JayCS’s Fibro Blog

Symptoms & Treatments
800

2022-05-04, Wednesday - 20% - tired

Sleep 60%
Energy (FM + MCAS) maximum 70%, 20% of physical “spoons”
Suppleness 80%
Alertness: maximum 70% (sinuses/headache), 80% of mental “spoons”
Feeling Well - sleep 80%, sleep breaks 80% day 70%
Ache 30%?
Local Pains 0%
MCAS (except energy) 50% (sinuses/headache from cheese).
Self-treatments >1h/d
Chinese acupuncture 2.5h/wk
Maximum alertness 100%, but amount of hours is much less, if I overdo it, I get a flare. Same with physical energy, which since MCAS no longer ever is at 100%, max. is 80%.

Triggers & resulting Symptoms

SLEEP (click for details): 7h35, up 4x (25'), needing 2h and 3 passiflora & Yoga Nidra to be able to get to sleep at all ❌, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 ✅

warm shower p0 Sleep 23:40- nope. Try again with Yoga Nidra 00:20- Nope, still WIDE AWAKE AND FULL OF ENERGY. Forum-work, 6. B1 at 1:30 and a 3rd Passiflora at 1:40 1:45- Yo.Ni.90 ear plugs gel
3:50 5’ 80%/2 p0 st1 sip fw1’ cream nostrils (ear plugs) HWB
4:55 Annoyingly the HWB is now too hot, hurting & making me nauseous. Airing, freeing nostrils. 10’ 80%/2 p0 st1 sip fw7’ air cream gel nostrils stomach nauseous (ear plugs)
8:20 5’ 80%/2 p0 st1 sip fw1’ cream left nostril/sinus strong, stomach slightly nauseous (ear plugs)
9:30 5’ 80%/2 p0 st1 sip fw1’ air cream left nostril/sinus stomach nauseous (ear plugs) B2-4
-9:45
Sum: 9h45-1h45 = 8h-(5+10+5+5=)25’ = 7h35, up 4x (25’), needing 2h and 3 passiflora & Yoga Nidra to be able to get to sleep at all

ACTIVITIES (aim: 40%) ➔ ACHE: 70%/2 (hard to feel thru the sinus-headache) TT :ping_pong: 3:0 (2:1?), not up to meeting the kids :child:, but a bit of work was OK-ish :face_with_monocle:
ACTIONS ➔ PAINS: :white_check_mark: neck: massage gun.:face_with_monocle: GI: Wind/pain from cooked veggie mix which raw doesn’t cause problems! :face_with_monocle::x: jaw: :white_check_mark: During back exercises neck suddenly & strangely seized up → massage gun :face_with_monocle: → :white_check_mark:
pee pain gone again :white_check_mark:.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Sinuses/left nostril in the late night turning to severe headache in the morning, due I think to eating a little cheese. Trying again this evening (less) with DAO before. Using my massage gun always gives me some MCAS skin burning & nausea, but that stops soon after I stop.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - #15 3rd :face_with_monocle:. (Sleep & +25% GABA helping.) Sleep wonky, GI: wind, pain OK, energy OK-ish, all influenced by the bad & too little sleep.

SELF-PHYSIO (click for details):

:white_check_mark: airing 5x2’, cream fc/ey/hd/ft 6x1’, teeth 5x2’, HWB 2x3’, palpate 1’, belly 3’, back 12’, aloe vera 2x1’, massage gun 10’, Y. Nidra: hours,
Combine: next? RR!!
:x: facetime 2x1’, cold shower (10’), breath exercises 4’, Timing, hunchback-pillow 15’, horse stance 1’,twist-stretch 5’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, loins 5’, plantar/calf stretch 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps Apr 27th (~24): Supp costs:~277€/m (Apr 14th) CHANGED: 3! passiflora. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, P-5-P, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of Apr 27th (24): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, 0P5 27mg, Pf 1.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” 0PF Cr#1 0mal#1+2 0P5P (0Se) PQQ 0xΩ3 & Qc. Meal: DAO.
/21:00 A3 “21:00” 1PF#1 .6 GABA&.4glu#1 & 0Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:15 A4 “23:00” 0PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:30 B1 plus 3rd PF “01:00” .6g GABA PF#2+3
/09:30 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/09:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:30 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/11:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO
/11:30 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/14:05 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/16:05 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
18:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: No.
Lessons in self-care #294 If my wife says “that bit of cheese won’t kill you” I need to ask back: “How many hours of pain belongs in that category?”… :face_with_monocle:
Reasons to be cheerful #298 Got some music done, some work, some TT…