2021-08-22, Sunday
Triggers & resulting Symptoms
SLEEP: 10h35-62'=9h33, up 6x (62') ↔️ Feeling 90% well, Ache 1 of 7 ✅. This long sleep again may just be good recovery from the 4h40 night. Not bad if that was the only sleep problem resulting.
20:20: 1+2x2 Mg & 2x Passiflora & Ω3 at meal
22:02: 600mg GABA
?: 500mg GABA & 400mg L-glutamine & "200"mg theanine
taurine
FCS#1 cos of feverishness, p0 22:20-
0:17 3’ 90%/1 p0 drink
1:23 3’ 90%/1 p0 drink !500 GABA + !400 glutamine + !200 theanine
1:55 3’ 90%/1 p0 drink. Ideas. fw3’
2:04 7’ 90%/1 tenser/ideas/hot (racing thoughts) → FCS#2 +100 GABA. Took a bit, but then OK.
4:18 10’ 90%/1 p0 drink. fw4’ itchy scalp, need to wash hair differently? Belly slightly bloated, bit painful in different areas to the normal palpating ones, but → palpate there: Probably the 1’‘x1’’ cake. Might’ve been better if I’d chewed it better. Bit cold → more clothes on. Why is my nose not the slightest bit stuffy tonight??
5:48 36’ 6 Dry mouth: gel. p0. Is this the vibrating at acupressure? (deep dozing? pseudo-not-sleep? Dreamt of asking sleep lab psychiatrist to do the jabs the pain docs wdnt, followed by him considering I have SFN, which of course I haven’t.)
-9:05 Slight headache and stomach pain: Eat, drink, 50mg morning taurine.
90%/1 80%/2? p0 th drink Gastritol fw1’ teeth
Night: Teeth! RR!
-end. Breakfast while blogging, before exercising! taurine 50mg!
Sum: 1h30+9h05-(3+3+3+7+10+36=)62’= 10h35-62’=9h33, up 6x (62’).
ACTIVITIES➔ACHE: after FCS#3 TT 4:4 easy, incl. FAT, but the taurine energy made ➔ ?90%/1, but still better to rest/fw. "2h!" walk with many breaks was OK. ?90%/1
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
ACTIONS➔ PAINS: Lying on hunchback but with backside twisted up stops LBU coming up! ✅ On the "2h"! walk with breaks I developed several hacks like twist-stretches for my elbows, hands & feet, in analogy to the twist stretch for my right knee. Now that seems the only problem left, plus the Ache on bad day! ✅
➔
Lie ➔ LBU = lower back unrest, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Treatments
SELF-PHYSIO: 99' ✅, (twist-stretching elbows, right leg & sometimes feet while walking) fibro-work ?6h
Timing, hunchback-pillow 10’, cold shower 3x(10’), palpate 1’, belly 3’, back 7’, twist-stretch 40’, neck 1+ 5’, loins 3’, .
Up x AuTr 5’, fw 1’, LBU twist-stretch x2-5’, neck x1’, elbows → arnica cream, itch → cream, cold/hot/stuffy → FCS#2.
AuTr ‘, workout 7’, gums 2x30’’, thumbnails 10x30’’, neck 2 1’, V ‘, yoga ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’
Fibro-work: Night: 9’ + 9:05-5-10-11:25/ 13:30 → 3h?
THERAPIES: Bladder pain p0 since yesterday won't be the taurine, it'll be the loin & bladder vibrating at acupressure
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
HERBS: Almonds weren't nec.
Heartburn
Gastritol: might be interfering with GABA, so almonds.
Gastricumeel (herbal, but in homeopathic doses)
Psyllium for diarrhea, gut, but praps also heartburn.
Perenterol for diarrhea etc.
Omega 3 for heartburn, but not too much.
