JayCS’s Fibro Blog

2021-08-18, Wednesday

  • My GI-herbs contain GABA-decreasing thujone in the wormwood - find another alternative for heartburn? ➔ :new: category “herbs”.
  • Complying with tiredness seemed better, as suspected.
  • But a fuzzy sleepiness as so often with meds & supps is NOT normal, felt more normal the days before, so was that the theanine (for alertness) or the glutamine (reduced last)? (or later & less sleep…)
  • I know I shd be changing supps slower, but I’m just too impatient & also have the feeling that’s OK for me.
  • Developing the system & treatment tracking, putting all alternatives in the “details” for a quicker overview.
  • Developing the “Treatment - Up next” category by separating supps, herbs, meds, exercise & meridian treatments.

Triggers & resulting Symptoms

SLEEP: 9h18, plus up 6x (1h24), +30-45' =0 doze ↔️ Feeling 90% well, Ache 2 of 7 ✅ body burning a bit sleepily, so more wakers, theanine later??

1+2x2 Mg & 2x Passiflora & Ω3 at meal 20:20
600mg GABA & 200 theanine at 21:30.
600 GABA & 400 Glutamine at ?1:00
21:40- 30’ doze 22:08
22:08 8’ FCS#1 90%/1 22:16 st3
22:16 90%/1 st1 p1
0:29 5’ 90%/1 st1 p0 400mg glutamine+500mg GABA
1:13 2’ drink Gastritol (incl. wormwood…) 90%1
2:37 37’ p0 drink Gastricumeel hot flush → FCS#2, p0 8’ -3:14 90%1
3:14-3:59 45’ doze (10’ AuTr)
3:59- fw 17’. Is it the thujone in the wormwood in Gastritol preventing the GABA from working and leading to seizures? Gastritol helps for light GI issues: Thieme E-Journals - Zeitschrift für Phytotherapie / Abstract
4:16 20’ 6 4:36 fw10’ 80%/2
7:45 3’ p0 deep dozing, count that as sleep.

  • 8:58 80%/2
    Sum: 1h44+8h58-(5+2+37+17+20+3=)84’= 10h42-1h24=9h18, plus up 6x (1h24), +30-45’ =0 doze, fw 17+10=27
ACTIVITIES➔ ACHE: TT ➔ 80%/3 ✅ Rest & searching for holiday flats & a walk, despite pains: ➔ 90%/1

Ache = also Exhaustion/Tired
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔

ACTIONS➔ PAINS: ✅ GI: heartburn (& bowel discomfort) may be due to lots of wholemeal rice, 3 days in a row, however mainly at midday, 2''x2'' wholemeal cake, 2''x2'' small piece of pizza... Or the esophagus blocks around Monday. ❌ Lying: neck ❌. cold/hot: more hot, despite cold showers and colder weather. ✅ Walk ➔ Elbows, right knee ❌, but quickly OK afterwards ✅; feet ✅, Sit: ✅, Bladder ✅, GI better.

Lie ➔ Neck, thighs, itch
Stand ➔ Legs, back
Sit ➔ Backside, lower back
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, backside, elbows, hands, neck
Drink ➔ Bladder frequency, bladder pain
Pose ➔ stiffness: Time 0-60’’, pain amount if faster.
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short.
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe the symptom, just plain yucky.

Treatments

SELF-PHYSIO: 65' ✅, fibro-work ?3h

:white_check_mark: Timing, AuTr 20’, hunchback-pillow 10’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’, twist-stretch 2’, neck 1+ 2’, .
:x: workout 7’, gums 2x30’’, thumbnails 10x30’’, neck 2 1’, V ‘, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’

Fibro-work: Night: 27’ + ?2h30

"THERAPIES:" Acupressure: Neck hurting & stiff again, after it was more flexible for a few hours after the very long treatment yesterday. ❌. Therapy: We agreed I need to recognize & describe more clearly what I need, especially to my wife now regarding holidays next week: As I can't tolerate wind, it's no to islands & ferries, or else I'll have to stay indoors. But also to my acupressurist etc. I've been very clear to my friends, which was great. ✅

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

HERBS: ↘down with Gastritol as soon as I've installed/ordered alternatives

Heartburn
Gastritol: might be interfering with GABA, so get alternatives, see “Next”.
Gastricumeel (herbal, but in homeopathic doses)
Psyllium for diarrhea, gut, but praps also heartburn.
Perenterol for diarrhea etc.
Omega 3 for heartburn, but not too much.

