JayCS’s Fibro Blog

Symptoms & Treatments
830

2022-05-28, Saturday - Energy 25% / Sleep 60%. Cortisol from acupuncture enabling doing things despite getting shattered from finalizing clearing out my workplace another 30’ (plus commuting 2x30’)

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 30%? Suppleness (vs. stiffness) 80%?
Local Pain Areas (mainly spine): = 3. 10%? Mainly neck, altho as ever fairly supple.

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%)
Waking unrefreshed 3 out of 3 (Sleep quality 50-60%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 80%)
Headaches & Depression: “0”, Pain or cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 80%
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above) Bit of sinuses

Treatments overview

Self-treatments >1h/d (Yoga Nidra)
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 8h45, up 5x (3h20), >2h Yo.Ni/dozing (23:40-5:45, 7:55-11:45 = 6h+4h - 1h breaks & dozing/Yo.Ni). ✅/❌, ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐, but very tired.

warm shower (after acupuncture) p0 Sleep 23:40-
0:00 5’ 80%/2 LBU → stretching → massage gun
2:55 15’ 80%/2 p0 st1 sip fw5’ air B1, sinuses → +A3 glutamine (forgotten!) Made & put GABA from A3 in B1, and in in A4 (forgotten), see if I can/need them later… Stools(!), OK.
3:25 15’ 80%/2 work-notes. YoNi with ear plugs cos of birds.
4:35 35’ 6 80%/2 p0 st1 sip fw5’ nostrils stomach nauseous: ate, (ear plugs) then doze.
5:35 Yo.Ni. -5:45 awake, but tired eyes. 2h10 B2-4
7:55- try again, after fw & mails.
-11.45
Sum: 20+11h45-(5+15+15+35-2h10=)3h20 = 12h05-3h20 = 8h45, up 5x (3h20), >2h Yo.Ni/dozing (23:40-5:45, 7:55-11:45 = 6h+4h - 1h breaks & dozing/Yo.Ni).

ACTIVITIES (aim: 40% energy) ➔ ACHE: ?70%/3, again 30’ at “workplace” to get clearing “out” done, instead of TT
➔ 80%/4 :x:. Not really Ache of 4, it’s a strange fatigue mainly despite the so-called energy.
ACTIONS ➔ PAINS: :white_check_mark: neck: hurts :x:. GI: stomach at night :face_with_monocle:. jaw occasionally :face_with_monocle:. Everything else OK.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x: Sinuses at night.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark: Commuting was good today, much less people than expected.

Treatments

Docs:
Chinese Acupuncturist - #19 on 27th :face_with_monocle:. (Sleep & +25% GABA helping.) #20 on 2nd. Definitely still the cortisol up, but not deeply enough and very slow.

SELF-PHYSIO (click for details):

:white_check_mark: airing 5x2’, no cold shower 0x(10’), cream fc/ey/hd/ft 5x1’, teeth 2x2’, HWB 3’ at daytime, breath exercises 1’, Timing, hunchback-pillow 15’, Y. Nidra 2h, massage gun 5’, neck 1+ 2’,
Still to do I think!: palpate 1’, belly 3’, back 12’,
Combine: next?
:x: neck 2 1’, plantar/calf stretch 5’, acupressure 2’, workout 7’, horse stance 1’, aloe vera 1’, twist-stretch 5’, yoga/stretching 5’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): All wonky as often recently, left some GABA out, so no surprise if I get seizures or pains, esp. considering acupuncture - but haven't yet. Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. Running out of more and more stuff, gotta order. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/?21:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:40 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/3:00 B1(& A3-GABA) “01:00” .6g GABA PF#4
/08:00 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/08:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:00 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/15:00 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/15:00 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/20:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/15:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: No. Helping one of the forums transition to new software, beta-testing for loads of bugs.
Lessons in self-care #318 Made sense to finalize workplace.
Reasons to be cheerful #322 People are thinking of and praying for me, and I tell them to pray for my health, just for happiness.
Things I love about myself #17 Active.