JayCS’s Fibro Blog

2022-08-25, Thursday - Energy 30% / Sleep 90% / Feeling 90%-ish

Successes:
:trophy: 10h38 sleep, up 4x (32’)!!
Fails:
:-1: My CoV antibodies are halved = :zero: protection. Maybe the reason for my energy…
:-1: My genetically high lipid (lp(a)) has doubled.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (20%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (70%), insomnia 3 (10%), fog 2 (10%), headache 0, GI 1 (15%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 11h10-32' = 10h38, up 4x (32')!! ✅, but ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 80%/2 ✅, despite nothing special as regards supps, showers or lateness

cold shower p3? Sleep 22:45- ear plugs (TEETH?)
1:28 13’ 90%/1/10% p3? st1 sip fw10’ air (p: GABA late?)
4:04 6’ 90%/1/10% p0 st1 sip fw1’ 2air
7:30 4’ 90%/1/10% p0 st1 sip fw1’ air eye mask
7:58 9’ 90%/1/10% p0 st1 sip fw1’ air gel FCS#2
-9:55 stools, B2-4
Sum: 1h15+9h55-(13+6+4+9=)32’ = 11h10-32’ = 10h38, up 4x (32’)!!

ACTIVITIES (aim: 40% energy)ACHE: TT :ping_pong: 6:0! shop 20’ ➔ 90%/1 :white_check_mark:
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark: GI :white_check_mark:, esophagus :white_check_mark: jaw x5’’ :white_check_mark: pee pain: 1xp3 at 1:30 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Even energy risen. Burning & itchy skin after meals, I think I had an idea what from, but can’t remember. Sheep milk in the evening.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:, except of course the heat
Focal seizures: 12:25 unsuspicious forum work, 14:30 during TT. So more GABA again tonight.

Treatments

Docs:
Chinese Acupuncturist - #26 on 2nd :white_check_mark: (Sleep & +25% GABA helping.) Still good energy. Session #27 on 30th.

SELF-PHYSIO (click for details): 1h51

:white_check_mark: airing 5x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 20’, massage gun 2x3’, neck 1+ 4x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 0’, belly 0’, back 10’, aloe vera 0x1’, twist-stretch 5x1’, yoga/stretching 5x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: So I've now regularly stopped A4: = PF#4 and GABA #3, still not quite sure if that's OK, but may be. Got, but not yet taking B3 flush free, olive oil extract, fisetin, pure ATP & Alpha GPC = choline alfoscerate. But continuing R-ALA, SAM-e, bulk sodium ascorbate (alkaline vitamine C) & will be B2 (R-5-P) luteolin (when I get round to those). Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/21:30 A1-2A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal -21:00 Gum -
22:30 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
0 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/10:00 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal -11:20 Gum 11:35-
/11:20 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 2-3/wk.
?19:00 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 Meal -17:00 Gum 17:00- 0 DAO (D1) “12:30” 0psyllium
Needed to take GABA quick cos of the seizures.
/15:25 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
?20:00 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd

Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Lessons in self-care #405 Using the energy is OK now, now backlashes.
Lessons in self-care #406 Need to be kind to myself to not be sad, and work even more on my lipids.