2022-10-01, Saturday - Energy 10-12% / Sleep 90% / Feeling 80-85-90%-ish
Yesterday: Feeling 75% → 65%, “depression” 1 (30%), + 1 breath-hold. Ache 25-35% stiff 10% spine 20% shoulder 1 (20%) → 12 of 19, fog 15 GI 15, depression 1 (30%).
By asking if I hadn’t tolerated the chemical bit of the dental treatment a mate reminded me that I by far hadn’t recovered from the 1st treatment (could hardly manage 2 TT games) when I got the 2nd done, so this isn’t the backlash from the 20th, it’s mainly the backlash from the 6th Sep. Also my cardio is right that it’s too early to get the jab if I haven’t recovered from these, that was always my principle. Also it may be a combination with the phosphorus deficiency
Feeling ‘down’ Friday evening, maybe the Ache getting too me. But ‘up’ Saturday, maybe the Phosphorus increasing
Very symbolical action all day looking into a dark grey sky to find the sun and actually it then came thru quite a lot, a running streak, invisible to everyone but those who seek.
Successes:
Mozzarrella seems to be helping for energy. Very tasty “supp”
Now keeping bedclothes over hot water bottle when I get up.
Learnt: The med/supp CDCA doesn’t seem worth pursuing.
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20-30%, stiff 15%) + spine-pain 3 (20%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90-88%), insomnia 3 (10%), fog 2 (10%), headache 0, GI 1 (10%), depression 0
Triggers & resulting Symptoms
SLEEP (click for details): 9h38, up 4x (54'), 8h deep ✅ ➔ Feeling 90-70% well, Ache 1-3 of 7 🧐/✅, getting up: 80%/2 ✅. Nostrils 20-15% stuffy 20% of the night.
cold shower p0 Sleep 22:40- Why not 21:45? Cos of pain, ordering supps. HWB air. ear plugs.
0:05 30’ 70%/3/15% p0 st1 sip fw1’ deep air 0:35 A4 2x cream
2:10 6’ 90%/2/15% p0 st1 sip fw3’ deep air sore throat/calendula 6
3:20 12’ 70%/2/20% p0 st1 sip fw1’ deep mumijo twists3’ FCS#2.
6:00 6’ 80%/1/15% p0 st1 sip fw1’ deep air nostril 20% HWB (lost ear plug) ear plugs out?
-9:12 90%/1/15% p0 st1 doze nostril 15%
9:20 B2-4 5’ in “sun” (rain), stools loose
Sum: 1h20+9:12-(30+6+12+6=)54’ = 10h32-54 = 9h38, up 4x (54’), 8h deep.
ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2 , self-discipline ➔ ?80%/?3
?? TT, cycle, mask, work, kids,
ACTIONS ➔ PAINS: except: neck ?, GI ?, esophagus ?, jaw x5’’ ?, pee pain: 0xp1-2 ?
(lie, sit, stand, arms up, cycle, walk, mask??)
MCAS/HIT-Symptoms/Triggers/Treatments: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. . Tofu?
Fibro & Touch:
Covid-danger:
Weather: Indoors Outdoors .
Treatments
Docs:
Dentist again on 20th after treatment on 6th brought energy down for 8+ days… Pain down in a few hours this time (but only due to strict rest), however energy again down to 5-10%.
Chinese Acupuncturist - #29 on 10th, after 14 days Still good - would be 20-25% energy if it weren’t for the tooth treatments. Session #30 on 7th.
SELF-PHYSIO (click for details): 2h44. Lots of sun, every bit I could get despite it being a rainy day. Need to double back exercises again for some reason, praps sitting slouched too long Thursday (café) and Friday?
