what I’m doing, but why should we keep it to loved animals and not also loved plants as “reasons to be cheerful” (= happy)?
This is ivy with phoma on it,
this is how it should look, so I’m needing to remove loads of leaves, it hasn’t been done for years.
The following photo is one of the questions that a web search isn’t helping me with so far:
I’m wondering if it’s an ilex(?), but they don’t seem to have any diseases, so can I admire this looking as a variation or do I need to remove the rusty red and/or the pink red leaves?
ACTIONS ➔ PAINS : except GI , esophagus OK-ish at the moment , pee pain: 0xp1-2. Losing control better now I don’t delay going as much. Tested today: I have to go before the 2nd wave to prevent too much pain building up (and I spose the 3rd to prevent losing it.?) , lower back unrest , thumb tip better now I minimize washing hands (no soap unless absolutely necessary) & wear thin gloves more often while doing stuff ().
Click for details on Touch, Covid, Weather, last seizure Jan 14th & 15th, last esophagus block Jan 8th, last jaw pain Jan 10th - well I spose since then 1-2x/d.
Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on. Gotta watch out for the cold coming up.
Last focal seizures: Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d.
Treatments
Two drops of Hexacyl yesterday evening was no problem, today Sunday I’ll try 2 drops of masterwort - or together? Now I’m starting to think it wasn’t that, something I ate (coconut jogurt presumably or the aloe vera would have been typical) was off (so I chucked both those away, altho I cdn’t see or smell anything wrong with them at all).
Psyllium at night is definitely better than medicinal clay, even tho I’m not sure if it has any effect not taking it with meals. But praps better than none. Praps taking it first at night would be better than taking it last, but GABA has priority.
Been delaying the last supp recommendations, other priorities.
For calf stretching I’m wondering whether going much lower might be better, rather than backfiring, just long very light stretches - angle of 10° rather than 30°.
Click for details on bloods (Dec 9th), practitioner ideas (last on Dec 20th), acupuncture (last on Dec 22nd). Last started masterwort (warily) and Hexacyl on Jan 6th - low & slow. 13th: Unsure if the stomach problems are from those two, so stop-start to see.
Bloods at cardio Dec 9th: Homocysteine a bit high, continue B3 and B2, phosphate not that bad. Leukocytes low! CK, muscular, too high, praps fibro?
Alternative health practitioner (“Heilpraktiker”) on Dec 6th+20th: Jan 6th: Started masterwort & Hexacyl, lower than recommended (2x1 drop each), adding 1/d. 9th: Further research after reply to take manganese and vit. E. 13th: Unsure if the stomach problems are from those 2, so stop-start to see.
Chinese Acupuncturist - Session #32 on Nov 4th., after 14 days “Energy still pretty stable at 20%, despite jab-nausea…”, now it’s down from that so often that I tried #33 22nd Dec. Wasn’t worth it: No improvement, sleep too short.
SELF-PHYSIO (click for details): 84'
white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft 8x1’, teeth 2x2’, HWB 2x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch 2x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 2x1’, yoga/stretching 2x1’, hang 2x1’. hunchback-pillow 0’.
Combine: next?
wart x1. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Jan 13th: Costs would be doubled if I didn't watch for best cheapest products and self-encapsulating: That's a new job of mine, I spose. Jan 11th: Still to get her MSM, manganese, E as tocotrienol and my silymarin again. And remember to take the masterwort and Hexacyl regularly. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.
ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).
REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, psyllium (Ps), CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.
What-when-details: Updated Jan 8th.
Fairly on schedule.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“0:00” psyllium / medicinal clay if a sleep break is 2h before & after other supps.
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:
The day's supp-compartments (8', plus 10' making capsules), Jan 8th
Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2. A6 = 1-2 psyllium.
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.
Development
‘Research’ today: No.
Lessons in self-care #545 Worked out that I carefully pushed thru the TT plus gardening.
Reasons to be cheerful #583 TT was special fun in the pretty strong winds, without me having to strain myself.
Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting
- 8 weeks after jab#3: stabilized
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My food apparently minus broccoli…
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries
- Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read