JayCS’s Fibro Blog

Symptoms & Treatments
974

2022-10-11, Tuesday - Energy 18-15% / Sleep 80% / Feeling 80%-ish

Not sure why energy’s down, I think too little sleep, several times under 9h…

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20-50%, stiff 15%) + spine-pain 3 (10-20%), shoulder-girdles/hips 1 (10%) chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (82-85%), insomnia 3 (20%), fog 2 (15%), headache 0, GI 1 (?20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h41, up 6x (1h08), 6.5h deep, AYN 3x10'+30'. 🧐 ➔ Feeling 80-90% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅. Nostrils 20% stuffy 20% of the night, tough beginning, need to tone down the evenings...

teeth cold shower p0 Sleep A3 23:20- Why not 21:45? Deep topic too late. And took supps too late too. Need to get back to aiming at 18:00… Then still churned up from loads of topics, but also not tired from not taking supps early enough. So needed to start off with A’sYoNi another 15’ later
23:35 8’ 90%/1/10% p0 st1 sip fw1’ deep air dozing → A’sYoNi & HWB - worked soon again.
0:43 8’ 80%/1/10% p0 st1 sip fw1’ deep, YoNi worked soon again, maybe 10’! dry/gel
GOOD JOKE: HOW COME I WAS UP 20’ LATER THEN!?
1:09 16’ 80%/1/10% p0 st1 sip fw1’ deep air LBU/gun (why?), dry/cream. A4 FCS#2 AYN 10’
3:23 6’ 90%/1/10% p0 st1 sip fw1’ deep air mumijo AYN 10’
5:35 25’ 90%/1/10% p0 st1 sip fw1’ deep air 6 AYN
7:25 5’ 90%/1/10% p0 st1 sip fw1’ deep air calf cramp/stretch drink stomach, nostrils
ear plugs AYN: doze
-9:09 B2-4 ’ in sun, stools firm?
Sum: 40+9h09-(8+8+16+6+25+5=)68 = 9h49-1h08 = 8h41, up 6x (1h08), 6.5h deep, AYN 3x10’+30’.

ACTIVITIES (aim: 40% energy) ➔ ACHE: 90%/1, TT 3:1 ➔ 70%/5 at 12:45 :x:, maybe from the slight sleep deficiency? 14:30 still 70%/4, 18:15 still 70%/3 :x:.
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:, GI: wind much less from just some peas, confirms it’s probably the white beans :white_check_mark:, esophagus :white_check_mark:, jaw 2x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Chinese Acupuncturist - Session #30 on 7th, after 14 days :white_check_mark: Still good: 20-25% energy now I’ve recovered from the tooth treatments & the phosphate deficiency! Session #31 on 14th.

SELF-PHYSIO (click for details): 3h, esp. 80' Yo Ni

:white_check_mark: airing 4x2’, cold shower 2x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 4’, Y. Nidra 80’, massage gun 2x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 3x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 2x1’, yoga/stretching 2x1’, sun 6x5’, rainy sky x5’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Oct 3rd (46 supps since mid-Sept): Supp costs:~394€/m (Oct 2nd, checked several prices). CHANGED 1st: Increased carnitine to 4g/d for lipids, esp. triglycerides. Flushing B3 at 3x150mg for another while before increasing. B2 increased, see if the next bloods are OK. Praps trying ATP again, encapsulated, since my phosphate is deficient. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, Cu, NAC 1*.5g, Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Oct 2nd (46 supps, all new and re-visited ones now counted): ALA .2g, alpha-GPC 1x150mg, apigenin 1x50mg, B2 2x100mg, not going down to 50mg, B3/Nia 3x150g & B3 flush free 2x400mg, B12 0x5mg/4m, C 2x.5g, Cr 8x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo “0.6g”, monk’s fruit 0.1g, mumijo 1x0.2g, myo-inositol 1x1g/2d, NADH 1x, olive leaf extract 2x.75, P5P 0x27mg, PEA 1x0.4g Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Oct 3rd
19:30 “18:45” myo-inositol (even evenings) + teeth
21:45! “19:00” A1/2 PF#1+2 1x300mg GABA Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & Qc#1. Meal: 1xHon. monk’s fruit. CoQ10.
Meal -21:30
/23:10 “21:00” pre-A3 agigenin 1h before bedtime + teeth
/23:35 “21:45” A3 PF#3 300mg GABA & .6glu & 1Lut (slp!) & Qc#2 1xHon + mag threo. 0 Rupafin.
/1:20 “23:00” A4 300mg GABA + teeth
/3:30 “4:00” A5 mumijo
/9:30 B1-4 ’ in sun “07:00” ALA, 2x pine, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 2xNADH.+Rut.
Meal 20’ in sun 9:30-10:00 Teeth
/10:10 5’ in sun C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 (actually 100mg for 2 weeks, then 50mg, but I haven’t got much…). 2x eleuthero. 1x hup. OlivLeaf#1
“after muesli” C5 glutathion
/14:45 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
-15:45 “14:00” 0 Meal 30’ in sun
/15:45 “14:15” D2/3 ’ in sun .5gC#2 , 3!Cr#3, .6GABA#5, gink#3 OlivLeaf#2
/15:45 “after lunch” D3+ glutathion
teeth
/18:15 2’ in sun D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Oct 3rd

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3f-f: C3,D3. B3f: A2,C3,D3. C:C3+D3 8Cr: 2A1+3C1+3D2, Ell: D1(ex-C4)+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D1 (ex-C4),D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2: 2x mag mal. 0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). A3: Luteolin. mag threo. A5: mumi. B1:Fis.B2: ALA+2 pine+2NADH B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia. C2:0Cu/Zn 2Gly C3:PEA+Ru+vitB2, (A2:Ω/Pq:meal, A3: apigenin) DAO before risky meals? monk’s fruit usually evenings. D3 1x/wk. myo-inositol 1x/2d.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #449 Worse today, need to be careful now & tomorrow.