Elbows etc.: Arnica cream
SUPPS: 50mg taurine has made me hot, feverish, dry hands & shaky again ➔ 70%/3, was 50mg still too much? Energy is there, but not enough to warrant those sfx Feels a bit like why I don't drink coffee. And 'false', like overriding not reducing tiredness. Need FCS#3 ✅ after that fully OK, GI belly = gut not from the taurine, I don't think, I think the cake. ✅ The problem at night is often "racing thoughts", altho not worried or so, but passiflora looks more like the right thing than increasing the magnesium, esp. mg which may also give ISBD sfx and glycine which can act excitatory. Whatever it was I was pretty hyper this evening, so I've immediately taken passiflora up again from 2 to 3+1 and glycine down once again from 1 to 0-
2x400mg Mg malate, 1x500mg Mg glycinate, 2x290mg passiflora,
20:20: 1+2x2 Mg & 2x Passiflora & Ω3 at meal
21:30: 600mg GABA
?: 600mg GABA & 400mg L-glutamine & "200"mg theanine
UP NEXT: 1) Keep + try Taurine as "coffee". 2) ↗+1-2 passiflora 3) ↘0 glycinate 4) serrapeptase: careful 5) 2nd levodopa trial? 6) 3rd tryptophan trial? (made me dead tired tho, so speck plus taurine after). Order 7) SAMe? 8) Ribose? 9) NAC? 10) NADH? - A) HERBS B) SUPPS C) MEDS Info:
A HERBS: Almonds for heartburn, Schüssler
For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?)
Schüssler 2, 4, & 7 (3-6 months sez my acupressurist).
B SUPPS: Amino acids, Enzyme, Minerals, Vitamins
Amino acids: 1) Balancing GABA 2) glutamine, 3) theanine, 4) tyrosine, 5) SAMe 6) tryptophan, 7 glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithiumorotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?
1.1 NO Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late
by increasing dopamine with tyrosine & B6 in the mornings, tryptophan & B6 in the evenings… (is this my own addition??: glutamine, SAMe) in the morning and high complex carb & low protein meal at night? How to Balance Dopamine and Serotonin Levels | Healthfully
1.2 Zn Cynthia Perkins: Low carb (<50mg) paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine
Cynthia Perkins:
Many warnings about supps: Keto diet. Glutamate good for learning, bad for seizures. Too much excitement in … RLS, fibromyalgia, too much acetylcholine, Low GABA: tension, anxiety, attention, insomnia, GERD. Important vor sleep, body temperature,… “When GABA is low, glutamate is high and vice versa. … glutamate as the accelerator and GABA as the brakes…” GAD may be the problem. B6 necessary. GABA-glutamate-conversion. Or too much calcium. Mg & some zinc (<40mg) can help, or lithium orotate, Boswellia, wormwood, nettle, chamomile (herbs: careful). Careful: glycine can often be excitatory, vit. D. Taurine can help, but can also increase glutamate via the GABA shunt, vitamin B6 & SAMe can become a problem. No grains incl. whole grains too. Low carb paleo, high animal protein. Organic.
GABA itself can be stimulating tho, via the shunt. NAC may help, but may also increase glutathione, which’d increase glutamate.
Theanine may cause problems, so preferably lithium.
(German link Lithiumorotate no sfx, good for serotonin, so seizures, immune system 125–200 mg https://www.klinik-st-georg.de/lithium-ein-wichtiges-mineral-mit-breiter-klinischer-wirkung/
Product: Lithium Orotate 125 mg - Nahrungserganzungen -Super-Nutrition)
Herbs such as Valerian, kava kava etc. can increase GABA in a way that the body produces less.
Avoid excitotoxins such as MSG, aspartame, glutamic acid, soy sauce, tofu.
Glutamine can stay that instead of increasing GABA.
Cheese, peas, walnuts, mushrooms, broccoli might elevate, at least if you have much too much.
Collagen high. Vit. K2 in dairy protein is good.
Diet: Best avoid fruit. <50g/d carbs. Mg: Try, not citrate or aspartate. CBD oil makes it worse. Intermittent fasting (IF) not good.
1.3 Dr Jockers
New GABA info here: Here it blames the gut microbiome for too little GABA. Might get into only certain parts of the brain.
DrJockers Aug 15th: Strange doses, wrote; 91 comments, #92 wd be mine…
3 Theanine NOW
As it’s made from a pulverized tablet it contains filling agent. I could work out.
slightly decreasing more (300 on Aug 4th seemed better), alertness, energy, relaxation without drowsiness, 100-600mg, no sfx known!, however it increases dopamine, what it does to serotonin isn’t clear.
