2022-06-30, Thursday - Energy 15% / Sleep 85%
Main issues at the moment:
1) Seeing if 3 cold showers every night further stabilizes the better sleep to increase the cortisol that acupuncture is stimulating.
2) Research-searching and soon trialling if it’s true that copper with retinol (type of Vit. A) help iron transport oxygen to the mitochondria to increase ATP for energy. That’s supposedly certain (natural) types of bioavailable copper and of vitamin A.
3) Histaminey foods definitely sometimes seem to be causing histaminey problems, so gotta keep up those trials.
4) Keeping the esophagus blocks in check more: bad one to day, with a really big bolus.
5) Hope my new tooth problem, a thorn between two teeth, has “dissolved”.
Positive summary of symptom-%s:
Σ(+): energy 15%, slp 85%, Acheless 80%, painless 90%, alert 80 → 70%, GI 90 → 70%, feeling 80 → 70%, PT >1h
Symptom overview sorted by the ACR 2016 criteria
Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 20% Suppleness (vs. stiffness): 85%
Local Pain Areas (mainly spine, 3): = 3. 10%
(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 15%)
Waking unrefreshed 3 out of 3 (Sleep quality 85%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 80 → 70%)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 80 → 70%
MCAS / allergic 15% (except energy, subsumed under FM-fatigue above)
Treatments overview
Self-treatments (‘PT’) >1h/d
Chinese acupuncture 1h15 this week.
Triggers & resulting Symptoms
SLEEP (click for details): 8h59, up 6x (1h14) ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 ❌. The 2nd and 3rd cold show worked fairly well again, 2h stints each at least, whilst the first before bedtime only lasted for an hour, then even less, only another half hour - whilst 6 lasted 2h, perfectly timed.
cold shower p0 Sleep 22:30- ear plugs
23:25 5’ 80%/2/15% p0 st1 sip fw1’ air gel (ear plugs) A4
23:55 5’ 80%/2/15% p0 st1 sip fw1’ gel (ear plugs)
0:30 35’ 80%/2/15% p0 st1 sip fw1’ (ear plugs) 6 1:00 B1
2:54 10’ 80%/2/15% p0 st1 sip fw1’ (ear plugs) FCS#2
5:16 7’ 80%/2/15% p0 st1 sip fw1’ (ear plugs) FCS#3 cream
-7:29 12’ 80%/2/15% p0 st1 sip fw1’ (ear plugs) B2-4 Dream of “us” being attacked war, but more like kids stuff for starters.
-8:45
Sum: 1h30+8h45-(5+5+35+10+7+12=)1h14 = 10h15-1h14 = 8h59, up 6x (1h14)
stools,
ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, TT 
0:2, except I shot my wad at the beginning, leading 15:4, and then crumbled down completely, exactly the other way round to recently losing the first game and winning the 2nd 2. ➔ 80%/3 
, acupuncture ➔ 60%/4 
. Resting a lot, but feeling an urge to do something towards the evening, and managed 30’ of intense but task-switching housework, and still might do my grocery shopping. Don’t feel like doing any work at the moment, and not too much forum work, just specific questions, seems an overload. A bit of The Big Bang Theory was OK, but made me laugh and then cry again, then the esophagus block came and I start thinking this bloody ain’t fair.
ACTIONS ➔ PAINS: except: neck GI , except severe esophagus block at 15:00, decided to get it out quickly, which was right, cos the bolus was enormous. Jaw slight 1xp1-2 (some atypical time). When I don’t specifically make remarks about lying, sitting, standing etc. that will still mean that it is all a bit of problem, sometimes more sometimes less. Compared with normal people maybe a severity of 80%, whilst I keep under the limits of 10-40’ without realizing that any more, which shows how my percentages above may not comparable to others.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? Reduced histaminey stuff and sinus pain also reduced, so seems to prove the connection once again. Post-nasal drip most of the morning, till about 16:00. No sinuses after green beans and bits of soft goat cheese, a fig or two. I’m still blaming the baked beans, altho they have been OK in the past too. Maybe the total load, or too much of them.
Fibro & Touch:
Covid-danger:
Treatments
Docs:
Chinese Acupuncturist - #23 on 30th 
(Sleep & +25% GABA helping.) Next session #24 on 12th. Interesting how clear my vision is at 13:15. Still at 16:00. But also knackered from it. Energy seemed to increase at 18:00, so I could follow my desire to do some housework.
