2022-09-01, Thursday - Energy 25% / Sleep 85% / Feeling 80-85%-ish
Successes:
Less & spread GABA minimized pee pain! & improved sleep?
So try advance the “2nd” of 4 GABA to 22:00.
Is less GABA nec. cos of less jab effect?
Simple, but hard: To get up at 8 I need to get down before 10.
After 3 foot blemishes better with calendula, 2 face thingies next.
Trying to reduce my esophagus stricture by massaging it suppler (Dr. Berg)
Learnt:
(see ‘research’ below)
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-30%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0
Triggers & resulting Symptoms
SLEEP (click for details): 8h27, up 7x (2h38) ✅ ➔ Feeling 90(80)% well, Ache 1(2) of 7 ✅, getting up: 90%/1 ✅ but not enough, due to still going to bed too late.
cold shower p0 Sleep 23:40-
1:34 28’ 90%/1/10% p1! st1 sip fw23’
3:55 5’ 90%/1/10% p0 st1 sip fw1’
4:23 13’ 90%/1/10% p0 st1 sip fw6’ FCS#2
6:10 10+5’! 90%/1/10% p0 st1 sip fw1’ 6! ear plugs
8:05 5’ 90%/1/10% p0 st1 sip fw1’ left nostril (sore throat)
-8:36 80%/2/20% p0 st1 sip fw8’ FCS#3 B2-4
10:08-8-45 = 37’
stools, TEETH
Sum: 20+10h45-(28+5+13+15+5+1h32+8=)2h38 = 11h05 - 2h38 = 8h27, up 7x (2h38)… drat!
ACTIVITIES (aim: 40% energy) ➔ ACHE: Sleep wonky & too short, under 8h ➔ 80%/3 
, but added a little ➔ 80%/2 
, so then slight esophagus problem after C1-3 supps, but resolved that ➔ 90%/1 , TT & talking 35’ (11:40-12:15) ➔ 90%/3 , resting/videos/work till 13:45 ➔ 90%/1 , another 35’ TT 2:2 at 17:30-18:00 ➔ 80%/4-5, rest & breath-holding ➔ 80%/2 , 25’ meeting ➔ 80%/3 , rest, tired & Achey early, cos of only 8.5h sleep yesterday. ➔ 88%/3-4 .
ACTIONS ➔ PAINS: except: neck GI , esophagus 
, jaw 0x5’’ pee pain greatly improved after reducing GABA from 3x.6 at 20:00, 21:30, 23:00 to 2x.6 at 20:00 and 23:00: 1xp1-2 .
MCAS/HIT-Symptoms/Triggers/Treatments: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. . In the evening I tried 2-3 walnuts and accidentally some mould in a slice of gluten-free bread, now my tongue is burning (left, not tip). Hazelnuts? Tofu?
Fibro & Touch:
Covid-danger:
Weather: Indoors Outdoors .
Treatments
Docs:
Tooth coming up on 6th.
Ought to phone cardio cos of the remaining bloods? Also when the next jab.
Chinese Acupuncturist - #27 on 30th, after 28 days (Sleep helping, trying to reduce GABA again) Still good. Session #28 on 8th.
SELF-PHYSIO (click for details): 2h10
airing 2x2’, cold shower 3x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 30’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’, breath-hold 20’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Playing around with GABA/glutamine dosages & times to see if I can influence the rest pee pain better. Taking 1x B3 flush free since 25th, 2x from 31st (then check homocystein). Got, but not yet taking olive oil extract, fisetin, pure ATP & Alpha GPC = choline alfoscerate. Continuing B2 (R-5-P) when I get round to it. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Aug 31st (31 supps): ALA .2g, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Aug31st (before: see the reference post)
/20:30 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21:00 Gum -
/22:10 A3 “21:00” PF#3 & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
+/23:30 .6GABA#2 & .6glu
B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal -11:30 Gum -
/11:00 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 1/wk.
+/14:45
-14:05 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal - Gum - (D1) “12:30”
/16:00 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/19:00 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
18:00" Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Aug 29th
Pf: 1A1+1A2+1A3, B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)
Development
‘Research’ today: No.
This stuff is all for hiatal hernia, however it don’t think I have that, I just have the esophagus stricture. So I’m just looking to see if there is anything that might fit all the same.
Exercises to move stomach down & breathwork to elongate esophagus & improve elasticity, alkaline beverage cleanse: aloe vera juice, eliminate oils for a month, whole foods plant based, avocadoes, nuts & seeds? (Pam Fox)
Heel drops: jumping with water in stomach Pam Fox again (Pam Fox)
Diaphragmal breathing & torso stretches for hiatal hernia by Doctor Jo Hiatal Hernia Treatments - YouTube
Self dilation therapy with a long tube! (Mayo Clinic) Esophageal Self Dilation Therapy: An Effective Alternative at Mayo Clinic - YouTube, or HCC 1475-38c-Bougie Dilator Self Dilation - YouTube, several examples what it looks like in other videos, don’t think I can manage that! Just watching makes me squeamish. And the anatomy one too.