SUPPS: ↘400 glutamine ✅, GI heartburn (watching Gastritol closely now) ✅ (?↗ ↘)

2x400mg Mg malate, 1x500mg Mg glycinate, 2x290mg passiflora,
600mg GABA & 400mg theanine
600mg GABA & :arrow_lower_right:400mg L-glutamine

UP NEXT: Keep theanine at 200 (600+200, 600+400) surf on evening tiredness = go to bed then = earlier; and then praps back up, keep glutamine down to 400 or even 300, change GABA? increase glycinate? increase passiflora? Taurine's come (but: selective areas!? ⟹hard to judge), So praps +1 passiflora or +1 glycinate FIRST, after adjusting the theanine just to see what that does. 3rd tryptophan trial? 2nd levodopa trial? SAMe didn't come as ordered, Ribose, NAC or serrapeptase harder to get at the moment

SUPPS
https://www.everywomanover29.com/blog/5-htp-tryptophan/ Increase each week…
DrJockers Aug 15th: 91 comments, 92 wd be mine…
theanine: slightly decreasing more (300 on Aug 4th seemed better), alertness, energy, relaxation without drowsiness, 100-600mg, no sfx known!, however it increases dopamine, what it does to serotonin isn’t clear.
Taurin highly selective effect: Effect of intraventricular administration of glutaurine on norepinephrine, dopamine and serotonin turnover in different brain regions in rats - PubMed
Taurine Regulation of Neuroendocrine Function - PubMed influences many things!
Taurine, energy drinks, and neuroendocrine effects - PubMed energy drinks - thoughts.
The Effects of an Oral Taurine Dose and Supplementation Period on Endurance Exercise Performance in Humans: A Meta-Analysis - PubMed single dose 1-6g helps endurance.
Balancing? by increasing dopamine (glutamine, SAMe) in the morning and low protein meal at night? How to Balance Dopamine and Serotonin Levels | Healthfully
taurine: increased sleep in flies.
Taurine increased serotonin & glutamine in rats
Taurine is Involved in Energy Metabolism in Muscles, Adipose Tissue, and the Liver - PubMed taurine involved in energy metabolism.
(I am on 5-HTP for anxiety and I am wondering about trying tryptophan instead - everywomanover29)
SAMe: 400-800mg in the mornings, as stimulating, not much research SAM-e for Fibromyalgia and Chronic Fatigue Syndrome
serrapeptase: ordering when the price is down & adding
tryptophan: repeating in VERY low dose (GI; dead tired; encapsulating like theanine),
D-Ribose (muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence):
NAC: N-acetylcysteine (NAC) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
Glycine: Glycine is supposed to help the GABA cross the blood brain barrier. Dennis. But do I need that? Got it in the magnesium glycinate anyway, see above: Glycine works like GABA, as inhibitory neurotransmitter, helps normalize sleep patterns like glutamine & theanine, to relax and calm. This is in the added new magnesium form, that fits.
Keeping selene
zinc again as in the middle?
Vitamin B12 again too?
Doing now: theanine - BTW theanine is partly for DOPAMINE (“opposite” of serotonin, but not sure what it does to serotonin), like glutamine, levodopa, as well as taurine, tyrosine, SAMe and Mucuna pruriens!
Acetyl L-Carnitine (ALC)?
Lots of new great GABA info here: Here it blames the gut microbiome for too little GABA. Might get into only certain parts of the brain.
Anxiety, Stress, Depression - A Supplement Approach — Sanford H Levy MD, FACP, ABIHM
HERBS: Bentonite. Medicinal clay. Mumijo: Quality: 200 mg Fulvosäuren und ca. 40 bis 50 mg Huminsäuren pro 400 mg Mumijo
Schüssler 2, 4, & 7 (but they take 3-6 months sez my acupressurist.
EXERCISE A bit more Yoga Nidra on youtube
MERIDIAN real Chinese-trained acupuncture? Pardon Our Interruption
Fibromyalgia doc 200km from here?
MEDS:
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - praps just ezetimibe first?
MEMO from here: I’ve got 60mg of Mg in the roseroot already, that’s about 240mg together with the malate & glycinate,.
DONE, several times, no repeat: Melatonin, 10% CBD oil, 5-HTP, once 2 days, no repeat: ashwagandha.

Development

:new: Dividing up things like talking, walking & cycling as activity Ache AND action Pains.
:new: Also to list all regular things I want to watch under details which I often have. Simplifies.
:new: Category “Herbs”. (Due to wormwood, see below.)
So also :new: subcategories supps, herbs, meds etc. under “Up next”. (Wormwood.)
I didn’t see the necessity for this much detail.
Also of interest for generally developing a more detailed symptom tracking protocol for others - like you? :wink:

Lessons in self-care #60 Learn to say what I feel… should be so easy…
Reasons to be cheerful #60 Being clear is tough, but fun.

GABA vs. Wormwood/Thuja
The GABA-decreasing thujone in the wormwood is named after thuja (‘Lebensbaum’). This was something my retired GP had prescribed for me in a single high homeopathic potency, years ago. Wdnt it be funny :upside_down_face: if homeopathy really worked and this thuja had caused my GABA to decrease… However according to homeopathic lore it actually shdve done the opposite, i.e. by ‘poisoning’ stimulate my body to increase GABA, so was right… How strange these connections are. For some praps irritating, for me an interesting challenge.

Highlights week 8th to 15th.
blog summary,
references.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

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