airing 5x2’, cold shower 2x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 2x3’, breath exercises 3x1’, Timing, hunchback-pillow 10’, Y. Nidra 10’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 25’, !!aloe vera 0x1’, twist-stretch 1x1’, yoga/stretching 1x1’, sun 6x5’, rainy sky 4x5’, daylight light 3x5’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps Sep 20th (34 supps): Supp costs:~389€/m (Sep 20th) CHANGED 27th: Glutathione is OK now. Because of headaches I've reduced the flushing B3 to 3x150mg and keeping it there for 2 weeks before progressing. Since my B2 was down in the bloods I won't be halving from the 24th on, I'll be increasing now. Praps trying ATP again, encapsulated, since my phosphate is under the minimum. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 20th (34 supps): ALA .2g, alpha-GPC 1x150mg, B2 1x100mg, not going down to 50mg, B3/Nia 3x150g & B3 flush free 2x400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 0x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/19:15 “18:45” myo-inositol (even evenings) + teeth
/20:00 300mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21:
/22:20 “21:00” agigenin 1h before bedtime + teeth
/22:10 300mg GABA A3 “21:45” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/0:35 “23:00” 300mg GABA + teeth
/3:20 “4:00” mumijo
/09:20 B2-4 5’ in sun “07:00” +ALA+ now 2x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin + (B1:)1x50mgB2 (100mg for 2 weeks)
10’ in sun Meal 9:50-10:10:
/10:05 5’ in sun C1-3 “MEAL!” 2Cr#2 .6GABA#4, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/10:10 glutathion
/11:10 Teeth
/12:20 C4 + Teeth “11:00” (+2h/) gi#2 1 Ellagic acid#1
/-15:20 Meal (D1) “12:30”
/15:15 D2/3 5’ in rain “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/15:20 glutathion
5’ sun
/16:30 teeth
/18:45 5’ in sun D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Sep 20th
Pf: 1A1+1A2+1A3, alpha GPC:C2. B3ff: C3,D3. B3f: A2,C3,D3. C:C3+D3 3x2Cr: A1+C1+D2, Ell: C4+D4. 4-5xGa: a2,a3,a4,C1,D2, Glutamin: A3,c1 Glutathione: C2,D2. Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+1Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B1:B2,Fis.B2: ALA+2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+Ru. (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)
Development
‘Research’ today:
Good page about flushing/facial redness: Facial Redness | Causes & How to Treat Redness on Face.
LDN prescription: What's the difference starting with 0.5mg of getting a) 0.5mg and 1mg capsules of LDN to b) getting 0.5mg and 1.5mg? The second is 147 cps. rather than 175, explains why this was recommended.
a) Week1 7x0.5, w2, 7x1, wk3 7x1+7x.5, wk4 7x2x1, wk5 7x2x1+7x0.5, wk6 7x3x1, wk7 7x3x1+7x0.5, wk8 7x4x1, wk9 7x4x1+7x0.5 = 4.5mg. = (7+7+7+7+7)x0.5 (that’s in weeks 1, 3, 5, 7 and 9) + (7+7+7x2+7x2+7x3+7x3+7x4+7x4)x1 = 7x5x0.5+7x20x1 = 35 0.5mg capsules and 140 1mg capsules = 175 cps.
b) Week1 7x0.5, Week2 7x2x0.5, wk3 7x1.5, wk4 wk4 7x1x1.5+7x0.5, wk5 7x1x1.5+7x2x0.5, wk6 7x2x1.5, wk7 7x2x1.5+7x0.5, wk8 7x2x1.5+7x2x0.5 wk9 7x3x1.5 = 4.5mg. = (7+7x2+7+7x2+7+7x2)x0.5 (that’s in weeks 1, 2, 4, 5, 7, 8) + (7+7+7+7x2+7x2+7x2+7x3)x1.5 = 9x7x0.5+12x7x1 = 63 0.5mg capsules and 84 1.5mg capsules = 147 cps.
Just came across a question for me here by @Freedom in January which had eluded me, asking if I’d tried LDN… Esp. pertinent at the moment, and seeing I’d linked to some Danish studies there I looked if these had been cited anywhere else, and sure enough, there is a Spanish “INNOVA” study announced 2022: Study protocol for a randomised, double-blinded, placebo-controlled phase III trial examining the add-on efficacy, cost-utility and neurobiological effects of low-dose naltrexone (LDN) in patients with fibromyalgia (INNOVA study) - PubMed
Researching CDCA I’ve now found it’s only prescribed for a certain genetic condition here, announced as new 2017. So a route that’ll be strenuous to follow…
Lessons in self-care #440 Making use of increased energy, but not too much!
Reasons to be cheerful #441 Lots of small ideas. Less down.
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries