JayCS’s Fibro Blog

Symptoms & Treatments
936

2022-09-03, Saturday - Energy 17% / Sleep 85% / Feeling 70%-ish

Successes: :trophy: taking supps too late caused problems, shows I need 'em. :zap:
Learnt: :student: A bit from 2 further talks, see ‘research’.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20-50%, stiff 15%) + spine-pain 3 (10-20%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (83%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h11, up 4x (33') ✅ ➔ Feeling 80-90% well, Ache 1-2 of 7 ✅, getting up: 70%/3 ❌

cold shower p0? Sleep 22:40- ear plugs
TEETH
? 8’ 90%/1/10% p3? st1 sip fw1’ air
? 9’ 90%/1/10% p1? st1 sip fw1’ air 3h50 stint…
? 6’ 90%/1/10% p0 st1 sip fw1’ air 2h stint I think here was the FCS#2
? 10’ ?80%/?2/?15% ?p0 ?st1 ?sip ?fw1’ air cream gel (nostrils) (sinuses) (sore throat) (stomach nauseous) (ear plugs) FCS A4 B1
-8:29? stools, B2-4
Sum: 1h20+8h29-(8+9+6+10=)33’ = 9h49-33’ = 9h11, up 4x (33’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3 :x:, ➔ music rehearsal 70%/5 :x:, resting most of the day, just grocery 2x10’ and 3x5’ cycling ➔ 80%/3 :x:
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 1xp3 and 1xp2, 17:00 & 18.00 p2 19:10 urge + p1 cos of forgetting the 15:00 GABA. 0xp1-2 :x:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Hazelnuts? Tofu?
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Tooth coming up on 6th. :face_with_monocle:
Ought to phone cardio cos of the remaining bloods?
Chinese Acupuncturist - #27 on 30th, after 28 days :white_check_mark: (Sleep helping, trying to reduce GABA again) Still good. Session #28 on 8th.

SELF-PHYSIO (click for details): 1h40

:white_check_mark: airing 3x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 10’, massage gun 1x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’, breath-hold 2x12’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Playing around with GABA/glutamine dosages & times to see if I can influence the rest pee pain better. Taking 1x B3 flush free since 25th, 2x from 31st (then check homocystein). Got, but not yet taking olive oil extract, fisetin, pure ATP & Alpha GPC = choline alfoscerate. Continuing B2 (R-5-P) when I get round to it. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Aug 31st (31 supps): ALA .2g, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Aug31st (before: see the reference post)
/20:10 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21:00 Gum -
/22:20 A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/09:40 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal -10:30 Gum -
/10:10 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 1/wk.
12:30- C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal 16:25-16:45 Gum - (D1) “12:30”
Forgot it! So after that bladder pain at 17:00 and 18.00 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Aug 29th

Pf: 1A1+1A2+1A3, B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Talk by Hirsch: “Fix Your Fatigue”. 33 causes for fatigue, most people have 20+ of them, but different ones.
Step 1: Assess the causes. 27 of them can be determined by signs and symptoms, 75%, just with a checklist. 25% need the labs.
Step 2: Replace deficiencies (and hormones): adrenal, thyroid (sex hormones,) and mitochondria: support. Boosting with more energy to make lifestyle changes: sleep, food, water, movement. Balancing doses. Neurotransmitters: serotonin, dopamine, GABA etc.
Step 3: Open up the “detox” pathways: Intestines, liver, kidney, lymph (garbage in body), neuro-lymph (garbage system in brain). Free so they don’t close up again when more heavy metals come.
Step 4: Removing the toxicities (heavy metals, like mercury, lead, cadmium, iluminum, chemicals) is stressful on the body. Mold. History. Infections. Mold plus infections, Lyme, …, obesia, EBV, HHV6, CoV, parasites, yeast, bacteria. Immune system gets hijacked. Allergies foods, inhalants, emotional patterns, “adverse life events”, don’t have to be that severe, rejection. Electro-magnetic fields. Deficiencies caused by the toxicities, so Step 2 first.
2 - Deficiencies: Everyone has adrenal &
Bodmilla. Hashimoto / Thyroid. “Scratches” - bordmilla striae. Cold extremities. Mental, emotional sleep issues. Bordmilla quiz. Bobesia (like North American malaria): spontaneous sweating, bad sleep & mood.
Starting with the big 3 deficiencies: adaptogenic for 1) adrenals: eleuthero and rhodiola - often starting topically if not tolerated - herb tinctures. Adrenals. PQQ ALC D-Ribose for mitochondrial support, makes your hormones work better and thyroid and adrenal support. If still low thyroid symptoms. Take a glandular, then overdose a little, then back. Antiinflammatory, antihistamine, lowering cortisol and blood pressure.
3) Detox pathways: Stools daily. If nec. magnesium. Liver, kidney: glutathione, milk thistle. Lymph: moving. (Massage can cause problems if liver & kidney aren’t OK yet.) Insomnia can prevent toxins going from the brain into the body. Melatonin can help. Walk. Lymph process video in course. If lymph is congested more herbs. Liposomal melatonin and good sleep. Sometimes giving things in the mornings is better, big 3 above plus B12, iron, D. If still not liposomal or normal melatonin, passiflora, theanine, amino acids. If still: then infections, mould.
4) If struggling while getting rid of toxicities, back to step 3, pathways aren’t clear enough. Bebesia, Bartnella, mould etc. might influence dormant portions of the other. So a little bit of everything. Microtoxins - Great Plains Lab Dr. Shaw lectures.
Mental / emotional.
I was thinking of booking in with him, but looking at good reviews here, however then terrible here I’m now no longer at all sure.
MD and health coach: all natural: Herbs, vitamins, minerals, products.