JayCS’s Fibro Blog

Symptoms & Treatments
789

2022-04-23, Saturday - Mobility = 20% - Alertness = 90% Difficult night… so pain higher (3-4 of 7)

23:50 only managing to doze - the weekend music workshop start I went to from 19:00 to 20:00 was too stirring. Too many things/decisions/worries like 20 people in one room, me asking for people to wear masks near me, but still feels uncomfy both ways, don’t know what my role can be there as I can only take part for an hour or two at a time, also having to say I can’t eat with them (cos of CoV, diet, break need, “stress”). This was all actually not stressful, but nice, but I just am not able to do things like that easily since fibro, it was a calculated risk. End of the story: I probably won’t be continuing the workshop.
13:10 Sinuses still burning.
18:00 Slow 60’ cycle trip to a lamb field, weren’t there tho.

Triggers & resulting Symptoms

SLEEP (click for details): 8h55, up 7x (2h35) ✅, but ➔ Feeling 80(70)% well, Ache 2-4 of 7 🧐, getting up: 70%/3 ❌. 6h15 sleep from 4:30 on, so before that 2h40 ruminating Yoga Nidra and 2 long sleep breaks... Showering a 2nd time not possible at the moment.

warm, only slightly cold shower possible, caused pain. p0 Sleep 23:15-
23:50 10’ Just been dozing: the weekend music workshop start I went to from 19:00 to 20:00 was too stirring. Airing, HWB, Yoga Nidra to get to sleep.
0:45 15’ 80%/2 p0 st1 sip fw1’ air cream
1:10 5’ 80%/3 p0 st1 sip fw1’ air cream
2:05 80’ 80%/3->4 p0 st1 sip fw1’ air cream B1, 3:25 luteolin, Yo.Ni.
3:53 35’ (robin singing) 6 -4:28
6:12 5’ 80%/3 p0 st1 sip fw1’ air cream HWB
09:05 5’ 70%/3 p0 st1 sip fw1’ air cream nostrils
-10:45 air nostrils
Sum: 45+10h45-(10+15+5+80+35+5+5=)2h35 = 11h30-2h35 = 8h55, up 7x (2h35), but 6h15 sleep from 4:30 on, so 2h40 Yoga Nidra.

ACTIVITIES (aim: 40%) ➔ ACHE: Starting at 60-70%/2: Nostrils, sinuses, headache, slightly nauseous, at 13:10 still. Treated myself :cupcake: to 0:4 TT :ping_pong: :x:, sinuses down during, but directly back after, even hard cycling. ➔ 70%/3-5) :x:. Lots of rest, then a very slow cycle to get some fresh air, maybe 60’ ➔ 70%/4 :x:
ACTIONS ➔ PAINS: :white_check_mark: neck: maybe more for the stiffness? :face_with_monocle: GI: OK-ish :face_with_monocle:, jaw too :face_with_monocle:, lower back pain at 12:00, not sure why, used massage gadget :face_with_monocle:.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: fatigue better, despite bad sleep, but sinuses all morning since getting up, only down during table tennis. Wondering if it’s the soy jogurt I had a bit of is the cause. Bit again, so let’s see tonight and tomorrow…
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark: Better not to take part in the music workshop with 20 people, even if they wear their masks near me and seem negative.

Treatments

Docs:
Chinese Acupuncturist - Bad again :x: from 21st, not sure how acupuncture had to do with not being able to sleep after going out “late”. Next: 26th.

SELF-PHYSIO (click for details) focus on: Neck & lower back massage gadget: 1x3'. RR? ❌

:white_check_mark:
Combine: next? RR!!
:x: facetime 2x1’, airing x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, horse stance 1’, aloe vera 1’, massage gun 20’, twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Mar 13th (24?): Supp costs:~277€/m (Apr 14th) CHANGED: 0 passiflora, 0 Ω3, theanine down to 1. Stopping luteolin (anti-inflammatory/antioxidant, sleep, 26€/m.) and all other antihistamine supps. Suddenly to see if I get a histamine effect, some back if necessary. PLANNED/TAKEN TODAY: click for details:

No more antihistaminey stuff for a while!
ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 14th (26): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:40 A1/2 “19:00” 0PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/20:40 A3 “21:00” 0PF#2 .6 GABA&.4glu#1 & 0Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:10 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/02:05! B1 “01:00” PF#1
/09:10? B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/09:10? B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:10? B4 “07:00” EGCg + Fev/MSM + Sily
/11:00? C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/11:00? C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:15 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
14:30 DAO (D1) “13:00” 0psyllium
/14:45 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:25 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next (last): Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

No more antihistaminey stuff for a while! (Not changing this overview for a few days, until I’m sure it’s OK.)
Pf: A1+3(04!)+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: Continued the video list: Good talks on fibromyalgia and pain (mainly YouTube) - #9 by JayCS
Lessons in self-care #284 Deciding not to go to the workshop.
Reasons to be cheerful #288 The slow cycle ride in fairly good weather was quite good despite pain, and finding my hoodie was still where I’d left it 4 hours before was also good.