JayCS’s Fibro Blog

Symptoms & Treatments
879

2022-07-10, Sunday - Energy 15% / Sleep 90% / Feeling 75%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (40%, stiff 30%) + spine-pain 3 (40%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (85%), insomnia 3 (10%), fog 2 (20%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h20, up 7x (42') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 70%/2/20% ❌. Praps "hurting", feeling unwell at night is from the sleep supps, GABA + passiflora, but without them no sleep.

cold shower p0 Sleep 22:15- ear plugs
23:20 5’ 70%/2/20% p0 st1 sip fw1’ air (nostrils) (ear plugs) A4. Tongue hurting. on the back left.
0:25 6’ 70%/2/20% p0 st1 sip fw1’ gel (nostrils) (ear plugs) B1 fingers hurting
1:47 5’ 70%/2/20% p0 st1 sip fw1’ cream gel (nostrils) (ear plugs) coughing
2:04 10’ 70%/2/20% p0 st1 sip fw1’ air (nostrils) (ear plugs) FCS#2
3:29 5’ 70%/2/20% p1 st1 sip fw1’ (nostrils) (ear plugs)
5:13 5’ 70%/2/20% p0 st1 sip fw1’ air (ear plugs) dream about (not) preaching about light(s)
7:10 6’ 80%/2/20% p0 st1 sip fw1’ (ear plugs) tons of dreams - workout. teeth B2-4
-8:17 stools? but last hour was more dozing than sleep.
Sum: 1h45+8h17-(5+6+5+10+5+5+6=)42’ = 10h02-42 = 9h20, up 7x (42’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/4-3, even resting, so couldn’t be bothered to just rest, got some fresh long grass for the guinea pigs and did a little housework ➔ 70%/4, but after that, resting gradually ➔ 80%/2 :white_check_mark:, playing music with “very intense rest” in between ➔ 70-80%/4-2
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark: jaw :white_check_mark: 1xp1-2 :white_check_mark: BTW I had a big problem with the outside right neck muscles Saturday afternoon, first I thought it was my tonsils playing up strangely. I had to even hold my neck in my hands for a while for it to calm down. 14:00 Suddenly severe hunchback pains 3 or 4 times, forcing me to catch up on back exercises…When I lie on just a mat I realize that my thighs still hurt, it’s still just the case in bed that the lambskin under them cushions that.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Focus on hazelnuts today: OK.
Did I say I cough quite a few times a day cos of mucus? Nostrils a bit better at the moment.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th :face_with_monocle: (Sleep & +25% GABA helping.) Session #24 on 12th.

SELF-PHYSIO (click for details): 82'. Short workout when I get cold, to save heating, but not easy, cos of the pain from the cold.... O.o. Also bit of housework, like 3' of washing up.

:white_check_mark: airing 5x2’, cold shower 2x(10’), cream fc/ey/hd/ft 1x1’, teeth 3x2’, HWB x3’, breath exercises 2x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun x3’, neck 1+ 3x1’, neck 2 x1’, plantar/calf stretch 3x1’, acupressure x1’, palpate 1’, belly 3’, back 10’, aloe vera 2x1’, twist-stretch x1’, yoga/stretching x1’, workout 1’,
Combine: next?
:x: horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stopped the supps resveratrol, PEA and quercetin, cos of salicylates/oxalates since July 4th, keep track of that. Check if theanine before first meal is waking me up too much, doubt it tho. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/19:55 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/21:40? A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:20 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/0:30 B1 “01:00” PF#5
/7:15 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
7:15 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/7:15 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/9:30 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/9:30 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
/11:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/13:40 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal 13:00-14:20 Gum -
/17:00 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Lessons in self-care #362 Learning more and more to become freer and self-advocate and just lie down anywhere when I need to - and realizing that people are happy that I do what I need to do.
Reasons to be cheerful #365? I can still enjoy life if my
Things I love about myself #57 Love talking about music.