JayCS’s Fibro Blog

Symptoms & Treatments
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2022-07-06, Wednesday - Energy 15% / Sleep 85% / Feeling 75%-ish

This was gonna be an interesting Tuesday night seeing as I forgot my 19:00 and then 21:00 pills till 22:00… – went OK tho…

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain (WPI) = 11 of 15 areas: limb-Ache 8 (20%, stiff 20%) + spine-pain 3 (20%), shoulders & hips 0.
Symptom severity (SSS) = severity 9+1=10 of 12: Fatigue 3 (85%), insomnia 3 (15%), fog 2 (20%), headache 1, GI 1 (10%), depression 0.

Triggers & resulting Symptoms

SLEEP (click for details): 8h57, up 5x (1h31) ✅, but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅

cold shower p0! Sleep 23:45- ear plugs A3
1:57 21’ 80%/2/15% p1 st1 sip fw15’ air FCS A4 → headache after seeing stressful forum post.
3:15 7’ 80%/2/15% p1 st1 sip fw1’ air FCS#2 B1. headache better, but trying FCS.
4:50 5’ 70%/2/15% p0 st1 sip fw1’ air (ear plugs) 6 - ahh, far better than FCS.
7:25 13’ 80%/2/15% p0 st1 sip fw10’ air (ear plugs) (nostrils) → br. ex.
7:50 45’

  • 10:13!, B2-4
    Sum: 15’+10h13-(21+7+5+13+45=)1h31 = 10h28-1h31 = 8h57, up 5x (1h31)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2 :white_check_mark: . 12:50-14:00 2x10’-15’ cycle to 2x10’ shops, all very slowly ➔ 60%/2 :face_with_monocle:, ➔ ?80%/?3 TT later… winning most of the time, whilst not playing for points though, that might’ve been a notch higher. ➔ 80%/4➔3➔2
ACTIONS ➔ PAINS: :white_check_mark: except: neck in the early morning :white_check_mark:/:face_with_monocle: GI :white_check_mark:, esophagus :white_check_mark:, jaw :white_check_mark:/:face_with_monocle: (in between) 3xp1-2 :white_check_mark:/:face_with_monocle:. Headache & sinuses at 22:30 due to having forgotten my evening supps (19:00) until 22:00 - which goes to show how good they are… This’ll probably have quite a few consequences for sleep, so needn’t expect too much… Supps late could mean sleep later, more pain, more peeing, so more sleep breaks and feeling worse. If I get thru with 70%/3 I’ll be lucky. However more than the 9 sleep breaks I had last night where everything was early won’t be possible, that’s the max. I’ve ever had, because from then on I start staying up, whether night breaks or morning… Let’s see how it goes! 12:00 It went quite well … Headache till the middle of the night, now starting up again. Ah, no, it’s sinus pain…
Everything carefully, so not sure if anything would have played up if not (Lying: neck.)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? 12:00 Sinus pain/burning. BTW the exact food set list Monday evening 20:00, leading to 40% symptoms was: apples, cucumber, bok choy, pumpkin seeds, zucchini, carrots, salt and canola oil, having stopped sweet potatoes, broccoli, herbs as well as the supps resveratrol, PEA and quercetin.
Safe yesterday was apple, fennel, bok choy, carrots, zucchini, salt, canola oil, pumpkin seeds, green beans, bread, hard young goat cheese. Next I can check if was the cucumbers. If it wasn’t, then the 40% symptoms Monday evening are surprising.
To “safe” I now added cucumber and 70% dark chocoiate (with orange), forgot fennel: 10-20% symptoms. Evening: Same, with cucumber, but without chocolate, added chicoree with 0% problems.
Fibro & Touch: :white_check_mark:?
Covid-danger: :white_check_mark:?

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th :face_with_monocle: (Sleep & +25% GABA helping.) Session #24 on 12th.

SELF-PHYSIO (click for details): 88'

:white_check_mark: airing 6x2’, cold shower 2x(10’), cream fc/ey/hd/ft 0x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 10’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 1x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stopped the (major!) supps resveratrol, PEA and quercetin, cos of salicylates/oxalates since July 4th, keep track of that. Check if theanine before first meal is waking me up too much, doubt it tho. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/22:00 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/23:45 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/2:00 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/3:15 B1 “01:00” PF#5
/10:15 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/10:15 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/10:15 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/11:00? C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/11:00? C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal -12:00? Gum -
/14:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:45 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal 14:30-14:55 Gum 14:55-
/18:30 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today:
Checked my old copper resources again. As opposed to what I have sometimes written, copper is mentioned by verywellhealth as being good for histamine enzymes (meaning DAO), and Richard Hagmeyer expands on that here: “Because copper is essential to DAO function, copper levels should be monitored in patients with low DAO activity to avoid further DAO deterioration. If you have been taking Zinc you could have a copper deficency. Zinc levels should be checked at the same time, as zinc prevents intestinal copper absorption.”
My copper level Feb 16th turned out to be low. Calling it Cu for short I started copper gluconate Feb 25th for my C1/2 dosage (so usually at or after 9:00) and ended Jun 10th. Before and after my energy levels were definitely lower, however at the beginning of taking I also added acupuncture

Lessons in self-care #358 Almost overdid TT - thought it might’ve been a bit too much, but wasn’t after all, lots of rest.
Reasons to be cheerful #361 Playing TT fairly hard’n’fast against a club player was fun.
Things I love about myself #54 Pretty good TT player, considering self-taught.

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