BTW theanine is partly for DOPAMINE (“opposite” of serotonin, but not sure what it does to serotonin), like glutamine, levodopa, as well as taurine, tyrosine, SAMe and Mucuna pruriens!
4 Taurine: adrenalized me, so keep as an upper in the mornings
“500mg” taurine adrenalized me all night (4h40 sleep) & day Aug 20th. Praps I’ve found my coffee, as my acupressurist suggested! I’ll start with specks in the mornings, increasing depending on how I feel or need to get up, like next Tuesday at 7:15 for work. And praps it will get a handle on sleeplessness by getting me up, despite little sleep and then letting me get tired again properly after…
BTW I’ve no idea how much mg I’m really taking, as it may be heavier or lighter than the others.
Taurine: increased sleep in flies.
Taurine increased serotonin & glutamine in rats
Taurin highly selective effect: Effect of intraventricular administration of glutaurine on norepinephrine, dopamine and serotonin turnover in different brain regions in rats - PubMed
Taurine Regulation of Neuroendocrine Function - PubMed influences many things!
(Taurine, energy drinks, and neuroendocrine effects - PubMed energy drinks - thoughts)
The Effects of an Oral Taurine Dose and Supplementation Period on Endurance Exercise Performance in Humans: A Meta-Analysis - PubMed single dose 1-6g helps endurance.
5 SAMe DUNNO: 400-800mg in the mornings, as stimulating, not much research
6 Tryptophan DUNNO: repeating in VERY low dose (GI; dead tired; encapsulating like theanine),
7 Glycine
is supposed to help the GABA cross the blood brain barrier (Dennis). But do I need that? Got it in the magnesium glycinate anyway, see above: Glycine works like GABA, as inhibitory neurotransmitter, helps normalize sleep patterns like glutamine & theanine, to relax and calm. This is in the added new magnesium form, that fits.
Serrapeptase: ordered, as price down, from an Apotheke based in Holland. (Proteolytic enzyme without any evidence (wp), produced by silkworm bacterium). 10-60mg. enteric coated 30’ before or 2h after eating. fx: inflammation, pain. sfx: skin, pain, incl. stomach! Serrapeptase: Benefits, Dosage, Dangers, and Side Effects, https://draxe.com/nutrition/serrapeptase/ Take as little as possible, and if possible enteric coated?? So what do I do now??
NADH coenzyme NADH for Fibromyalgia Pain Relief - Fibromyalgia Resources for energy, not sleep.
Acetyl L-Carnitine (ALC)? (Got some liquid! Or ask sleep lab psychiatrist? Ultra-high dose Vitamin C too, 7,5g, to be put in 250ml NaCl solution)
D-Ribose (muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence):
Selene - keeping for thyroid.
Zinc again as the bloods are in the middle. No, sfx.
Magnesium ENOUGH ALREADY, glycinate yes or no?
Reminder from here: I’ve got 60mg of Mg in the rosewort already, that’s about 240mg together with the malate & glycinate!
Mg glycinate can cause insomnia in some and it’s a GABA antagonist, it says here: https://www.reddit.com/r/Nootropics/comments/8xmbi2/magnesium_glycinate_gives_me_insomnia/
Vitamin B12 too.
C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)
(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.
D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) DONE (several times, no repeat): Melatonin, 10% CBD oil, 5-HTP, ashwagandha.
Development
Lessons in self-care #65 Comparing symptoms has helped find treatments, e.g. twist-stretching elbows.
Lessons in self-care #66 Work coming up after a break is not particularly welcome, even 10h/wk…
Reasons to be cheerful #65 At the moment I feel supps & self-treatments getting a bit clear.
Reasons to be cheerful #66 Is the end of the bladder pain (nearly) final?!
Highlights week 8th to 15th.
Abbreviations & explanations
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
SLEEP: slp, w, lbu/LBU, RLS, p, i
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
ACTIVITIES: TT, e.g. "5:1"
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
SELF-TREATMENTS (about everything else...)
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash/fast Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
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