2022-06-03, Friday - Energy 25-28% again! / Sleep 75%! / Ache 10-15%!
Positive summary of symptom-%s:
Σ(+): NRG 25-28%, slp 75%, Ache-free 85-90%, pain-free 90%, alert 90%, GI 95%, feeling 85%, PT >1h
Symptom overview sorted by the ACR 2016 criteria
Widespread pain (WPI): 8 +3 +1 = 12 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 15% Suppleness (vs. stiffness) 90%
Local Pain Areas (mainly spine, 3): = 3 +1 (right clavicle during TT). 10%
(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 25-28%)
Waking unrefreshed 3 out of 3 (Sleep quality 75%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 90%)
Headaches & Depression: “0”, Pain or cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 85%, sleep breaks 70%, day 85%
MCAS / allergic 20% (except energy, subsumed under FM-fatigue above) Sinuses all night and till afternoon, maybe due to the basmati rice? Or what else?
Treatments overview
Self-treatments <<1h/d
Chinese acupuncture 1h15h/wk
Triggers & resulting Symptoms
SLEEP (click for details): 8h35-35' = 8h, up 4x (35') ✅, but ➔ Feeling 80-60% well, Ache 2-3 of 7 🧐, getting up: 80%/2 ❌. If I ever feel it's vital to write something down instead of eating at a set time, I want to start making it a habit to eat first, write later.
warm shower p0 Sleep 22:40- A4 ear plugs
0:20 15’ 80%/2 p0 st1 sip fw11’ air (nostrils) (ear plugs) B1
2:15 10’ 60%/2-3/15% p0 st1 sip fw1’ air (ear plugs)
4:10 5’ 60%/2-3/15% p2 st1 sip fw1’ air cream (ear plugs)
6:50 5’ 60%/2-3/15% p0 st1 sip fw1’ air nostrils & sinuses (ear plugs)
-7:15
Sum: 1h20+7h15-(15+10+5+5=)35’ = 8h35-35’ = 8h, up 4x (35’)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 85%/1-2, cycling & shop OK, TT 4:1 easy, just a matter of dosing energy right (easier with less energy) ➔ 80%/2 rest & work, and even some gardenwork ➔ 80-90%/2-1
ACTIONS ➔ PAINS: neck: bad during TT, so need to massage it. GI jaw , but 3xp1-2, meaning I need to change the GABA, praps less again?? Clavicle also now influencing my sternum. Some people would think it’s magically “moving”, but of course it’s directly connected.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. 22:20 Coughing fit due to 3 drops of tea tree oil on strange blemishes on my feet. But my wife did a bit too. Praps something for the allergologists / dermatologists on Tuesday.
Fibro & Touch:
Covid-danger:
Treatments
Docs:
Cardio: Wanted to phone her cos of my lipid and CoV-antibody-titre results before the allergologists/dermatologists. However closed till after.
GP: Wanted to discuss the acupuncture with him. But full today, so I’ll try Wednesday instead.
Allergologists/dermatologists: Tuesday 7th, best to take all my stuff with me incl. this blog etc.
Chinese Acupuncturist - #20 on 2nd. (Sleep & +25% GABA helping.) Still seems good. Next appointment #21 on 9th, then #22 on 21st.
SELF-PHYSIO (click for details): 33', forgot back and massaging, doing that this Friday evening.
airing 3x2’, cream fc/ey/hd/ft 1x1’, teeth 3x2’, Timing, hunchback-pillow 15’, neck 1+ 3’, aloe vera 2’,
Combine: next?
cold shower x(10’), HWB 3’, breath exercises 1’, Y. Nidra 20’, massage gun 5’, neck 2 1’, plantar/calf stretch 5’, acupressure 2’, palpate 1’, belly 3’, back 12’, workout 7’, horse stance 1’, twist-stretch 5’, yoga/stretching 5’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Whoops, I've been taking 5 passiflora & 5 GABA, now I've re-ordered. DAO seldom. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:40 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/21:15 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/22:40 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/00:30 B1 “01:00” .6g GABA PF#4
Heating on! Warm shower?
/07:15 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/07:15 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:15 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/-10:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/-10:30 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/13:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
1 DAO (D1) “13:00” 0psyllium
/16:00 ?-15:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:15 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules)
Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)
Development
’Research’ today: On ECT and the probiotic Lactobacillus rhamnosus for increasing GABA, both “no help”, and a few other bit’n’bobs from forums.
Lessons in self-care #326 (Sleep) supps too late due to wanting to having given myself a deadline to get some work done… Not a good idea.
Reasons to be cheerful #328 Still energy for some gardening.
Things I love about myself #23 Try to “know what I’m doing”… or admit that I don’t.
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…