SELF-PHYSIO (click for details): 92' (back exercises bit late, but did 'em)
airing 4x2’, cold shower 3x(10’), cream fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 0x3’, breath exercises 4x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun 0x3’, neck 1+ 2x1’, neck 2 x1’, plantar/calf stretch 3x1’, acupressure x1’, palpate 1’, belly 3’, back 10’, aloe vera x1’, twist-stretch 1x1’, yoga/stretching 5x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stable now I've piled everything back on. Working thru June 27th, I've seen I can add a 3rd Ellagic acid, as I have tons cheap with short use by date. Trying theanine before first meal, hoping I won't wake up too much. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:20 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum 21:30-
/21:30 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:30 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/01:00 B1 “01:00” PF#5
/07:30 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/07:30 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/07:30 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/9:30 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/9:30 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal -10:00 Gum -
/13:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/15:00 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal -15:30 Gum -16:00
/18:00 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th
Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
‘Research’ today:
Copper and retinol for more energy?!
If it’s retinol and copper that I’m deficient in, and iron too high, what can I eat, esp. as a pretty-vegan 9 Foods Rich In Retinol (Preformed Vitamin A) To Meet Your Vitamin A Needs
- Baked sweet potato, 1 whole: 1,403 mcg RAE
- Carrots, raw, 1 cup: 918 mcg RAE
- Kale, boiled, 1 cup: 886 mcg RAE
1 mcg of physiologically available retinol comes from just 12 mcg of beta-carotene but needs 24 mcg of alpha-carotene and beta-cryptoxanthin.
This compares to vegetarian: - Goat’s cheese (hard), 1 oz: 136 mcg
- Cheddar cheese, 1 oz: 94 mcg
- Ricotta cheese, ½ cup: 145 mcg
A 3 oz serving of bluefin tuna has 643 mcg of retinol iteself, Beef liver, braised, 3 oz: 8014 mcg of retinol.
“On the one hand, the conversion often functions only to a limited extent in people with digestive problems, hormone disorders, or diabetes.
On the other hand, according to studies, women can absorb only about 3.3% and men about 2.25% of beta-carotene” (Lin et al. 20002; Hickenbottom et al. 20023).
“For this reason, you should better be ready to eat several kilograms of sweet potatoes to meet the equivalent daily requirement of retinol.”
Iron Overload: Cause of Histamine Intolerance? | The Root Cause w/ Morley Robbins Pt. 2 - YouTube “We’ve been mislead to think we need more iron” - it just needs to be balanced and used by copper and retinol.
A lot of this sounds very oversimplified, just the name “root cause protocol” or arguments people you used to be healthy 100 or 1000 years ago, which is silly. And it sounds like Kuklinski, talking about NO, whose protocol I already tried 3x in my first fibro year. But it’s different, and seems to fit, what with copper changing something and iron deposits.
Few copper supplements that really become bioavailable Iron Overload: Cause of Histamine Intolerance? | The Root Cause w/ Morley Robbins Pt. 2 - YouTube, better in food. Bee pollen, real vitamin C and grass fed beef liver. Best supps - not easy to work with - from “Reverse Skin Aging”-author Loren Pickart. He’s developed GHK-Cu Peptide, which has a lot of studies on pubmed, I’ll see if they show it seems to work? He doesn’t recommend any others, just says there are many which don’t.
I’m wondering if I could try microalgae for retinol, but I only found this study which seems to show it’s only in preliminary stages The Extraction of β-Carotene from Microalgae for Testing Their Health Benefits - PubMed
In the 5 phases named here, I’m doing 16 of 29 = 55% of what it says already and definitely don’t tolerate some of them, like taurine and normal vitamin C, not at all sure about the (ConcenTrace I guess) “mineral drops” (Mg Cl Na K SO3 Li Bo). The “adrenal cocktail” contains orange juice (which I don’t tolerate), a potassium source (which I have more than enough of), Himalayan salt (which I use every day on my raw veggies), some add coconut water, which I often have yogurts of. In my microalgae for Ω3 I also have 3mcg of D3 and 2mg of vit. E, naturally. Vitamin E complex reminds me of Kuklinski distinguishing 8 types of vit. E which I took for many months without helping.
ATP needs magnesium MAGNESIUM & why it's SO IMPORTANT to our health | The Root Cause w/ Morley Robbins Pt. 3 - YouTube
However here everything it says suggests I have tons of magnesium in my food (pumpkin seeds, quinoa, almonds, cashews, beans, dried figs, dark chocolate, sea salt). I take the supps they suggest too, but some of their recommendations don’t fit to what I’ve read elsewhere - it’s based on what Robbins says that magnesium citrate is synthetic and inhitibs ceruloplasmin, something very important to him.
Lessons in self-care #353 Toning what I’m doing down now to what I need, not letting myself be pressured to anything.
Reasons to be cheerful #355 A few new reasons for a tiny bit of hope.
Things I love about myself #49 Roly-poly toy / tumbler… whatever…
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…