JayCS’s Fibro Blog

Symptoms & Treatments
787

2022-04-21, Thursday - Mobility = 10% → 20% due to acupuncture :grinning:

21:30 Pondering on my latest downhill development, starting last Wednesday, see below: Nothing new, still looks like it’s the acupuncture, at least I can’t see it’s anything else and I can’t see any sense in reducing supps.
22:10 Taking the supps “too” late today, let’s see if that makes a difference.
10:00 alertness = 60%.
11:25 WHB 11’ didn’t help.
13:00 Acupuncture did a bit. Cooking yesterday (sweetheart cabbage) allowed being fuller from eating, not so hungry, but that doesn’t change anything.
18:00 TT 3:1! Felt like having to avoid feverishness, but hardly pain.

Triggers & resulting Symptoms

SLEEP (click for details): 9h15, up 5x (35') ✅, but ➔ Feeling 80-70% well, Ache 2 of 7 🧐, getting up: 70%/2 ❌ (nostrils/sinuses/stomach)

warm, then cold! shower p0 Sleep 22:25-
0:25 5’ 80%/2 p0 st1 sip fw1’ A3 air cream
1:25 5’ 80%/2 p0 st1 sip fw1’ A4 air cream
2:45 15’ 80%/2 p0 st1 sip fw10’ air cream
6:25 5’ 70%/2 p0 st1 sip fw1’ air cream gel nostrils stomach nauseous HWB. dozing, “thinking”…
7:05 5’ 70%/2 p0 st1 drink fw1’ air cream gel nostrils stomach aching & nauseous B2-4
-8:15 70%/2 p0 st1 sip fw1’ sinuses stomach ache/nauseous.
Sum: 1h35+8h15-(5+5+15+5+5=)35’ = 9h50-35’ = 9h15, up 5x (35’)

ACTIVITIES (aim: 40%) ➔ ACHE: 70%/3, till acupuncture ➔ 75%/2, cycling in 4th of 8 gears before acupuncture and in 6/7th gear after acupuncture, TT :ping_pong: 3:1 ➔ 80%/2 :white_check_mark:, feeling slightly feverish
ACTIONS ➔ PAINS: :white_check_mark: neck: bit better :face_with_monocle:. GI: bit better :face_with_monocle:. jaw: bit better :face_with_monocle:.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark:, except severe FATIGUE as ever, and sinuses due to late supps. 9:00 In the morning fatigue slightly less. 10:00 alertness 60% :new: Before this flare it was usually 100%. Nostrils & sinuses are affecting the alertness. Tried adding magnesium glycinate.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - Still not good from 19th :x:. Next: today, 21st. Some needles painful in, and in the first minutes, but that stopped, like the other times when it had a good effect. Head/face/eyes still sweaty-feverish-exhausted-tired, but body free and more supple, a bit more energy, a bit less pain. Like the first 6 times changes on some levels, but not all. Like #9 up from 10% to 20% agility.
Cardiologist - heart is fine. Instead of a booster she doing a titre

SELF-PHYSIO (click for details) focus on: Neck massage gadget: 3'. ✅ 11:25 Wim Hof Breath-holding 11' didn't help. RR? ❌

:white_check_mark:
Combine: next? RR!!
:x: facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (24?): Supp costs:~277€/m (Apr 14th) CHANGED: Praps need to double theanine again (C3), and earlier, to wake up better. Or Mg bisglycinate. Or ALC instead of carnitine for a while. Decided upon bisglycinate at 09:30 0 passiflora, 0 Ω3, theanine down to 1. Stopping luteolin (anti-inflammatory/antioxidant, sleep, 26€/m.) and all other antihistamine supps. Suddenly to see if I get a histamine effect, some back if necessary. PLANNED/TAKEN TODAY: click for details:

No more antihistaminey stuff for a while!
ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/22:10 A1/2 “19:00” 0PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/00:25 A3 “21:00” 0PF#2 .6 GABA&.4glu#1 & 0Lut (slp!) & Qc +0NAC
Chamomile tea.
/01:25 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
0 B1 “01:00” 0 PF#4
/07:10 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:10 B4 “07:00” EGCg + Fev/MSM + Sily
/09:00 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:00 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA

  • Mg glycinate
    /11:25 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
    0 DAO (D1) “13:00” 0psyllium
    /13:50 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
    /16:50 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
    eve:
    “18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
    (Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules)

No more antihistaminey stuff for a while! (Not changing this overview for a few days, until I’m sure it’s OK.)
Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

My wife has started comparing this Fatigue incl. increased Fog to some of my worst pain moments 2 years ago and is blaming the acupuncture. I think more fitting is comparison not with the pain moments, it’s the zombification & feverishness (meaning unrestorative sleep) due to melatonin and CBD oil last April. What I did then was stop both and take up GABA. But I have already stopped passiflora and luteolin. As I’m wary of increasing GABA even more, and less didn’t work, what I could try now is stop glutamine, however that could unbalance the GABA. Or what if I just stop everything, to see what happens? But 8 days ago I was OK, then Wednesday, before acupuncture it went down a bit for the first time, up again from acupuncture, then downhill since then.
Acupuncture:
Acupuncture #9 on 29th: 10->20%, 30th: 20%, 31st: 20%, 1st: 20%, 2nd: 20%,
= 4 days up at 20% agility.
3rd: 25% (cortisol), 4th: 25%, 5th: 25%, 6th: 25%, 7th: 25%, 8th: 25%,
= 6 days up at 25% agility.
9th: 30%, 10th: 30%, 11th: 30%, 12th: 30%,
= 4 days even higher at 30% agility.
13th: 20%, why down? I was thinking because I needed a session, but:
Acupuncture #10 on 14th: 30%, 15th: 20% (30%), 16th: 20%, 17th: 25%, 18th: 20%,
Acupuncture #11 on 19th: 15%, 20th: 10%.
Acupuncture #12 on 21st: 10 → 20% (like #9?!).
Alternative explanations aren’t sensible:
Or was I overdoing it? on the 10th, 14th, 15th and 17th? I don’t think so. And why would it take 3 days for the 10th to hit home? Or for the 14th-17th? That would be very unusual for me.
Weather? has been getting slowly “better”, not worse. (Moon?: Waning, for those who believe in the moon, I don’t ever see any connection for me, so I’m just bashing that one.)
OK, I assume I need to take the supps and just get earlier sleep.
Did that, didn’t make that much difference - sinuses up.

Whether or not before was from overdoing it, it got worse from acupuncture #11, so this’d all be very long term.

Terms:

I’m now starting to note my alertness - I was going to say “mental ability”, then mental agility, but maybe the words agility for physical and alertness for mental capacity are clearest. German Mobilität and Wachheit = mobility and awakeness. Praps mobility is better than agility, at least these are two totally different things, I can be very agile, esp. for short periods, it’s got more to do with stiffness than with fatigue/energy.

’Research’ today: Bits’n’bobs (forum questions).
Lessons in self-care #283 Have to take care to keep my energy down even if I feel better…
Reasons to be cheerful #287 After acupuncture it slowly feels as if the flare is ended!