“New Therapies” for it don’t sound right for me - a stent: New Therapies for Esophageal Stricture - YouTube
Tight and stiff weak muscles hurt to pressure whereas muscles that are strong and supple don’t hurt to pressure What They Don't Tell You About Barefoot Style Shoes... - YouTube. This would explain why foam rollers haven’t worked for me - they are strong, but have been tight and stiff - maybe try again?
Merino wool under wear very good for base layer of clothes for mountain climbing… Cotton bad… Cold Weather Layering Isn't This Simple... is it? - YouTube
Don’t think I shared yesterday finding that the acupuncture between the eyes reduces histamine: Acupuncture can reduce Histamine Levels - YouTube
MCAS Healthmeans summit - Theoharides: Mast cells vary, but are also unique.
1000 secretory granules, each have 50 substances, plus another 50 when activated, so many more than the histamine and leukotrienes we “are dealing with” (focusing on?). Mast cells are our canary in the mines. Perivascular Mast Cells Dynamically Probe Cutaneous Blood Vessels to Capture IgE. Some genetic component, maybe epigenetic or genes that “wake up”.
Mast cells seem to be linked to IgE
If women look too good or talk about all your many symptoms at the same time, doc’s won’t believe them, so tone both down (e.g. 3 main symptoms).
3 other enzymes?
Gene analysis is not expensive any more: for Hereditary Alpha Tryptasemia.
Cholics could be sensitivity to mother milk or other things…
Murphree: MCAS may be triggering FM or the other way round… Trauma reduces plasticity, can’t rebound from stress any more. Cause serotonin, cortisol etc. deal with stress, bankrupted savings account. Nervous system hyper-alert. Vulnerable to stimulation. Triggers, anything that can be stressful, incl. mast cell, food allergies, histamine dominance etc. Difference between CFS and FM: Insomnia, due to serotonin deficiency in FM, CFS have problems waking up, weak immune system, random sore throats, infections. Unusual to have both. Continuum. Serotonin increases pain tolerance, Substance P elevated pain up, serotonin increased squashes substance P. Raising pain threshold back up improves the central sensitisation. That’s why Cymbalta and Savella, but many problems, they don’t make it, they just hang on, like gasoline. That’s why SSRI doesn’t do much. Side effects: depression and pain 
Tryptophan turns into 5-HTP, or 5-HTP itself, combined with B, C & magnesium. That turns up the serotonin.
(Host has FM + CFS + MCAS) 100mg 30’ before bed with sugar that stimulates insulin helps get the serotonin past the BBB. Instead it’d go in your gut instead of brain. (Nervous: butterflies in stomach.) Increase to 300mg. Sublingual melatonin from 3mg to 12mg. Other things for hardcore insomniacs: GABA, kava kava, nacatol(?), elothenin. Unique.
Mitochondria dysfunctional, saturate with vitamins, minerals, amino acids, acitropat acids high dose, not just RDA (even 5000x the amount). Also for the hormones like serotonin, thyroid etc.
Magnesium deficiency, but careful, as laxative. Various nutritional needs. CoQ10. Amino acids blend.
Exercise for mitochondria too. More important than diet.
Cortisol stress for so long, depleted the ability to regulate, adrenal glands don’t manage enough. Ability to navigate stress.
Test yourself. POTS. Adrenal fatigue (sodium / potassium balance) by seeing if pupil adapts quickly when closed.
Uses adrenal cortex of pigs and cows instead of corticosteroids. Rhodiola, ashwagandha, ?panthic acid for adrenal glands.
‘Lack of sleep causes inflammation.’
Digestive issues as cause of FM… Malabsorption. 70% IBS - suggestive of mast cell.Diet. Digesting. Take digestive enzyme.
No iWatch etc. - too much obsessing, “enough” sleep is more important than what kind. RLS magnesium, iron. bissl zäh zum Schluss.
His “Jump Start Protocol”.
Functional docs often put the cart in front of the horse. Only thyroid or heavy metal toxicity is only one path. Start with sleep, raise serotonin level.
Suzanne Gazda: CoV-vaccines change our antibodies, the masks ‘praps alter the immune system too’, but also the inhalation of titanium dioxide and microplastic fibres are problems, the stress of the whole pandemic. I can’t hear her being anti-vaxx or anti-mask like one comment says, just that she sees the problems they are causing, which is realistic.
Evan H. Hirsch about increasing energy: Supps like Murphree’s talk.
Lessons in self-care #413 Keeping a meeting with friends in the evening down to 25’ was perfect.
Reasons to be cheerful #416 Calm in the eye of the storm.
Things I love about myself #93 Resilient. Sort of.
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries