JayCS’s Fibro Blog

[JayCS]

Thanks Jmarie! Yeah, we need to know how to pace, and where our limits are, but we need to distinguish where we can push thru without too much of a setback/backlash, and where we can’t. And adjust how we do those things that cause backlash differently, so we can reduce it further.
Not sure about “giving in to a diagnosis” - a diagnosis is of course only a doc’s label we can use to connect with and sharing/learning from others, or occasionally help with getting aid. But behind that diagnosis is a certain severity of symptoms. And if like me we have 4-5 main “diagnoses” or “conditions”, all severe, then we have no choice but to listen to our bodies and adjust, pace, keep to our bodies limits. Some people see “fibro” as an enemy they need to fight and not give in to. I absolutely don’t, fibro is a pretty self-evident name showing that our body is overtaxed and needs consideration and respect.
But like I wouldn’t call that “giving in” either tho, because we are continuing as best we can, with other means than before, we can still be happy and have quality of life.
I do think in a certain sense we can “heal” this, but only by not letting it get the better of us, i.e. remaining strong inside. Despite researching, trialling every treatment that my possibly can mange for full working weeks for several years now, and having to keep up >100 treatments every single day (no way anyone could have done more or done it better) - I maybe unravelling some secrets, but many things I try have almost as much downsides as upsides, so I see absolutely no chance to improve much more, if that’s what you mean, aside from 100% quality of life and 100% happiness, at least in my own opinion. That’s what I definitely ‘can’, not physical healing. Apart from that I’m with the Serenity Prayer: developing the wisdom to see what can’t be changed and what can. Life comes with certain things that are set - like physical death. The only ways around that fact are belief and attitude. And a Christian I do believe that Love, Goodness and Life goes on in a certain hard to define way. But I know my main conditions fibromyalgia, MCAS, genetically high lipids and Schatzki ring, in their severity and interaction as well as many other symptoms that plain come with my body from birth, are too complex for humans to physically cure/heal them inside the next 30 years in a way that can allow me to be like I was before, be fully active 10+ hours a day instead of only a few. And it doesn’t help me to believe this will be the case, it helps me to know I can manage and manouvre this well, as I am.
You may mean the same, I’m just clarifying. Or you may mean something different, then I’m saying: I’m different… - each to their own…

So definitely thanks for you encouragement, and I do wish your belief in the healing will carry and strengthen all your endeavours till you are healed in some kind of way that makes you happy, if you aren’t there already.

Pain, stiffness, lack of sleep and flu symptoms are things that can no longer touch me, hardly cause any problems - I just need to take their severity into account with what I do - I hope that’s the same for you. What do you do with the pain, can you mentally put it into its place while resting till your muscles recover, too?
(Whining cos of bladder pain for 2 weeks now wasn’t a problem for me (was for my wife tho…), but it was still good to now remember and try to up my GABA every time it starts up again now, which is working a treat - with a few side effects…)

Edit: My wife shares your belief in healing. At the same time she catastrophizes and worries. Are these two sides of the same coin? Cos reality puts the belief in doubt so much?

[JayCS]

2023-03-24, Friday - Energy = ? - again far beyond the very low point of physical exhausion 90% all day, from start to finish, feverish Ache - but still pushed thru usually very slowly, sometimes something strenuous. Bed earlier.

Sleep 90% / Feeling 85%-ish / nausea 0%, fog 10%
Successes:
I can only influence cough phlegm by keeping or getting my feet warm.
apart from that I can only ty to blow my nose and swallow more .

New Habits: Click for details of what I'm working on. Mar 24th: taking out "leg stretches" and "cold foods out of fridge" as that's OK at the moment, so down from 6 to 4. Mar 16th: At a certain time, starting with 19:00 "a gate comes down" and I'm not allowed back into the web unless I first: take evenings supps, prepare supps, eat, take all my alarms seriously, get my blog finished. Last change Mar 3rd.

At X = 19:00 a self-care gate comes down curbing further web work. ()
Bed 23:30-8:30/9:00.()
Gulp supps better, and a gulp after carrots. (). Careful with chocolate!
Note thoughts and emotions (ACT) ()
More leg stretches. ()
Cold foods out of fridge 2h earlier than eating. ()

Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +1 = 10 = headache in evening? Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (80%), insomnia 3 (10%), fog 2 (?10%), headache 0 (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 6h46, up 4x (28'), all deep ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/1 ✅. Left blackout blinds up tonight, didn't disturb me at all. I was tired at 23:50 and should have gone to bed then instead of an hour later. I'll try to use morning daylight tonight by keeping the blackout blinds up, see what the achieves. Nostrils 0-10% stuffy 100% of the night. Changed basic stiffness to st3 = 30%.

A3 A4 teeth0 cold shower/ p0 Sleep 1:10- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
1:53 6’ 50%/3/15% p0 st3 sip fw1’ cough90%: couldn’t take in breath thru mouth, too stuck up. deep/ air/ A5 plugs0 cream0 gel0 HWB#1
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
2:55 6’ 50%/3/15% p0 st3 sip fw1’ cough20% better from the HWB, deep/ air/ A6 plugs0 cream0 gel0 HWB#1
(nostril/s20/0% (HWB) sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%) left tongue hurt histamine-type, have to think what can have caused that. Praps tea trea salve on it, praps it’s actually local?
4:10 6’ 70%/3/15% p0 st3 sip fw1’ cough10% better from the HWB, deep/ air/ A7:0 plugs0 cream1 gel0 HWB#1 damp, one sleeve wet, so changed bedclothes and less this time.
(nostril/s20/0% (HWB) sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%) left tongue: tea tree salve/.
6:10 10’ 70%/3/15% p0 st3 sip fw1’ cough20% better from the HWB, deep/ air/ A7/ plugs0 cream1 gel0 HWB#1 damp.
(nostril/s20/0% (HWB) sinuses10% headache0% sore throat10%, nausea10% stomach20% stools0 loose%) left tongue: tea tree salve/.
-8:34 9:05 B1-4 ‘ in sun, stools loose%
Sum: 8h34-1h10-(6+6+6+10=)28 = 7h14-28 = 6h46, up 4x (28’), all deep

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3, moving ➔ 70%/3
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite better from going back to pure veggies (), esophagus: carrots extra works, careful with chocolate! , pee pain: 5xp1-2 , lower back unrest , finger tips: better. (). Lips still better since tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Jan 14th & 15th, last esophagus block Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Mar 9th: Tea tree oil in paraffin cream has stopped my lips hurting, chapping & bleeding, so some fungus, like foot, maybe from low WBC. Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms since early March. T4 for thyroid, starting Feb 24th, varying, around small specks of ~0.8µg (2 weeks for half a 25µg tablet). Feb 7th: biotin and manganese too high, so unnecessary, Ω3 much too low. Not re-starting any expert physio.

The anti-sore cream didn’t work that well, so tried GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, successful. (Right foot needs tea tree oil too.)
GP prescribed T4 Feb 23rd to try. Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 84'

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft 4x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 3x3’, daylight lamp/sun 6x5’, plantar/calf stretch 3x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, Tuesday evening 9x0.3=2.7g(+2*0.6,=3,9g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
EVENING TOO LATE, REST OK.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #614 Good balance, once much too much, but recovered quick, cleaning roof gutter for half an hour.
Reasons to be cheerful #657 Bought lots of flower seeds, something I was yearning for, everything prepared for it.
Simplified #63 Just go to bed. Just go.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure.

[JayCS]

2023-03-25, Saturday - Energy ? vs. exhaustion … 90%?

Getting a hold on the new symptoms:
Cough with hot water bottle on feet, esp. at night.
Hot flashes / night sweats with reducing to a T-shirt, like in summer.
Bladder pain and urge with still quite increased GABA.
More insomnia and lack of appetite by reducing T4 -
don’t feel the need to increase energy by using it, and I’m not sure if it reduces the exhaustion, may do, could try again soon, but only 1% of a pill once.

Sleep 90% / Feeling 75%-ish / nausea 0%, fog 10%

New Habits: Click for details of what I'm working on. Mar 24th: taking out "leg stretches" and "cold foods out of fridge" as that's OK at the moment, so down from 6 to 4. Mar 16th: At a certain time, starting with 19:00 "a gate comes down" and I'm not allowed back into the web unless I first: take evenings supps, prepare supps, eat, take all my alarms seriously, get my blog finished. Last change Mar 3rd.

At X = 19:00 a self-care gate comes down curbing further web work. ()
Bed 23:30-8:30/9:00. (, but better, an hour earlier)
Gulp supps better, and a gulp after carrots. ()
Note thoughts and emotions (ACT) ()
More leg stretches. ()
Cold foods out of fridge 2h earlier than eating. ()

Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +0 = 9 = no headache Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (?10%, stiff ?30%) + spine-pain 3 (?10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (?80%), insomnia 3 (?10%), fog 2 (?10%), headache 0 (?0%), GI 1 (?10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 7h36, up 4x (33'), all deep, with hot water bottle on feet for the phlegm, taking continually more bed clothes off till I wasn't wet any more. So tonight starting that way. Also experimenting with leaving blackout blinds open in the morning to try to get my circadian rhythm better quicker, not sure about that. I just need to go to bed earlier. For that I'm trying to write these entries earlier in the day, instead of last thing, like I'm writing this first thing. ✅ ➔ Feeling 70% well, Ache 3 of 7 ❌, getting up: 80%/3 ❌. Nostrils 0-10% stuffy 100% of the night. Changed basic stiffness to st3 = 30%.

A3 A4 teeth0!!! cold shower0 p0 HWB#1 cream2x Sleep 0:45- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
2:10 5’ 70%/3/15% p0 st3 sip fw1’ cough30 deep/ air/ A5 plugs cream/ gel0 Wet from HWB#1: clothes change. Left tongue hurts from histamine after beans the other day.
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
3:45 5’ 70%/3/15% p0 st3 sip fw1’ cough20 deep/ air/ A6 plugs cream/ gel0 Less clothes: better. Tongue50%.
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
5:15 12’ 70%/3/15% p0 st3 sip fw1’ cough20 deep/ air/ A7 plugs cream/ gel/ From HWB on feet, for phlegm, most of the night: still/again wet thru. Tongue50%.
(nostril/s0% sinuses0% headache0% sore throat10%, nausea0% stomach0% stools0 loose%)
7:13 11’ 70%/3/15% p0 st3 sip fw1’ cough20 deep/ air/ A8:0 (unnec?) plugs cream/ gel0 From HWB on feet, for phlegm, but now no pyjama trousers on, just a T-shirt was fine, not damp. Opened blackout blinds to get more early light Tongue20%.
(nostril/s5/0% sinuses0% headache0% sore throat10%, nausea0% stomach0% stools loose0%)
-8:54 B1-4 ‘ in sun, 80%/3/15% p0 st3 sip fw1’ cough20 deep/ air/ A8:0 (unnec?) plugs cream/ gel0 HWB on feet, for phlegm, but now no pyjama trousers on, just a T-shirt was fine, not damp, but towards the end stuffy right nostril (so does the phlegm - praps from histamine? - then stay up top more?). Blackout blinds open was no problem. Tongue20%.
(nostril/s5/0% sinuses0% headache0% sore throat10%, nausea0% stomach0% stools loose0%)
Sum: 8h54-45-(5+5+12+11=)33 = 8h09-33 = 7h36, up 4x (33’), all deep, with hot water bottle on feet for the phlegm, taking continually more bed clothes off till I wasn’t wet any more. So tonight starting that way. Also experimenting with leaving blackout blinds open in the morning to try to get my circadian rhythm better quicker, not sure about that. I just need to go to bed earlier. For that I’m trying to write these entries earlier in the day, instead of last thing, like I’m writing this first thing.

ACTIVITIES (aim: 40% energy) ➔ ACHE: 85%/1, stools ➔ 85%/1 , ➔ TT ?:0 (picking up 0? balls) ➔ 85%/2 , moving ➔ 85%/2 .
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite better using various combinations and ignoring diets a little (), esophagus: carrots extra works, supps and chocolate I need to watch out for , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still better since tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Jan 14th & 15th, last esophagus block Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Mar 9th: Tea tree oil in paraffin cream has stopped my lips hurting, chapping & bleeding, so some fungus, like foot, maybe from low WBC. Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms since early March. T4 for thyroid, starting Feb 24th, varying, around small specks of ~0.8µg (2 weeks for half a 25µg tablet). Feb 7th: biotin and manganese too high, so unnecessary, Ω3 much too low. Not re-starting any expert physio.

The anti-sore cream didn’t work that well, so tried GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, successful. (Right foot needs tea tree oil too.)
GP prescribed T4 Feb 23rd to try. Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 85'

white_check_mark: airing 5x2’, cold shower 0x(10’), cream/oil fc/ey/hd/ft 4x1’, teeth 1x2’, HWB 3x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 4x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, Tuesday evening 9x0.3=2.7g(+2*0.6,=3,9g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
EVENING WENT OUT OF CONTROL DUE TO BEING OUT TOO LONG TO HELP SOMEONE.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #615 My wife wished for me to accompany her to help someone, cos she was feeling tired too, but I didn’t do much and agreed to going by car, which was a high emotional strain, but better “physically”.
Reasons to be cheerful #658 Good helping, good gardening.
Simplified #64 Using easy tricks in the garden to attract attention.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-03-26, Sunday - Energy “20%” or more

Sleep 90% / Feeling 85%-ish / nausea 0%, fog 10%

New Habits: Click for details of what I'm working on. Mar 24th: taking out "leg stretches" and "cold foods out of fridge" as that's OK at the moment, so down from 6 to 4. Mar 16th: At a certain time, starting with 19:00 "a gate comes down" and I'm not allowed back into the web unless I first: take evenings supps, prepare supps, eat, take all my alarms seriously, get my blog finished. Last change Mar 3rd.

At X = 19:00 a self-care gate comes down curbing further web work. (/)
Bed 23:30-8:30/9:00. (/)
Gulp supps better, and a gulp after carrots. (/)
Note thoughts and emotions (ACT) /()

Today's FM symptoms unchanged from WPI 11 & SSS 9. Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-30%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (“80%”), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 7h48, up 6x (40'), all deep ✅ ➔ Feeling ?80% well, Ache 2? of 7 ✅, getting up: ?80%/1 ✅. Nostrils ?20% stuffy ?20% of the night. Changed basic stiffness to st3 = 30%.

A3 teeth/ cold shower:half p0 HWB#1 Sleep 1:05- Why not 21:00? 3rd # is LBU. Did manage not to work thru inspire, but shouldn’t have done as much on ff.
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
3:25 6’ 80%/2/15% p0 st3 sip fw2’ cough10% deep100% air/ A5 plugs0 cream/ gel/, bit damp, so took pyjama trousers off.
(nostril/s10/0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%, tongue30%)
3:53 5’ 80%/2/15% p0 st3 sip fw2’ cough10% deep30% air/ A6:0 plugs0 cream0 gel0, no pyjama trousers may be working, now YoNi for deeper sleep?
(nostril/s0/0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%, tongue20%) chatterbrain80% cos of garden, I think moss. Let’s see if concentrating on the internal pictures will do as YoNi or I need to think alternate images.
5:00 5’ 80%/2/15% p0 st3 sip fw2’ cough10% deep80% air/ +A6 plugs0 cream/ gel/, no pyjama trousers, YoNi?
(nostril/s0/q0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%, tongue30%) chatterbrain20%, using moss imagery was OK, bit difficult as thought.
6:40 5’ 80%/2/15% p0 st3 sip fw2’ cough10% deep100% air/ +A7 plugs0 cream/ gel/, no pyjama trousers, but still wet T-shirt, new, put thicker duvet back down to my feet again.
(nostril/s0/q0% sinuses0% headache0% sore throat0%, nausea0% stomach20% stools0 loose%, tongue30%) chatterbrain10%.
7.23 7’ 80%/2/15% p0 st3 sip fw2’ cough10% deep100% (but still a litle taut from garden thoughts) air/ A8 (cos of sinuses etc.) plugs0 cream/ gel/, thick duvet down helped.
(nostril/s0/q0% sinuses10% headache10% sore throat0%, nausea10% stomach20% stools0 loose%, tongue20%, dry mouth gel helping!) chatterbrain10%.
8:20 12’ 80%/2/15% p0 st3 sip fw2’ cough10% deep100% air/ B? plugs0 cream/ gel/, thick duvet helped. HWB#2
(nostril/s0/q0% sinuses10% headache10% sore throat0%, nausea10% stomach30% stools0 loose%, tongue10%: dry mouth gel) chatterbrain10%.
-9:33 B1-4 ‘ in sun, stools loose%
Sum: 9h33-1h05-(6+5+5+5+7+12=)40 = 8h28-40 = 7h48, up 6x (40’), all deep

ACTIVITIES (aim: 40% energy) ➔ ACHE: 85%/2, gardening ➔ 85%/2-4 .
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite slowly increasing (), esophagus: carrots extra works , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still needing tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Jan 14th & 15th, last esophagus block Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Mar 9th: Tea tree oil in paraffin cream has stopped my lips hurting, chapping & bleeding, so some fungus, like foot, maybe from low WBC. Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms since early March. T4 for thyroid, starting Feb 24th, varying, around small specks of ~0.8µg (2 weeks for half a 25µg tablet). Feb 7th: biotin and manganese too high, so unnecessary, Ω3 much too low. Not re-starting any expert physio.

The anti-sore cream didn’t work that well, so tried GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, successful. (Right foot needs tea tree oil too.)
GP prescribed T4 Feb 23rd to try. Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 70'?

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft 5x1’, teeth 1x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 1’, back 7’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, Tuesday evening 9x0.3=2.7g(+2*0.6,=3,9g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
OK-ISH, EVENING LATE
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #616 Still keeping toned down.
Reasons to be cheerful #659 Website etc. progress
Simplified #65 De-cluttering for more room everywhere I move.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-03-27, Monday - Energy “50%”? = of 16h - resistance seemed to give way, I could push thru and push thru, with short breaks and carrying pretty heavy stuff (garden plants) for short times.

Sleep 90% / Feeling 70-85%-ish / nausea 0%, fog 10%

New Habits: Click for details of what I'm working on. Mar 24th: taking out "leg stretches" and "cold foods out of fridge" as that's OK at the moment, so down from 6 to 4. Mar 16th: At a certain time, starting with 19:00 "a gate comes down" and I'm not allowed back into the web unless I first: take evenings supps, prepare supps, eat, take all my alarms seriously, get my blog finished. Last change Mar 3rd.

At X = 19:00 a self-care gate comes down curbing further web work. ()
Bed 23:30-8:30/9:00. ()
Gulp supps better, and a gulp after carrots. ()
Note thoughts and emotions (ACT) ()
More leg stretches. ()
Cold foods out of fridge 2h earlier than eating. ()

Today's FM symptoms unchanged from WPI 11 & SSS 9. Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (“80%” - pushed thru slowly, and resistance seemed to give way, so sort of only 50%), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 8h21, up 6x (1h09), deep - the 44' break was due to a severe laptop problem ✅ ➔ Feeling 60% well, Ache 4 of 7 :x:, getting up: 70%/3 :x:. Nostrils 0% stuffy 100% of the night. Changed basic stiffness to st3 = 30%.

A3:0 teeth0 cold shower0 p2 HWB1 Sleep 22:40- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
23:00 5’ 60%/4/15% p0 st3 sip fw1’ cough doze air0 A3 plugs0 cream gel HWB#
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
23:45 5’ 60%/4/15% p0 st3 sip fw1’ cough deep air A4 plugs cream gel HWB# wet: change.
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
0:25 5’ 60%/4/15% p0 st3 sip fw1’ cough deep/ air/ A5:0 plugs0 cream/ gel HWB#2:0 damp: change
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
1:10 5’ 60%/4/15% p0 st3 sip fw1’ cough deep air A5 plugs cream gel HWB# wet: change (incl. pants)
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%, tongue20%)
3:08 44’ laptop keyboard problem 60%/4/15% p0 st3 sip fw1’ cough deep air A7 plugs cream gel HWB#3? wet: change (incl. pants)
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0->20% stools0 loose%, tongue20%)
7:05 5’ 70%/3/15% p0 st3 sip fw1’ cough10% deep100% air/ A8:0 plugs cream gel HWB#4? damp: no change
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%, tongue10%)
-9:10 B1-4 ‘ in sun, stools loose%
Sum: 9h10+1h20-(5+5+5+5+44+5=)69 = 10h30-1h09 = 8h21, up 6x (1h09), deep - the 44’ break was due to a severe laptop problem

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, gardening ➔ 85%/2-4 .
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite better from going back to pure veggies (), esophagus: carrots extra works , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still better since tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Jan 14th & 15th, last esophagus block Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Mar 9th: Tea tree oil in paraffin cream has stopped my lips hurting, chapping & bleeding, so some fungus, like foot, maybe from low WBC. Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms since early March. T4 for thyroid, starting Feb 24th, varying, around small specks of ~0.8µg (2 weeks for half a 25µg tablet). Feb 7th: biotin and manganese too high, so unnecessary, Ω3 much too low. Not re-starting any expert physio.

The anti-sore cream didn’t work that well, so tried GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, successful. (Right foot needs tea tree oil too.)
GP prescribed T4 Feb 23rd to try. Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 81'

white_check_mark: airing 5x2’, cold shower 0x(10’), cream/oil fc/ey/hd/ft 5x1’, teeth 0x2’, HWB 4x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 1x3’, daylight lamp/sun 6x5’, plantar/calf stretch 3x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, Tuesday evening 9x0.3=2.7g(+2*0.6,=3,9g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
OK-ISH
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #617 My wife is angry at me. She says it’s because I haven’t been self-caring today, I’ve been doing too much in the garden and this is making my cough worse, because I’m cold. It’s true I did a lot today, probably too much, not as many breaks as I should have, but I kept the strain of each activity down, made sure I was warm all the time, except in a break once, sitting in the sun, but also a bit in the wind, so that wasn’t long.
Reasons to be cheerful #660 The garden is really getting lush now from all the collected dry wood used to clad lots of ugly places and then anything anyone’s cut off that’s blossoming I put over that as dummies and sparkles and flashes of light (contrast to the dry wood), more moss too.
Simplified #66 Taking all the supps and food I need down in the garden is working quite well. The movement helps - but it also distracts a bit…

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-03-28, Tuesday - Potential energy again far beyond the exhaustion that outbrakes it.

Reminder: Since “non-CoV” I still have a stubborn cough, night sweats, strong pee problems (improved from GABA) and again (but improving) less appetite. Stopping T4 has not helped these, but it has also not curbed the high potential energy.
Sleep 90% / Feeling 85%-ish / nausea 0%, fog 10%

New Habits: Click for details of what I'm working on. Mar 24th: taking out "leg stretches" and "cold foods out of fridge" as that's OK at the moment, so down from 6 to 4. Mar 16th: At a certain time, starting with 19:00 "a gate comes down" and I'm not allowed back into the web unless I first: take evenings supps, prepare supps, eat, take all my alarms seriously, get my blog finished. Last change Mar 3rd.

At X = 19:00 a self-care gate comes down curbing further web work. (/)
Bed 23:30-8:30/9:00. ()
Gulp supps better, and a gulp after carrots. ()
Note thoughts and emotions (ACT) ()
More leg stretches. ()
Cold foods out of fridge 2h earlier than eating. ()

Today's FM symptoms unchanged from WPI 11 & SSS 9. Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (“80%”), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 7h28, up 5x (22'), deep except YoNi ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 60%/3 :x:. Nostrils 0-10% stuffy 100% of the night. Night sweats. Garden excitement -> YoNi. Changed basic stiffness to st3 = 30%.

A3/ A4/ teeth/ cold shower/ p0 Sleep 0:45- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
1:55 5’ 80%/2/15% p0 st3 sip fw1’ cough10 deep100 air/ A5 plugs0 cream/ gel/ HWB#(1)
(nostril/s5/0% sinuses0% headache0% sore throat0%, nausea0% stomach30% stools0 loose%)
2:50 5’ 80%/2/15% p0 st3 sip fw1’ cough10 deep90 air/ A6 plugs0 cream/ gel/ HWB#2
(nostril/s0/20% sinuses0% headache0% sore throat0%, nausea0% stomach20% stools loose0%)
3:05 Ally’s Yoga Nidra, cos excited about next gardening adventures. with plugs.
4:20 5’ 80%/2/15% p0 st3 sip fw1’ cough10 AsYoNi → deepdoze90 air/ A7 (after with another p0) plugs0 cream3 gel/ HWB#3:0
(nostril/s0/10% sinuses0% headache0% sore throat0%, nausea0% stomach10% stools loose(0)%) cream: Traumeel on hands, and to see if it improves the sore muscles also right thigh. Tea tree oil cream on lips, cos they were burning like heck first time. Plugs back out after YoNi finished, if that was enough… - it wasn’t, repeated, altho then wasn’t nec. long.
6:35 5’ 80%/2/15% p0 st3 sip fw1’ cough10 AsYoNi → deep100 air/ A8:0 plugs/ cream1 gel/ HWB#3:0
(nostril/s10/0% sinuses0% headache0% sore throat0%, nausea0% stomach10% stools loose(0)%)
-8:35 B1-4 30‘ in sun, 80%/2/15% p0 st3 sip fw1’ cough10 deep100 air/ A8:0 plugs/ cream1 gel/ HWB#3:0
(nostril/s0/0% sinuses0% headache20% sore throat0%, nausea0% stomach10% stools loose(0)%)
Sum: 8h35-45-(5+5+2+5+5=)22 = 7h50-22 = 7h28, up 5x (22’), deep except YoNi

ACTIVITIES (aim: 40% energy) ➔ ACHE: 85%/1-3, moving slowly in the garden about 3h ➔ 85%/3, then lots of rest the rest of the day .
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite better from going back to pure veggies (), esophagus: carrots extra works , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips much worse again so need tea tree salve again, pressed to white (). Pain in a fairly big knot in my left nipple, need to get that checked quickly, generally get a cancer check-up…

Click for details on Touch, Covid, Weather, last seizures Jan 14th & 15th, last esophagus block Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Mar 9th: Tea tree oil in paraffin cream has stopped my lips hurting, chapping & bleeding, so some fungus, like foot, maybe from low WBC. Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms since early March. T4 for thyroid, starting Feb 24th, varying, around small specks of ~0.8µg (2 weeks for half a 25µg tablet). Feb 7th: biotin and manganese too high, so unnecessary, Ω3 much too low. Not re-starting any expert physio.

The anti-sore cream didn’t work that well, so tried GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, successful. (Right foot needs tea tree oil too.)
GP prescribed T4 Feb 23rd to try. Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 92'

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft 8x1’, teeth 1x2’, HWB 4x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch 2x1’, acupressure 0x1’, palpate 0’, belly 1’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart 2x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, Tuesday evening 9x0.3=2.7g(+2*0.6,=3,9g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
Forgot to take A2, made me go to bed far too late!
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #618 Too much fibro forums too late.
Reasons to be cheerful #661 Ah, but it’s nice once in a while.
Simplified #67 Tidying up the shed makes movements there much easier.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-03-29, Wednesday - Energy once again always far beyond what I can use. GP thinks my symptoms are “beginning B-symptoms” so wants me to get checked for cancer stuff: lung x-ray, surgeon and oncology.

Sleep 90% / Feeling 85%-ish / nausea 0%, fog 10%

New Habits: Click for details of what I'm working on. Mar 24th: taking out "leg stretches" and "cold foods out of fridge" as that's OK at the moment, so down from 6 to 4. Mar 16th: At a certain time, starting with 19:00 "a gate comes down" and I'm not allowed back into the web unless I first: take evenings supps, prepare supps, eat, take all my alarms seriously, get my blog finished. Last change Mar 3rd.

At X = 19:00 a self-care gate comes down curbing further web work. ()
Bed 23:30-8:30/9:00.
Gulp supps better, and a gulp after carrots. ()
Note thoughts and emotions (ACT) ()

Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +1 = 10 = headache in evening? Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (“80%”), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 6h39, up 4x (20'), all deep, much too late, but good considering. ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 0% stuffy 100% of the night. Changed basic stiffness to st3 = 30%.

A2 late! A3/ teeth/ cold shower0 p0 Sleep 2:40- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
4:10 5’ 70%/2/15% p0 st3 sip fw1’ cough80% deep100% air/ A4 plugs0 cream// gel/ HWB#(1)
(nostril/s0/10% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
5:45 5’ 80%/2/15% p0 st3 sip fw1’ cough40% deep100% air/ A5 plugs0 cream/ gel/ HWB#2
(nostril/s0/10% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
7:10 5’ 80%/2/15% p0 st3 sip fw1’ cough20% deep100% air/ A6 plugs0 cream/ gel/ HWB#2
(nostril/s0/10% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
8:35 5’ 80%/2/15% p0 st3 sip fw1’ cough20% deep100% air/ A6 plugs0 cream/ gel/ HWB#2
(nostril/s0/10% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
-9:39 B1-4 ‘ in sun, stools loose%
Sum: 9h39-2h40-(5+5+5+5=)20 = 6h59-20 = 6h39, up 4x (20’), all deep, much too late, but good considering.

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, gardening ➔ 85%/2-3 .
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite better from going back to pure veggies (), esophagus: carrots extra works , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still better since tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Jan 14th & 15th, last esophagus block Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Mar 29th: GP cos of hurting left nipple and also night sweats. (Sitting at the doc's I'm wondering whether increasing the GABA by 30% to 3.7g/d might be causing the night sweats, but can't really imagine that, more likely bladder and seizures played up when I overdosed it, and they are both better now. He thinks it might be cancer or similar, wants that checked, which is fair enough.... Mar 9th: Tea tree oil in paraffin cream has stopped my lips hurting, chapping & bleeding, so some fungus, like foot, maybe from low WBC. Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms since early March. T4 for thyroid, starting Feb 24th, varying, around small specks of ~0.8µg (2 weeks for half a 25µg tablet). Feb 7th: biotin and manganese too high, so unnecessary, Ω3 much too low. Not re-starting any expert physio.

The anti-sore cream didn’t work that well, so tried GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, successful. (Right foot needs tea tree oil too.)
GP prescribed T4 Feb 23rd to try. Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 83'(?)

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft 6x1’, teeth 0x2’, HWB 3x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, Tuesday evening 9x0.3=2.7g(+2*0.6,=3,9g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
OK-ISH
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #619 I spose it was right to go the GP, even tho I doubt there’s anything clear/bad enough.
Reasons to be cheerful #662 Well, a new adventure is starting.
Simplified #68 New ideas for sorting the shed.
Simplified #69 Cherry laurel is poisonous so now keeping it away from my food! And when done, throwing it in the waste, not organic.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-03-30, Thursday - Again “enough” energy for the exhaustion, but again quick exhaustibility, it can turn in minutes. So I spose I can give up on the positive “energy” number, cos that’d always be high, I think “exhaustibility 80%” is a fair representation, altho I seem to do so much in the garden, but that’s only cos of fresh air etc. - Very exhausting meeting cos of an a*** with a big mouth making others nervous. I turned both sides round, but having to do some exhausting things got me sitting in the corner. Still silenced bigmouth a bit. Not enough. And actually wanted to go “get him” next day, Friday (but then it wasn’t important enough any more. But next time I’m ready.)

Sleep 90% / Feeling ?85%-ish / nausea 0-10%, fog 10%

New Habits: Click for details of what I'm working on. Mar 24th: taking out "leg stretches" and "cold foods out of fridge" as that's OK at the moment, so down from 6 to 4. Mar 16th: At a certain time, starting with 19:00 "a gate comes down" and I'm not allowed back into the web unless I first: take evenings supps, prepare supps, eat, take all my alarms seriously, get my blog finished. Last change Mar 3rd.

At X = 19:00 a self-care gate comes down curbing further web work. ()
Bed 23:30-8:30/9:00. ()
Gulp supps better, and a gulp after carrots. ()
Note thoughts and emotions (ACT) ()
More leg stretches. ()
Cold foods out of fridge 2h earlier than eating. ()

Today's FM symptoms unchanged from WPI 11 & SSS 9. Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-20%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (80%), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 7h54, up 4x (20') deep +10' doze = 8h04 ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 0% stuffy 100% of the night. Changed basic stiffness to st3 = 30%.

A3 teeth/ cold shower0 p0 Sleep 23:30- Why not 21:00? 3rd # is temp.: 36,9.
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
0:50 5’ 80%/2/15% p0 st3 sip fw1’ cough deep air A4 plugs cream/ gel/ HWB#(1)
(nostril/s0/5% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
2:20 5’ 80%/2/15% p0 st3 sip fw1’ cough20 deep100 air/ A5 plugs0 cream/ gel/ HWB#(1)
(nostril/s0/5% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
3:35 5’ 80%/2/15% p3 st3 sip fw1’ cough0 deep100 air/ A6 plugs0 cream/ gel/ HWB#2
(nostril/s0/5% sinuses0% headache0% sore throat20%, nausea0% stomach30% stools0 loose%) temp: 35,9 / 36,0 / 36,2 / 36,0. tongue hurting → gel for the 4th time.
5:35 5’ 80%/2/15% p0 st3 sip fw1’ cough10 deep100 air/ A7 plugs0 cream/ gel/ HWB#(2)
(nostril/s0/5% sinuses0% headache0% sore throat20%, nausea0% stomach20% stools0 loose%) temp: 36,2 / 36,1 tongue → gel#5
7:44 27’ 80%/2/15% p0 st3 sip fw1’ cough10 deep100 air/ A7 plugs0 cream/ gel/ HWB#(2)
(nostril/s0/5% sinuses0% headache0% sore throat20%, nausea0% stomach20% stools0 loose%) temp: 36,2 / 36,1 tongue → gel#5
+10’ doze?
B1-4 ‘ in sun,
Sum: 7h44+30-(5+5+5+5=)20 = 8h14-20 = 7h54, up 4x (20’) deep +10’ doze = 8h04

ACTIVITIES (aim: 40% energy) ➔ ACHE: 85%/1, gardening ➔ 85%/2 , meeting and moving stuff ➔ 85%/4 , moving heavy stuff after a longer break ➔ 85%/2 .
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite better from going back to pure veggies (), esophagus: carrots extra works , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still better since tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Jan 14th & 15th, last esophagus block Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Mar 9th: Tea tree oil in paraffin cream has stopped my lips hurting, chapping & bleeding, so some fungus, like foot, maybe from low WBC. Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms since early March. T4 for thyroid, starting Feb 24th, varying, around small specks of ~0.8µg (2 weeks for half a 25µg tablet). Feb 7th: biotin and manganese too high, so unnecessary, Ω3 much too low. Not re-starting any expert physio.

The anti-sore cream didn’t work that well, so tried GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, successful. (Right foot needs tea tree oil too.)
GP prescribed T4 Feb 23rd to try. Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 68'

white_check_mark: airing 5x2’, cold shower ?1x(10’), cream/oil fc/ey/hd/ft 6x1’, teeth 1x2’, HWB 0x3’, breath exercises 0x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 1’, back 7’, !!aloe vera 0x1’, twist-stretch 1x1’, yoga/stretching 1x1’, hang x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, Tuesday evening 9x0.3=2.7g(+2*0.6,=3,9g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
OK-ISH
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #620 Quite an ordeal, good to tone down after and keep peopling down.
Reasons to be cheerful #663 Beautiful song thrush in garden. Each motif is repeated 3-5x, but so loudly and such a variety of motifs.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-03-31, Friday - Exhaustibility “80%” - but again, it’s difficult to put a number on it, so I spose I’ll have to think this thru again bit by bit. My GP’s wife praised how tough I am, I explained how I do that, but forgot to say that after 10 minutes there where I seem fine, I’ll break down and not talk to anyone for a time.

Sleep 90% / Feeling 80%-ish / nausea 0%, fog 10%

New Habits: Click for details of what I'm working on. Mar 24th: taking out "leg stretches" and "cold foods out of fridge" as that's OK at the moment, so down from 6 to 4. Mar 16th: At a certain time, starting with 19:00 "a gate comes down" and I'm not allowed back into the web unless I first: take evenings supps, prepare supps, eat, take all my alarms seriously, get my blog finished. Last change Mar 3rd.

At X = 19:00 a self-care gate comes down curbing further web work. ()
Bed 23:30-8:30/9:00. ()
Gulp supps better, and a gulp after carrots. ()
Note thoughts and emotions (ACT) ()

Today's FM symptoms unchanged from WPI 11 & SSS 9. Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (“80%”), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 5h56, up 3x (24'), all pretty deep, but trying to doze after 8 didn't seem worth it, and before that postponing getting up twice probably wasn't helpful either, but still.... ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/1 ✅. Nostrils 0% stuffy 100% of the night. Changed basic stiffness to st3 = 30%.

A3/ A4/ (forgot GABA in A2 and A3) teeth/ cold shower0 p0/ Sleep 1:35- Why not 21:00? 3rd # is LBU
No FCS so tried without HWB: doesn’t change the sweats.
3:50 7’ 80%/2/15% p0 st3 sip fw1’ cough10% deep100% air/ A5 plugs0 cream/ gel/ HWB#0 sweating: change.
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
Postponed getting up 2x
6:15 7’ 80%/2/15% p0 st3 sip fw1’ cough20% deep100% air/ A6 plugs0 cream/ gel/ HWB#0 sweating: change.
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
7:55 10’ 70%/3/15% p0 st3 sip fw1’ cough20% deep100% air/ A6 plugs0 cream/ gel/ HWB#0 sweating: change.
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
Without a HWB at hand I get cold, but using it less might help. Does save time not having to make it, or putting water on in between and then warming that up might decrease waiting time.

• 10’ deep
  -7:55 B1-4 0‘ in sun, stools loose%
  Sum: 7h55-1h35-(7+7+10=) 24= 6h20-24 = 5h56, up 3x (24’), all pretty deep, but trying to doze after 8 didn’t seem worth it.

ACTIVITIES (aim: 40% energy) ➔ ACHE: 85%/2, gardening ➔ 85%/2-3 .
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite better from going back to pure veggies (), esophagus: carrots extra works , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still need tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Mar 31st, Jan 14th/15th, last esophagus block Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Lung x-ray result today: fine (as I expected). Update Mar 9th: Tea tree oil in paraffin cream has stopped my lips hurting, chapping & bleeding, so some fungus, like foot, maybe from low WBC. Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms since early March. T4 for thyroid, starting Feb 24th, varying, around small specks of ~0.8µg (2 weeks for half a 25µg tablet). Feb 7th: biotin and manganese too high, so unnecessary, Ω3 much too low. Not re-starting any expert physio.

The anti-sore cream didn’t work that well, so tried GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, successful. (Right foot needs tea tree oil too.)
GP prescribed T4 Feb 23rd to try. Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 30' - lazy!

white_check_mark: airing 5x2’, cold shower 0x(10’), cream/oil fc/ey/hd/ft 7x1’, teeth x2’, HWB 0x3’, breath exercises 0x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 0x5’, plantar/calf stretch 3x1’, acupressure 0x1’, palpate 0’, belly 1’, back 7’, !!aloe vera 0x1’, twist-stretch 2x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, Tuesday evening 9x0.3=2.7g(+2*0.6,=3,9g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
Forgot 2 small GABAs, so seizure this evening, but OK again I think.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #621 Should have increased GABA more as soon as I realized it was too little, on the other hand I now know it still needs to be high!
Reasons to be cheerful #664 Getting a handle on garden and the website etc. I’m maintaining.
Simplified #70 Put tissues and toilet paper downstairs too, so I don’t have to keep getting it - luxury.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-04-01, Saturday - Exhaustibility “80%” = of 16h again:

So do these numbers originally for the “energy” work for exhaustibility in any way?
(I’ve been leaving them in the blog entry templates for when I get round to analyzing them.)
R rest: 0% intensity 30% of the time (5h),
S slow: 60% intensity 30% of the time (5h), - maybe less
M medium: 80% intensity 30% of the time (5h), maybe more
Q quick: 90-100% intensity 5% of the time (1h) - maybe less.
(pre-fibro: 100% intensity 100% of the time.)

OK, let’s turn them around:
(Exhaustion “80%”(?) = of 16h)
R rest: 100% exhaustion 30% of the time (5h),
S slow: 40% exhaustion 30% of the time (5h), - maybe less
M medium: 20% exhaustion 30% of the time (5h), maybe more
Q quick: 0-10% exhaustion 5% of the time (1h) - maybe less.
(pre-fibro: 0% exhaustion 100% of the time.)
Yes, that seems to work. So I can take that over to the templates and keep checking. Today is a bad, cos untypical example, tomorrow possibly too.
Whilst my energy intensity is always far above these levels.

I thought maybe I haven’t lost quite that much weight. But on our home scales, which is my reference, I used to be over 80kg, and am now 75kg without clothes, can’t cheat that up to 76 like I thought. I haven’t weighed that little for decades, not a good sign at all… 8:30: 74kg. That would seem to be the base level with a totally empty stomach. 23:30: 76kg. Full stomach, end of day.

The last weeks I’ve been feeling de-hydrated before the next meals, cos I have to drink so much for the supps that I’ve been trying not to in between. And I haven’t been peeing more, prap even less. So now I’ll check how man litres of almond milk I’m drinking at the moment. I’ll be starting my next litre at 20:30 Saturday evening. The only good thing about this is that it makes me want to take my next supps in time, which isn’t bad at all. But I must be drinking around 3 litres per day, = 100 oz., how can that not be enough… that’d be another weird new symptom, thirst (with a de-hydration headache feeling). A workaround could be just to drink more, all the same, seeing as tho I don’t feel I’m peeing more. Or has this “dehydration” headache got to do with hunger, still reduced appetite, malnourishment? What happens if I drink without eating? It’s 20:30, first I drank a third of my previous litre, now a third of the first new one, that’s only my pre-meal, sleep and meal supps, still got after meal supps and 3-4x single GABA to come… Next idea: the night sweats will be de-hydrating me, praps I’m sweating more in the daytime too, sometimes my longjohns are too much at the moment - but not when I’m moving slowly in the garden, so I still need them there. My wife agrees, but thought this might be from T4, didn’t realize that I’ve long stopped taking it… so let’s get things clear:

NEW SYMPTOMS SINCE T4 Feb 24th, AND SINCE NON-COV Mar 9th: 3% (2-5%) of T4 pill: Feb 24th (see “treatments”) to Mar 23rd (see “supps”), “non-CoV 1” Mar 9th-13th (virus Ache, feeling fluey sick/ill, strong headache (& jaw ache, shoulder pain), sore throat, allodynia, no appetite, stomach pain, nausea, vomiting Gastritol 2x Mar 10th/11th, cough, histaminey symptoms: burnt tongue, bladder enormous frequency (5’-15’ in the evenings) and pain, meaning +30% GABA since then), “non-Cov 2” Mar 20th-? (still coughing a lot Apr 1st), also halving B2, B3 and TMG to 3x1 from Mar23rd. Reasons: high pulse, high blood pressure, low appetite (already Jan health practitioner tho), cough. Pulse and blood pressure could be from the nicotinic acid as well as the T4. Energy since Feb 26th - T4 stays in a hypothyroid system for 6-7 weeks, which means mid-May I may be losing my T4-energy and histamine (needing more GABA), re-gaining appetite, reducing pulse, blood pressure and staying up late, despite antihistamine since Feb 27th (which was necessary to reduce sleep breaks again, 10mg rather than 5mg, and praps to balance out a histamine increase from the T4, see Feb 27th). I’d stopped it Feb 20th. Interesting: I was using T4 when the non-CoV came up, and retained the T4 energy in the background, despite feeling severely sick. The T4 increased histamine, so I had to add GABA, and also insomnia, so I had to use the antihistamine again.

Mar 2nd dry heaved from baked beans tasting like fish.

When did the lip “fungus” start? Jan 21st “Lips very chapped, but not bleeding” for the first time, Jan 30th bleeding. Feb 3rd, 5, 6 chapped with blood somehow, 7 better. 18th-Mar 4th red seeming inflamed, better when using tea tree salve Mar 5th, but I have to use it many 3-6 times a day/night since then.

Fingertips extremely painful in January till Feb 7… from gardening and moving flats without gloves and washing hands too long, made me gasp for pain, 7 better, around Feb 17th-19th worse again, also lips worse, fingers 20th better, 24th worse, 25th better. Mar 1st “better, still not good”

Feb 18th I mentioned pee fatigue and thirst/dryness headaches…

Jan 6th to Feb 3rd: Stomach problems and nausea from masterwort and Hexacyl, trying to increase, then had to reduce and stop again. Psyllium and medicinal clay (at night) caused stomach problems.
Seizures and histamine burning and runny nose Jan 14th/15th, tongue 16th-18th(19th) (increasing feverfew/MSM and/or cellar mould and/or moving flat and/or trying to increase masterwort & Hexacyl).

Severe night sweats since Mar 19th, when I seemed to have re-visited the “non-CoV” with feeling fluey sick again. However no temperature, always around 36,5°C sublingually.

Mar 19th feeling sick, as if re-visiting CoV, and from then on severe night sweats 4:00-7:00 every night.

Around Mar 22nd swelling under left mamilla hurting and itching.

Sleep 90% / Feeling 85%-ish / nausea 0%, fog 10%

New Habits: Click for details of what I'm working on. Mar 24th: taking out "leg stretches" and "cold foods out of fridge" as that's OK at the moment, so down from 6 to 4. Mar 16th: At a certain time, starting with 19:00 "a gate comes down" and I'm not allowed back into the web unless I first: take evenings supps, prepare supps, eat, take all my alarms seriously, get my blog finished. Last change Mar 3rd.

At X = 19:00 a self-care gate comes down curbing further web work. (/)
Bed 23:30-8:30/9:00. (/)
Gulp supps better, and a gulp after carrots.
Note thoughts and emotions (ACT) ()

Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +1 = 10 = headache in evening, feels like de-hydration, and I think I may have overlooked this headache before meals recently. Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-30?%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (?80%), insomnia 3 (10%), fog 2 (10%), headache 1 (0-30%), GI 1 (?10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 6h53, up 3x (50') ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 0% stuffy 100% of the night. Changed basic stiffness to st3 = 30%.

A3 cold shower0 p0 HWB#1 Sleep 0:45- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
2:15 13’ 80%/2/15% p0 st3 sip fw5’ teeth/ cough10% deep/ air/ A4 plugs0 cream0 gel0 HWB#(1) The mush of that bloody handiman is going thru my brain again and again. Changed T-shirt, but that’s with HWB.
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
4:25 9’ 80%/2/15% p0 st3 sip fw5’ cough10% deep/ air/ A5 plugs0 cream/ gel/ HWB#(1) Changed bedclothes #2
(nostril/s0% sinuses0% headache0% sore throat0%, nausea10% stomach10% stools0 loose% tongue 60% → gel)
7:15 28’ 80%/2/15% p0 st3 sip fw22’ cough10% deep/ air/ A6 plugs0 cream/ gel/ HWB#(1) Changed bedclothes #3
(nostril/s0% sinuses0% headache0% sore throat0%, nausea10% stomach30% stools0 loose% tongue 20% → gel) 75kg.
-8:28 B1-4 ‘ in sun, stools loose%
Sum: 8h28-45-(13+9+28=)50 = 7h43-50 = 6h53, up 3x (50’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: Nothing noted.
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite better from going back to pure veggies (), esophagus: carrots extra works , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still better since tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Mar 31st, Jan 14th/15th, last esophagus block Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Mar 9th: Tea tree oil in paraffin cream has stopped my lips hurting, chapping & bleeding, so some fungus, like foot, maybe from low WBC. Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms since early March. T4 for thyroid, starting Feb 24th, varying, around small specks of ~0.8µg (2 weeks for half a 25µg tablet). Feb 7th: biotin and manganese too high, so unnecessary, Ω3 much too low. Not re-starting any expert physio.

The anti-sore cream didn’t work that well, so tried GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, successful. (Right foot needs tea tree oil too.)
GP prescribed T4 Feb 23rd to try. Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): ?' (nothing noted)

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, Tuesday evening 9x0.3=2.7g(+2*0.6,=3,9g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
EARLIER!
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

An overview of the new symptoms:

• Histaminey burning was also triggered in Jan. (then from the T4 Feb and the non-CoV Mar).
• I’ve been having a thirst/dryness headaches on and off since at least mid-Feb, despite drinking 3L = 100oz./d
• my fingertips were extremely painful Jan/Feb, still have to watch out a bit.
• my lip “fungus” started in January (often parallel to the fingertips), but still not gone.
• The T4 has some energy, but 5 side effects to date, after having taken it a month and now having stopped it 10 days ago.
• The “non-CoV” >3 weeks ago (whilst my wife had CoV) caused 13-14 new or severely increased symptoms from Mar 9th on for mainly 5 days, of which I still have 3 without break.
• Severe night sweats since Mar 19th, when I seemed to have re-visited the “non-CoV” with feeling fluey sick again. However no temperature, always around 36,5°C sublingually.
• Around Mar 22nd swelling under left mamilla hurting and itching.
• Altogether needing +20-30% GABA to get the bladder pain & sinus burning under control…
  ‘Research’ today: No.
  Lessons in self-care #622 Hmm, bit lax with the blog entries, but that’s OK, I spose I was concentrating on overall symptoms.
  Reasons to be cheerful #665 I always enjoy looking at overviews and analyses when I get them done.
  Simplified #71 No pressure to fill this in is a simplification again.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-04-02, Sunday - Exhaustibility “80%” = of 16h again:

(Exhaustion “80%”(?) = of 16h)
R rest: 100% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 50% of the time (7h), - maybe less
M medium: 20% exhaustion 30% of the time (5h), maybe more
Q quick: 0-10% exhaustion 5% of the time (1h) - maybe less.
(pre-fibro: 0% exhaustion 100% of the time.)

73kg (yesterday 74kg net), evening 76kg (net and with underclothes on), 36,0°C, later 36,4°C, 36,7°C.

Sleep 90% / Feeling 85%-ish / nausea 0%, fog 10%

New Habits: Click for details of what I'm working on. Mar 24th: taking out "leg stretches" and "cold foods out of fridge" as that's OK at the moment, so down from 6 to 4. Mar 16th: At a certain time, starting with 19:00 "a gate comes down" and I'm not allowed back into the web unless I first: take evenings supps, prepare supps, eat, take all my alarms seriously, get my blog finished. Last change Mar 3rd.

At X = 19:00 a self-care gate comes down curbing further web work. ()
Bed 23:30-8:30/9:00. ()
Gulp supps better, and a gulp after carrots. ()
Note thoughts and emotions (ACT) ()

Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +1 = 10 = headache in evening, but better from drinking even more. Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (“80%”), insomnia 3 (10%), fog 2 (10%), headache 0 (1-30%), GI 1 (0-40%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 6h35, up 4x (21') Sweating better now I've stopped using a hot water bottle for my feet, even directly after the FCS. ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 0% stuffy 100% of the night. Changed basic stiffness to st3 = 30%.

A3 A4 teeth/ cold shower/ p0 HWB#0 headache70% nausea20% Sleep 2:05- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
3:10 5’ 80%/2/15% p0 st3 sip fw1’ cough10% deep/ air/ A5 plugs0 cream/ gel/ HWB#(0) Bedclothes-change/ cos wet20%
(nostril/s0% sinuses0% headache40% sore throat10%, nausea10% stomach10% stools0 loose%)
4:10 5’ 80%/2/15% p0 st3 sip fw1’ cough10% deep/ air/ A6 plugs0 cream/ gel/ HWB#(0) Bedclothes-change:T-sh cos wet10%
(nostril/s10/0% sinuses10% headache40% sore throat10%, nausea10% stomach10% stools0 loose%)
5:40 7’ 80%/2/15% p0 st3 sip fw1’ cough10% deep/ air/ A7 plugs0 cream/ gel/ HWB#(0) Bedclothes-change:T-sh cos wet10%
(nostril/s0/0% sinuses10% headache10% sore throat5%, nausea10% stomach10% stools0 loose%)
7:20 4’ 80%/2/15% p0 st3 sip fw1’ cough10% deep/ air/ A8 plugs0 cream/ gel/ HWB#(0) Bedclothes-change:T-sh cos wet10%
(nostril/s0/5% sinuses0% headache0% sore throat0%, nausea5% stomach10% stools0 loose%)
-9:01 B1-4 30‘ in sun, stools loose%
Sum: 9h01-2h05-(5+5+7+4=)21 = 6h56-21 = 6h35, up 4x (21’) Sweating better now I’ve stopped using a hot water bottle for my feet, even directly after the FCS.

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, gardening ➔ 80-85%/2-3 , 30’ talk ➔ 70%/5
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite better from going back to pure veggies (), esophagus: carrots extra works , pee pain: 2xp1-2, urge and frequency pretty good, losing it OK-ish too , lower back unrest , finger tips: better, but still need to cream. (). Lips still better since tea tree salve, still nec., pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Mar 31st, Jan 14th/15th, last esophagus block Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Mar 9th: Tea tree oil in paraffin cream has stopped my lips hurting, chapping & bleeding, so some fungus, like foot, maybe from low WBC. Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms since early March. T4 for thyroid, starting Feb 24th, varying, around small specks of ~0.8µg (2 weeks for half a 25µg tablet). Feb 7th: biotin and manganese too high, so unnecessary, Ω3 much too low. Not re-starting any expert physio.

The anti-sore cream didn’t work that well, so tried GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, successful. (Right foot needs tea tree oil too.)
GP prescribed T4 Feb 23rd to try. Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 85'

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft 6x1’, teeth 2x2’, HWB 1x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch 3x1’, acupressure 0x1’, palpate 0’, belly 2’, back 7’, !!aloe vera 0x1’, twist-stretch 3x1’, yoga/stretching 2x1’, hang x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, Tuesday evening 9x0.3=2.7g(+2*0.6,=3,9g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
QUITE GOOD
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #623 Before the talk I decided to keep moving very slowly, not letting pressure down, but not up either. During I used full energy which ended in crying about 7-8x afterwards.
Lessons in self-care #624 Drinking even more, esp. in the evenings, is improving the headache.
Reasons to be cheerful #666 30-35’ Talk went brilliantly today.
Simplified #72 Take all next supps down in the garden on my tray.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-04-03, Monday - Exhaustibility “80%” = of 16h again (energy beyond):

(Exhaustion “90%” = of 16h)
R rest: 100% exhaustion 40% of the time (6h),
S slow: 40% exhaustion 50% of the time (8h), - maybe less
M medium: 20% exhaustion 10% of the time (2h), maybe more
Q quick: 0-10% exhaustion 0% of the time (0h) - maybe less.
(pre-fibro: 0% exhaustion 100% of the time.)

75kg, 36,3°C

Sleep 85% / Feeling 75%-ish / nausea 0-10%, fog 10-20%

New Habits: Click for details of what I'm working on. DELETE THAT BIT. Last change Mar 24th.

At X = 19:00 a self-care gate comes down curbing further web work. ()
Bed 23:30-8:30/9:00. ()
Gulp supps better, and a gulp after carrots. ()
Note thoughts and emotions (ACT) /()

Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +1 = 10 = headache in evening Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-30%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (“90%”), insomnia 3 (25%), fog 2 (10%), headache 1 (0-20%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Apr 4th: Found out that we'd got CoV from a person who hadn't taken theirs seriously and hadn't told us immediately that they had it: grrrrrrrr! Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 8h25, up 6x (43'), all deep ✅ ➔ Feeling 70% well, Ache 3 of 7 ❌, getting up: 80%/2 ✅. Nostrils 0-5% stuffy 100% of the night. Changed basic stiffness to st3 = 30%.

A3 A4 teeth cold shower p0 HWB#0 Sleep 0:20- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
1:05 13’ 70%/3/15% p0 st3 sip fw1’ cough0% deep air A6 plugs0 cream/ gel/ HWB#(0) Bedclothes-change0 cos wet0% 6
(nostril/s0% sinuses0% headache0% sore throat0%, nausea10% stomach0% stools0 loose%)
2:10 10’ 60%/3/15% p0 st3 sip fw1’ cough0% deep air A7 plugs0 cream/ gel/ HWB#(0) Bedclothes-change0 cos wet5%
(nostril/s10/0% sinuses0% headache0% sore throat0%, nausea10% stomach0% stools0 loose%)
2:50 5’ 70%/3/15% p0 st3 sip fw1’ cough0% deep air A8 plugs0 cream/ gel/ HWB#(0) Bedclothes-change/ cos wet10%
(nostril/s10/0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
3:45 5’ 70%/3/15% p0 st3 sip fw1’ cough0% deep air A9:0 plugs0 cream/ gel/ HWB#(0) Bedclothes-change0 cos wet5%
(nostril/s5/0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
5:20 5’ 70%/3/15% p0 st3 sip fw1’ cough20% deep air A9:0 plugs0 cream/ gel/ HWB#(0) Bedclothes-change/ cos wet20%
(nostril/s5/0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%) 36,1°C, 74kg.
7:15 5’ 70%/3/15% p0 st3 sip fw1’ cough10% deep air A9:0 plugs0 cream/ gel/ HWB#(0) Bedclothes-change0 cos wet20%
(nostril/s5/0% sinuses0% headache0% sore throat5%, nausea0% stomach0% stools0 loose%) 36,0°C, 75kg.
-9:28 B1-4 ‘ in sun, 5’ 70%/3/15% p0 st3 sip fw1’ cough10% deep air A9:0 plugs0 cream/ gel/ HWB#(0) Bedclothes-change0 cos wet20%
(nostril/s5/0% sinuses0% headache0% sore throat5%, nausea0% stomach0% stools0 loose%) 36,3°C, 75kg.
Sum: 9h28-20-(13+10+5+5+5+5=)43 = 9h08-43 = 8h25, up 6x (43’), all deep

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, moving ➔ 70%/3 , so nothing except surgeon, 10’ shops and lots (too much actually) of slow gardening.
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite bit better from going back to pure veggies and generally things I “want” (), esophagus: carrots extra works , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still better since tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Mar 31st, Jan 14th/15th, last esophagus block Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Mar 29th GP says possibly B-symptoms, 30th: lung X-ray shows nothing, surgeon cos of left mamilla swelling says wait 5 weeks, see what oncology says on Apr 24th and if it doesn't get better. Mar 9th: Tea tree oil in paraffin cream improves lips, but not totally. Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms since early March. T4 for thyroid, starting Feb 24th, varying, around small specks of ~0.8µg (2 weeks for half a 25µg tablet). Feb 7th: biotin and manganese too high, so unnecessary, Ω3 much too low. Not re-starting any expert physio.

The anti-sore cream didn’t work that well, so tried GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, successful. (Right foot needs tea tree oil too.)
GP prescribed T4 Feb 23rd to try. Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 68'

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft 7x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 1’, back 5’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, Tuesday evening 9x0.3=2.7g(+2*0.6,=3,9g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
LOST APPETITE FROM SOME WORRYING NEWS POSTPONED FROM MIDDAY.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #625 Pretty OK, considering, but definitely needs improving.
Reasons to be cheerful #667 Got so much good stuff done, and the song thrush was on our balcony.
Simplified #73 Need lots of tubs for various garden “waste” sorts, cos I kept forgetting what I’d put where and had to do it all again, silly me…

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-04-04, Tuesday - Exhaustibility “90%” = of 16h again (energy beyond):

This is getting correcter than the last days.
R rest: 100% exhaustion 40% of the time (6h),
VS very slow: 60% exh. 20% of the time (3h),
S slow: 40% exhaustion 40% of the time (6h),
M medium: 20% exhaustion 0% of the time (0h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

74-76kg - I look much skinnier now in the mirror, by the way. And becoming skinny might be the reason why I can do pull-ups again, too. 35,5-36,3°C. I thought <36°C is at night, but 13:35 I had 35,7°C too (tongue), Tue21:15 36,8°C.

Has the seeming de-hydration headache (despite 3L/d) to do with less pee frequency, urge and pain and with the high amount of GABA (from 2.4g to 4.2g!)?

Sleep 90% / Feeling 65%-ish / nausea 0%, fog 10-20%
Successes: Learnt:

New Habits: Click for details of what I'm working on. Last change Mar 24th.

At X = 19:00 a self-care gate comes down curbing further web work. ()
Bed 23:30-8:30/9:00. ()
Gulp supps better, and a gulp after carrots. (/) - tried the carrot gulp, but too late.
Note thoughts and emotions (ACT) ()

Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +1 = 10 = headache in the afternoon. Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-20%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 3 (10%), fog 2 (10-20%), headache 1 (0-10-20-30%, maybe 5 hours), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Apr 4th: Found out that we'd got CoV from a person who hadn't taken their's seriously and hadn't told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 7h07, up 6x (32'), all pretty deep, but excited cos of garden ideas ✅ ➔ Feeling 80-70% well, Ache 2-3 of 7 ❌/✅, getting up: 80%/2 ✅. Nostrils 0-10% stuffy 100% of the night. Changed basic stiffness to st3 = 30%. night weight 74-75kg, temperature 6-9am <36°C.

A3 A4 teeth0 cold shower0 p0 HWB#0 burning sinuses probably from supps too late. Sleep 1:30- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
2:50 5’ 80%/2/15% p0 st3 sip fw1’ cough0% deep/ air0 A5 plugs0 cream0 gel HWB#(0) Bedclothes-change0 cos wet10%
(nostril/s10/0% sinuses40% headache10% sore throat0%, nausea10% stomach0% stools0 loose%)
3:20 5’ 70%/3/15% p0 st3 sip fw1’ cough0% deep/ air0 A6 plugs0 cream0 gel0 HWB#(0) Bedclothes-change0 cos wet10%
(nostril/s10/0% sinuses30% headache5% sore throat0%, nausea0% stomach0% stools0 loose%) excited cos of gardening ideas
4:20 7’ 70%/3/15% p0 st3 sip fw1’ cough0% deep/ air0 A7 plugs0 cream/ gel/ HWB#(0) Bedclothes-change0 cos wet10%
(nostril/s10/0% sinuses30% headache15% sore throat0%, nausea0% stomach0% stools0 loose%) excited cos of gardening ideas. 76kg! 36,1°C.
6:22 4’ 70%/3/15% p0 st3 sip fw1’ cough0% deep/ air/ A8 plugs0 cream2 gel/ (burning tongue) HWB#(0) Bedclothes-change0 cos wet10%
(nostril/s0/0% sinuses20% headache10% sore throat10%, nausea0% stomach20% stools0 loose%) (gardening ideas) 76kg-2 35,7°C
7;20 6’ 70%/3/15% p0 st3 sip fw1’ cough0% deep/ air/ A9 plugs0 cream/ gel0 HWB#(0) Bedclothes-change0 cos wet10%
(nostril/s0/0% sinuses20% headache10% sore throat5%, nausea0% stomach20% stools0 loose%) (gardening ideas) 76kg-2 35,7°C (again!)
8;37 4’ 70%/3/15% p0 st3 sip fw1’ cough0% deep/ air/ A10 plugs0 cream/ gel0 HWB#(0) Bedclothes-change0 cos wet10%
(nostril/s0/0% sinuses20% headache10% sore throat5%, nausea0% stomach20% stools0 loose%) (gardening ideas) 76kg-2 35,5°C
-9:09 B1-4 ‘ in sun, stools loose%
Sum: 9h09-1h30-(5+5+7+5+6+4=)32 = 7h39-32 = 7h07, up 6x (32’), all pretty deep, but excited cos of garden ideas

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/2, gardening ➔ 75%/2 /. Today was tidying up the 2nd shed and ivy sorting and planting “everywhere”, tomorrow the conifers.
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite better from going back to pure veggies (), esophagus: carrots extra works , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still need tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Mar 31st, Jan 14th/15th, last esophagus block: Apr 4th, Mar 26th, 23rd, 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. /ADD. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Mar 29th GP says possibly B-symptoms, 30th: lung X-ray shows nothing, surgeon cos of left mamilla swelling says wait 5 weeks, see what oncology says on Apr 24th and if it doesn't get better. Tea tree oil salve since Mar 9th takes the brunt off the lip hurt. Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms since early March. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite. Ω3 needs increasing, much too low.

The anti-sore cream didn’t work that well, so tried GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, successful. (Right foot needs tea tree oil too.)
GP prescribed T4 Feb 23rd to try. Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 75'

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft 8x1’, teeth 1x2’, HWB 0x3’, breath exercises 3x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 1’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down as well as sinus burning, Tuesday Apr 4th evening 10x0.3=3.0g(+2*0.6=4.2g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
Had to be there whilst people were doing something for me Tuesday evening, that postponed things an hour, but it was OK, got back on track quite well.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #626 Took a phone call, but stopped it getting too long, also refrained from TT, since I feel worse than yesterday.
Reasons to be cheerful #668 May not have got round to all my garden ideas, but laid brilliant fundaments and cleaned up, making sure things are actually looking better for people who don’t get y plans.
Simplified #74 Putting 2 sheds in 1 and put similar things together in it, nice’n’clean.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

Wednesday's stub

2023-04-05, Wednesday - Exhaustibility “90%” = of 16h again (energy beyond):

R rest: 100% exhaustion 40% of the time (6h),
VS very slow: 60% exh. 20% of the time (3h),
S slow: 40% exhaustion 40% of the time (6h),
M medium: 20% exhaustion 0% of the time (0h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

75kg, 36,3°C

Sleep 90% (except again by far not long enough) / Feeling ?85%-ish / nausea ?0%, fog ?10%
Successes:
Forgot apigenin again, praps get threonate again to increase sleep duration.
Sleep duration tracking, see „Development“.

Learnt:

New Habits: Click for details of what I'm working on. Last change Mar 24th.

At X = 19:00 a self-care gate comes down curbing further web work. (/)
Bed 23:30-8:30/9:00. (/)
Gulp supps better, and a gulp after carrots. (/)
Note thoughts and emotions (ACT) /()

Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +1 = 10 = headache in evening? Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (?10%, stiff ?30%) + spine-pain 3 (?10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (?80%), insomnia 3 (?10%), fog 2 (?10%), headache 0 (?0%), GI 1 (?10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Found out that we'd got CoV from a person who hadn't taken their's seriously and hadn't told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 6h24, up 4x (23') +15+18=28' = almost 7h... ✅ ➔ Feeling 70-80% well, Ache 2 of 7 ✅, getting up: 70%/2 ✅. Nostrils 0% stuffy 100% of the night. "Thermostat"-change to "cold" at 6:30, had to put bedclothes on, no more dampness. Changed basic stiffness to st3 = 30%.

A3 A4 teeth cold shower p0 HWB#0 36,4°C. Sleep 0:45- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
2:15 4’ 80%/2/15% p0 st3 sip fw1’ cough20% deep/ air// A5 plugs0 cream/ gel/ HWB#(0) Bedclothes-change0 cos wet20%
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%)
3:30 5’ 80%/2/15% p0 st3 sip fw1’ cough20% deep/ air// A6 plugs0 cream0 gel0 HWB#(0) Bedclothes-change/ cos wet20% despite/cos of having aired that time…
(nostril/s10/0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%) 75-1 36,3°C
5:06 9’ 80%/2/15% p0 st3 sip fw1’ cough10% deep/ air/ A7 plugs0 cream/ gel0 HWB#(0) Bedclothes-change/ cos wet30%
(nostril/s10/0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%) 75-1 36,3°C
6:30 5’ 70%/2/15% p0 st3 sip fw1’ cough20% deep/ air/ A8 plugs0 cream/ gel0 HWB#(0) Bedclothes-change/ cos wet0% - freezing this time instead
(nostril/s10/0% sinuses0% headache0% sore throat0%, nausea0% stomach0% stools0 loose%) 36,1°C - feeling cold, need to put clothes ON.
-7:32 15’ 70%/2/15% p0 st3 sip fw1’ cough10% deep/ - but brain a bit awake, air0 A9:0 plugs0 cream/ gel0 HWB#(0) Bedclothes-change/ cos wet0%
(nostril/s10/0% sinuses0% headache0% sore throat0%, nausea0% stomach30% stools loose0%) still 36,1°C - still feeling cold, still clothes ON. Awake cos of head, not bladder. Tried lying another 10’, but wide awake, so got up. 35,9°C.
-7:32 B1-4 ‘ in sun, stools loose%
Sum: 7h32-45-(4+5+9+5=)23 = 6h47-23 = 6h24, up 4x (23’) +10’ doze. 6
Tried again: 8:40-58 = +18, so +28 = almost 7h.

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3, TT ?:0 (picking up 0? balls) ➔ 80%/3 , moving ➔ 80%/2 .
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite a little better from going back to pure veggies (), esophagus: carrots extra usually works , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still need tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Mar 31st, Jan 14th/15th, last esophagus block: Apr 4th, Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Mar 29th GP says possibly B-symptoms, 30th: lung X-ray shows nothing, surgeon cos of left mamilla swelling says wait 5 weeks, see what oncology says on Apr 24th and if it doesn't get better. Tea tree oil salve since Mar 9th takes the brunt off the lip hurt. Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms since early March. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite. Ω3 needs increasing, much too low.

The anti-sore cream didn’t work that well, so tried GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, successful. (Right foot needs tea tree oil too.)
GP prescribed T4 Feb 23rd to try. Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): '

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, as well as sinus burning, Tuesday Apr 4th evening 10x0.3=3.0g(+2*0.6=4.2g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
EARLIER!
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

Sleep duration tracking: T4 seems the cause.

Mar 7th: 5h50, 6th: 7h28, 5th: 7h57, 4th: 7h23, 3rd: 5h37, 2nd: 8h11, 1st: 7h30 (with the question: is that misguided hyper-energy? or T4?)
Feb: 7h32, 6h54, 7h13, 6h02, 7h03, 7h09, ← THAT’S THE DATE OF BIGGEST TREND CHANGE, THE 23rd, I STARTED T4 ON THE 24th, SO YES, THIS IS STILL THE T4. 7h44, 7h46, 8h, 8h, 7h21, 8h25, 8h23, 9h08, 7h, 6h27, 7h13, 10h25 (11th), 8h27, 7h41, 8h21, 7h20, 8h01, 8h01 (no mistake), 7h59, 8h08.

Sleep Average before and after T4:
Before: h44, 7h46, 8h, 8h, 7h21, 8h25, 8h23, 9h08, 7h, 6h27, 7h13, 10h25 (11th), 8h27, 7h41, 8h21, 7h20, 8h01, 8h01 (no mistake), 7h59, 8h08. = -14+0+0-39+25+23+68-60-93-47+85+27-19+21-40+1+1-1+8.
= -54/19 = -3’/d less than 8h.
After 5h50, 6th: 7h28, 5th: 7h57, 4th: 7h23, 3rd: 5h37, 2nd: 8h11, 1st: 7h30 (with the question: is that misguided hyper-energy? or T4?)
Feb: 7h32, 6h54, 7h13, 6h02, 7h03, 7h09
-140-32-3-37-143+11-30-28-66-57-118-57-51 = -751/13 = -58’/d less than 8h.

BACK-TRACKING FROM NOW TO Mar 8th:
Apr: 6h24, 7h07, 8h25, 6h35, 6h53, = -96-53+25-85-67 = -55 less than 8h.
Mar: 5h56, 8h04, 6h39, 7h28, 8h21, 7h48, 7h36, 6h46, 6h22, 7h41, 6h19, 8h16, 7h48, 7h51, Mar 17th, 6h23, 4h03?? (6h03?) (15th: full of energy at night, incl. pull ups!), 7h18, 6h09, 8h09, 9h15, 7h55, 8h11 (“not-CoV”!), 8th: 8h11 (no mistake).
-124+4-81-32+21-12-24-74-98-19-101+16-12-9-97-117-42-111+9+75-5+11 = -822/22 = -37, but possibly -42, and more sleep during “not-CoV” for 4 days: 9+75-1+11= 94 = +23,5

‘Research’ today: No.
Lessons in self-care #627
Reasons to be cheerful #669
Simplified #75

Click for links to new symptoms from Jan on, jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• New Symptoms since Jan2023
• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-04-06, Thursday - Exhaustibility “90%” = of 16h again (energy beyond):

R rest: 100% exhaustion 30% of the time (5h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 50% of the time (8h),
M medium: 20% exhaustion 0% of the time (0h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

74-76kg, 35,1-36,7°C

Sleep 90% / Feeling 85%-ish / nausea 0%, fog 10%

New Habits: Click for details of what I'm working on. Last change Mar 24th.

At X = 19:00 a self-care gate comes down curbing further web work.
Bed 23:30-8:30/9:00. ( - didn’t work out tho!)
Gulp supps better, and a gulp after carrots. ()
Note thoughts and emotions (ACT) ()

Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +0 headache. Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-30%, stiff 30%) + spine-pain 3 (10-30%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Found out that we'd got CoV from a person who hadn't taken their's seriously and hadn't told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 8h04, up 8x (83'), all deep. ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 0% stuffy 100% of the night. Changed basic stiffness to st3 = 30%.

A3 At 22:00 left nose starts hurting between bone and cartilage and left nostril closes up in a strange way. Cold, so put a bit more bed clothes oe… teeth cold shower p0 HWB#0 Sleep 22:30- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
23:30 5’ 80%/2/15% p0 st3 sip fw1’ cough10% deep/ air/ A4 plugs0 cream/ gel/ HWB#(0) Bedclothes-change/ cos wet20% from too much bedclothes on, now back down to just a T-shirt.
(nostril/s0% sinuses0% headache0% sore throat0%, nausea10% stomach0% stools0 loose%) . Left nostril still hurting, now left index finger, additionally.
0:00 5’ 80%/2/15% p0 st3 sip fw1’ cough10% deep/ air/ A5 plugs0 cream/ gel0 HWB#(0) Bedclothes-change0 cos wet10%.
(nostril/s0% sinuses0% headache0% sore throat0%, nausea10% stomach0% stools0 loose%) . Left nostril “bone” still hurting, and left index finger “bone”, but less.
0:50 10’ 80%/2/15% p0 st3 sip fw1’ cough10% deep/ air/ A6 plugs0 cream/ gel0 HWB#(0) Bedclothes-change0 cos wet10%.
(nostril/s0% sinuses0% headache0% sore throat0%, nausea0% stomach10% stools0 loose%) . Left nostril “bone” still hurting, not left index finger “bone”.
2:05 8’ 80%/2/15% p3(different) st3 sip fw1’ cough10% deep/ air/ A7 plugs0 cream/ gel/ HWB#(0) Bedclothes-change/ cos wet30%.
(nostril/s0% sinuses0% headache0% sore throat0%, nausea10% stomach30% stools0 loose%) . Left nostril “bone” still hurting, not left index finger “bone”.
3:05 8’ 80%/2/15% p3(different) st3 sip fw1’ cough10% deep/ air/ A8 plugs0 cream/ gel0 HWB#(0) Bedclothes-change0 cos wet10%.
(nostril/s0% sinuses0% headache0% sore throat0%, nausea10% stomach30% stools0 loose%) . Left nostril “bone” still hurting, not left index finger “bone”.
3:25 7’ 80%/2/15% p0 st3 sip fw1’ cough30% deep/ air/ A9:0 plugs0 cream/ gel0 HWB#(0) Bedclothes-change0 cos wet10%.
(nostril/s0% sinuses0% headache0% sore throat0%, nausea10% stomach30% stools0 loose%) . Left nostril “bone” still hurting, not left index finger “bone”.
4:50 10’ 80%/2/15% p1 st3 sip fw1’ cough20% deep/ air/ A9 plugs0 cream/ gel0 HWB#1 Bedclothes-change0 cos wet0% → cold, trousers on.
(nostril/s10/0% sinuses0% headache0% sore throat0%, nausea10% stomach30% stools0 loose%) . Left nostril “bone” still hurting, not finger.
5:15 30’ 6 80%/2/25% p1 st3 sip fw1’ cough20% deep/ air/ A10:0 plugs0 cream/ gel0 HWB#1 Bedclothes-change0 cos wet0% → cold, trousers on.
(nostril/s10/0% sinuses0% headache0% sore throat0%, nausea10% stomach30% stools0 loose%) . Left nostril “bone” still hurting, finger hurt again a lot.
-7:53 B1-4 ‘ in sun, 80%/2/15% p0 st3 sip fw1’ cough10% deep/ air0 A10:0 plugs0 cream0 gel0 HWB#1 Bedclothes-change0 cos wet0%: cold, trousers on, HWB.
(nostril/s10/0% sinuses0% headache0% sore throat0%, nausea10% stomach30% stools loose0%) . Left nostril “bone” still hurting, not finger. 36,3°C 74kg.

Sum: 7h53+1h30-(5+5+10+8+8+7+10+30=)83 = 9h27h-1h23 = 8h04, up 8x (83’), all deep.

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3, gardening, gynaecologist, short cycle-walk ➔ 80-70%/2-3 / .
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite a little better from going back to pure veggies (), esophagus: carrots extra usually works , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still need tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Mar 31st, Jan 14th/15th, last esophagus block: Apr 4th, Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more slow energy, but sinus burning & headache when more than 3% (on 27th), lost appetite and weight. Feb- bloods: Ω3 needs increasing, much too low.

The anti-sore cream didn’t work that well, so tried GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, successful. (Right foot needs tea tree oil too.)
GP prescribed T4 Feb 23rd to try. Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 82'

white_check_mark: airing 5x2’, cold shower 0x(10’), cream/oil fc/ey/hd/ft 8x1’, teeth 2x2’, HWB 3x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch 3x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, as well as sinus burning, Tuesday Apr 4th evening 10x0.3=3.0g(+2*0.6=4.2g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
SO SHATTERED IN THE EVENING, THAT I FORGOT E, SLEEP & A-SUPPS TILL 21:40, BUT THEN CAUGHT UP BY 23:00.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #628 May have been slow, but praps a bit heavy?
Reasons to be cheerful #670 Realized that some of my garden deco looks like a swan and a treble clef, so am now emphasizing that with different coloured dead wood. (Got lots done, probably ‘too much’.)
Simplified #76 Wheelbarrow simplifies moving all my buckets etc. around in the garden.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-04-07, Friday - Exhaustibility “90%” = of 16h again (energy beyond):

R rest: 100% exhaustion 40% of the time (6h),
VS very slow: 60% exh. 20% of the time (3h),
S slow: 40% exhaustion 40% of the time (6h),
M medium: 20% exhaustion 0% of the time (0h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

74kg…, 35,9-36,2…°C

Food: 1st: 100%. 2nd: 70% 3rd: 70% of ‘normal’.

Sleep 90% / Feeling 85%-ish / nausea 0%, fog 10%
Successes:
No problem taking B supps last sleep break
then trying a bout of NSDR if chatterbrain, until “eyes” awake.
Take laptop in garden first thing, so any forum work I do in air & light!
Laptop in garden gets me cold, so hot water bottle!!
Carry hot water bottle in jacket, so arms are free for meal tray with laptop under it.
With laptop I can prepare lots of my blog entry first thing, so my evening routine is quicker.

Learnt:

New Habits: Click for details of what I'm working on. Last change Mar 24th.

At X = 19:00 a self-care gate comes down curbing further web work. ()
Bed 23:30-8:30/9:00. ()
Gulp supps better, and a gulp after carrots. ()
Note thoughts and emotions (ACT)

Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +1 = 10 = headache in evening? Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-30%, stiff 30%) + spine-pain 3 (10-30%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Found out that we'd got CoV from a person who hadn't taken their's seriously and hadn't told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 7h23, up 5x (55'), deep except 20' NSDR till eyes as awake as chatterbrain. ✅ ➔ Feeling 80% well, Ache 2 of 7 ❌, getting up: 80%/2 ✅. Nostrils 0% stuffy 100% of the night. Changed basic stiffness to st3 = 30%.

A3 teeth0 cold shower0 p0 HWB#0 6 Sleep 0:30- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
1:55 26’ 70%/2/15% p0 st3 sip fw1’ cough0% deep/ air/ A4 plugs0 cream/ gel0 HWB#(0) Bedclothes-change/ & reduce to T-shirt cos wet50% teeth/ alternate shower/
(nostril/s0% sinuses0% headache0% sore throat0%, nausea10% stomach0% stools0 loose%) 36,2°C 75kg FAC#1
5:20 6’ 70%/2/15% p0 st3 sip fw1’ cough0% deep/ air/ A5 plugs0 cream/ gel0 HWB#(0) T-shirt-change0 cos wet0%
(nostril/s0/10% sinuses0% headache0% sore throat0%, nausea10% stomach20% stools0 loose%) 36,1°C 74kg
6:10 5’ 70%/2/15% p0 st3 sip fw1’ cough10% deep/ air/ A6 plugs0 cream/ gel0 HWB#(0) T-shirt-change0 cos wet0%
(nostril/s0/0% sinuses0% headache20%0 sore throat0%, nausea10% stomach0% stools0 loose%) 35,9°C 74kg
6:57 8’ 70%/2/15% (p0) st3 sip fw1’ cough10% deep/ air/ A7 plugs0 cream/ gel0 HWB#(0) T-shirt-change0 cos wet0%. Left thigh burning.a bit.
(nostril/s0/0% sinuses0% headache0%0 sore throat0%, nausea10% stomach0% stools0 loose%) 35,9°C/ 74kg
8:20 10’ 70%/2/15% (p0) st3 sip fw1’ cough10% deep/ air/ A7 plugs0 cream/ gel0 HWB#(0) T-shirt-change0 cos wet0%. Tired but chatterbrain: B, NSDR.
(nostril/s0/0% sinuses0% headache0%0 sore throat0%, nausea10% stomach0% stools0 loose%) 36,2°C 74kg
-:8 48 B1-4 ‘ in sun, stools loose%
Sum: 8h48-30-(26+6+5+8+10=)55 = 8h18-55 = 7h23, up 5x (55’), deep except 20’ NSDR till eyes as awake as chatterbrain.

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, gardening and short music making ➔ 80%/3 , collecting stones 80%/5 .
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite a little better from going back to pure veggies (), esophagus: carrots extra and only single mouthfuls , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still need tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Mar 31st, Jan 14th/15th, last esophagus block: Apr 4th, Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Apr 6th: My gyn(!): sees nothing on the sono, sez: 1) do NOT get it taken out, 2) praps a mammography, 3) keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite, weight and sleep. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 109'

white_check_mark: airing 5x2’, alternating shower 1x(10’), cream/oil fc/ey/hd/ft 8x1’, teeth 2x2’, HWB 1x3’, breath exercises 5x1’, Y. Nidra 20’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch 2x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’ (YESTERDAY), yoga/stretching x1’, hang 1x1’. wart 1x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Update Apr 7th: GABA as needed, tonight only (2+4)x0.3g, the night before (2+9)x0.3g. Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, as well as sinus burning, Tuesday Apr 4th evening 10x0.3=3.0g(+2*0.6=4.2g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
GOOD START: B BEFORE GETTING UP, C IN LIGHT, KEPT ON GOOD, EVEN EVENING OK, CONSIDERING:
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

Summary of last months:
NOV: 3rd CoV-jab: Slower more stable energy.
JAN: Lips burning since at least Jan 21st - fungus? Loss of appetite for the 1st time cos of the TCM recommendations.
FEB: T4 24.2.-23.3.: +Energy, bit appetite, some nausea, less sleep 8->7h/night.
Not sure when I lost so much weight, it was 78 some time Jan I think.
MAR: From “non-CoV” on 9th: cough, nothing on lung X-ray. More exhaustibility, despite energy underneath,
19th 2nd time “non-CoV”? Night sweats, more thirst, de-hydratation headaches, praps cos of the sweats/night sweats? Felt ill, but better after 10 days.
APR: Swelling 29th Mar, hurting and itching: GP doesn’t believe it can be the T4 so wants cancer checked. Surgeon says wait, wife’s gyn says sono, gyn says: nothing o be seen.
Remember these 3 when I’m at oncology on the 24th.

• Remember spinal tumor
• Low WBC didn’t interest the gyn.
• GABA = serotonin down & histamine high, praps from T4 - didn’t bother saying that.

‘Research’ today: No.
Lessons in self-care #629 See s up top.
Reasons to be cheerful #671 See s up top.
Simplified #77 All 5+ new ideas above are simplifications.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-04-08, Saturday - Exhaustibility 86%” = of 16h again (energy beyond):

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exh. 40% of the time (6h),
S slow: 40% exhaustion 40% of the time (6h),
M medium: 20% exhaustion 0% of the time (0h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

74-75kg, 36,0-36,3 °C

Food: 1st: 120%! some energy back?! 2nd: 90% 3rd 90%, but also nausea.

Sleep 90% / Feeling 80%-ish / nausea 0%, fog 10%
Successes:
Adding yoga nidra whilst my eyes are trying to wake up and my brain is ahead is a good sleep alternative.
Learnt:

New Habits: Click for details of what I'm working on. Last change Mar 24th.

At X = 19:00 a self-care gate comes down curbing further web work. ()
Bed 23:30-8:30/9:00.
Gulp supps better, and carrots only switching mouthfuls.
Note thoughts and emotions (ACT) /()

Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +1 = 10 = headache in evening? Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-20%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (86%), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Apr 4th: Found out that we'd got CoV from a person who hadn't taken their's seriously and hadn't told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 8h17, up 4x (87'), 7h20 deep, then 55' YoNi) ✅ ➔ Feeling 70% well, Ache 2 of 7 ❌, getting up: 80%/1 ✅. Nostrils 0-10% stuffy 100% of the night. Changed basic stiffness to st3 = 30%.

A3 A4 teeth/ cold shower0 p0 HWB#0 76,5kg Sleep 23:30- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
0:40 15’ 70%/2/15% p0 st3 sip fw1’ cough0% deep/ air/ A5 plugs0 cream/ gel0 HWB#(0) Bedclothes: cold, on.
(nostril/s0% sinuses0% headache0% sore throat0%, nausea10% stomach0% stools0 loose%) 36,3°C ?76,5kg FAC#0
2:38 22’ 70%/2/15% p0 st3 sip fw1’ cough0% deep/ air/ A6 plugs0 cream/ gel0 HWB#(0) Bedclothes: Change/ & reduce to T-shirt cos wet40%
(nostril/s0% sinuses0% headache0% sore throat0%, nausea10% stomach10% stools0 loose%) 36,0°C FAC#0
5:03 40’ 6 70%/2/15% p0 st3 sip fw1’ cough30% deep/ air/ A7 plugs0 cream/ gel0 HWB#(0) Bedclothes: Change0 → T-shirt & trousers cos wet20%
(nostril/s0/10% sinuses0% headache0% sore throat0%, nausea10% stomach10% stools0 loose%) 36,0°C FAC#0
7:59 10’ 70%/2/15% p0 st3 sip fw1’ cough10% deep/ air/ A8:0 B plugs0 cream/ gel0 HWB#(0) Bedclothes: Change0 T-shirt & trousers, cos wet0%
(nostrils5/0% sinuses5% headache0% sore throat0%, nausea0% stomach10% stools0 loose%) 36,2°C 74kg FAC#0 YoNi55’

-9:14 B1-4 0‘ in sun, stools loose%
Sum: 9h14+30-(15+22+40+10=)87 = 9h44-1h27 = 8h17, up 4x (87’), 7h20 deep, 55’ YoNi)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, gardening ➔ 80%/2 .
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite a little better from going back to pure veggies (), esophagus: carrots extra usually works , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still need tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Mar 31st, Jan 14th/15th, last esophagus block: Apr 4th, Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): '

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft 6x1’, teeth 1x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 55’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang 1x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, as well as sinus burning, Tuesday Apr 4th evening 10x0.3=3.0g(+2*0.6=4.2g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
EARLIER!
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #630 Bit of a day off, cos of a short gig yesterday.
Reasons to be cheerful #672 Fun getting big stones out of the garden, using physics much more than the strength I used to love using.
Simplified #78 A bit of tidying the garden Saturday night using a light - confused my neighbour, something I’m good at.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-04-09, Sunday - Exhaustibility “84%” = of 16h again (energy beyond):

R rest: 100% exhaustion 40% of the time (6h),
VS very slow: 60% exh. 20% of the time (3h),
S slow: 40% exhaustion 40% of the time (6h),
M medium: 20% exhaustion 0% of the time (0h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

74(-75)kg, 35,9-36,3 °C

Food: 1st: 100% 2nd: 90?% 3rd: 80%

Sleep 85% / Feeling 70-80%-ish / nausea 0%, fog 10%
Successes: Learnt:

New Habits: Click for details of what I'm working on. Last change Apr 9th: food-switch carrot mouthfuls.

At X = 19:00 a self-care gate comes down curbing further web work. ()
Bed 23:30-8:30/9:00. ()
Gulp supps better, food-switch mouthfuls of carrots. ()
Note thoughts and emotions (ACT) ()

Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +1 = 10 = headache in evening? Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-20%, stiff 30%) + spine-pain 3 (10-30%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (84%), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Apr 4th: Found out that we'd got CoV from a person who hadn't taken their's seriously and hadn't told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 6h53, up 4x (59'), deep but incl. YoNi 55' dream, sweats turned to opposite extreme of ice cold ✅ ➔ Feeling 70% well, Ache 2 of 7 ❌, getting up: 80%/2 ✅. Nostrils ?20% stuffy ?20% of the night. Changed basic stiffness to st3 = 30%.

A3 A4 FAS#1 teeth0 cold shower0 p0 HWB#0 Sleep 0:30- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
2:33 5’ 70%/2/25% p0 st3 sip fw1’ cough10% deep/ air/ A5:0 plugs0 cream/ gel0 HWB#(0) Bedclothes-change0 trousers on, jacket off, cos wet10% teeth/
(nostril/s0% sinuses0% headache0% sore throat0%, nausea10% stomach0% stools0 loose%) 36,2°C 75kg FAC#1
4:25 15’ 70%/2/25% p0 st3 sip fw1’ cough10% deep/ air/ A5 plugs0 cream2 gel/ HWB#(0) Bedclothes-change0 trousers & T-shirt wet0%, but‚ sore throat: top on.
(nostril/s0/10% sinuses0% headache0% sore throat50%, nausea10% stomach0-30% stools0 loose%) 2’ after drinking: 34,9-35,1-35,3-35,9°C ?kg FAC#2:0. With appetite returning my night sweats may be stopping, so clothes back on: long sleeve, 2nd pair of trousers, maybe HWB next?
5:39 30’ 6 70%/2/25% p0 st3 sip fw1’ cough10% deep/ air/ A6:0 plugs0 cream/ gel0 wet0%: 2x trousers, long sleeve, still sore throat/cold: so HWB#1
(nostril/s0/10% sinuses0% headache0% sore throat20%, nausea10% stomach0-30% stools0 loose%) 35,8°C ?kg FAC#2:0. With appetite returning my night sweats may be stopping, so clothes back on: long sleeve, 2nd pair of trousers, HWB.
6:56 9’ 70%/2/25% p0 st3 sip fw1’ cough10% deep/ air0 B plugs0 cream/ gel0 wet0%: full attire & HWB worked.
(nostril/s0/10% sinuses0% headache0% sore throat10%, nausea10% stomach30% stools0 loose%) 35,8°C ?kg FAC#2:0. With appetite/hunger returning my night sweats have stopped, so clothes back on: long sleeve, 2nd pair of trousers, HWB/
Dreamt a bird of prey was circling above our garden, then suddenly “realized” it was out for me, because I was lying there still. Inspired by the heron circling low and high 3x times yesterday. YoNi.
-8:22 B1-4 0‘ in sun, 70%/2/25% p0 st3 sip fw1’ cough10% deep/ air0 B plugs0 cream/ gel0 wet0%: full attire & HWB worked.
(nostril/s0/0% sinuses0% headache0% sore throat20%, nausea0% stomach20% stools loose0%) 74kg FAC#2:0. Clothes back on, HWB, next: winter duvets.
YoNi was 55’
Sum: 8h22-30-(5+15+30+9=)59 = 7h52-59 = 6h53, up 4x (59’), deep but incl. YoNi 55’ dream, sweats turned to opposite extreme of ice cold

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, moving ➔ 80%/2 .
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite a little better from going back to pure veggies (), esophagus: food-switching carrots works , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still need tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Mar 31st, Jan 14th/15th, last esophagus block: Apr 4th, Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 2h08

white_check_mark: airing 5x2’, alternate shower 1x(10’), cream/oil fc/ey/hd/ft 5x1’, teeth 1x2’, HWB 3x3’, breath exercises 5x1’, Y. Nidra 55’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart 1x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, as well as sinus burning, Tuesday Apr 4th evening 10x0.3=3.0g(+2*0.6=4.2g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
OK-ISH
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #631 Good that I was watching my “temperature” change and reacted quickly, even as it was I got a really bad sore throat, but immediately treated it with calendula essence, which helped pretty well, then several HWB.
Reasons to be cheerful #673 Night sweats is the 2nd to stop of at least 3 “B-symptoms” - which I’m sure are “just” 3%-T4 effects.
Simplified #79 Got the tray I take into the garden pretty complete, but still forget some things, so need to get into a routine to put supps and food on it first.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-04-10, Monday - Forgot my antihistamine, sleep & sinuses were OK tho, so I’ll test taking it every 2nd day, altho I can’t really afford to miss more sleep.

Exhaustibility “83%” = of 16h again (energy beyond):
R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exh. 20% of the time (3h),
S slow: 40% exhaustion 40% of the time (6h),
M medium: 20% exhaustion 20% of the time (3h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

75kg (only weighing in the mornings from now on)

Food: 1st: 40+40% 2nd: 75% 3rd: 80%.

Sleep 85% / Feeling 85%-ish / nausea 0%, fog 10%
Successes:
YoNi worked but I felt worse, as often when I “sleep in” rather than 7h. So should I stop putting it on the end?
If I take the B-supps before getting up and the C-supps upstairs before going out and just eat the morning meal in the garden everything is accelerated.
Laptop battery goes flat very quickly in the garden, but aside from taking a cable with me I’m trying just to use that to limit the time I use it.
Body temperature changes was the main issue today: I’ve stopped taking temperature, cos it’s always good. But fluctuating between now cold at night instead of sweating, and sweating now in the daytime instead of being cold and needing long johns. So fighting off sore throat, but getting better just by putting on the winter stuff at night. Overheating was no problem, cos that broken thermostat feeling made me want to alternate shower.

New Habits: Click for details of what I'm working on. Last change Apr 9th: food-switch carrot mouthfuls.

At X = 19:00 a self-care gate comes down curbing further web work. ()
Bed 23:30-8:30/9:00. ()
Gulp supps better, food-switch mouthfuls of carrots. ()
Note thoughts and emotions (ACT) ()

Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +1 = 10 = headache in evening? Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-20%, stiff 30%) + spine-pain 3 (10-20%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (84%), insomnia 3 (15%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight... Apr 4th: Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning.
Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight…

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 7h09, up 3x (82'). deep incl. 1h YoNi... ✅ ➔ Feeling 70% well, Ache 2 of 7 :x:, getting up: 80%/2 ✅. Nostrils 0% stuffy 100% of the night. Changed basic stiffness to st3 = 30%.

A3 A4 teeth0 cold shower0 p0 HWB#0 6 Sleep 0:45- Why not 21:00? Watched the Swarm 30-40’ 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
3:40 47’ 70%/2/15% p0 st3 sip fw1’ cough0% deep/ air/ A4 plugs0 cream/ gel0 HWB#(0) Full bed attire, except HWB: wet10% cold hot cold shower/ warts/ teeth/
(nostril/s0% sinuses0% headache0% sore throat0%, nausea10% stomach0% stools0 loose%) 6 FAC#1
5:50 5’ 70%/2/15% p0 st3 sip fw1’ cough0% deep/ air0 A5 plugs0 cream/ gel0 HWB#(0) Full bed attire, except HWB: wet0%
(nostril/s20/0% sinuses0% headache0% sore throat20%, nausea10% stomach0% stools0 loose%) FAC#2:0, HWB#1
7:40 30’ 70%/2/15% p0 st3 sip fw20’ cough0% deep/ air0 B plugs0 cream/ gel0 HWB#(0) Full bed attire, except HWB: wet0%
(nostril/s10/0% sinuses0% headache0% sore throat20%, nausea0% stomach0% stools0 loose%) FAC#2:0, HWB#2:0. YoNi 8:15-9:15 = 1h

-9:16 B1-4 ‘ in sun, 80%/2/15% p0 st3 sip fw1’ cough0% deep/YoNi air0 C plugs0 cream/ gel0 HWB#(0) Full bed attire, except HWB: wet0%
(nostril/s20/0% sinuses0% headache0% sore throat20%, nausea10% stomach0% stools0 loose%) 75kg FAC#2:0, HWB#1

Sum: 9h16-45-(47+5+30=)82 = 8h31-1h22 = 7h09, up 3x (82’). deep incl. 1h YoNi…

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3, TT ?:0 (picking up 0? balls) ➔ 80%/3 , moving ➔ 80%/2 .
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite a little better from going back to pure veggies (), esophagus: food-switching carrots works , , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still need tea tree salve, pressed to white ().

Click for details on Touch, Covid, Weather, last seizures Mar 31st, Jan 14th/15th, last esophagus block: Apr 4th, Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 2h26'

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft 5x1’, teeth 1x2’, HWB 3x3’, breath exercises 5x1’, Y. Nidra 60’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch 2x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, as well as sinus burning, Tuesday Apr 4th evening 10x0.3=3.0g(+2*0.6=4.2g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
OK-ISH
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #632 Need to watch temperature closely.
Reasons to be cheerful #674 Toddler in garden - sooo cute. Got lots done.
Simplified #80 Taking C-supps upstairs accelerates everything.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read

[JayCS]

2023-04-11, Tuesday -

Exhaustibility “96%” = of 16h again (energy beyond):
R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exh. 40% of the time (6h),
S slow: 40% exhaustion 40% of the time (6h),
M medium: 20% exhaustion 0% of the time (0h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

75kg first thing, so seems stable +1kg.

Food: 1st: 100%, but not feeling good after, a bit force fed. 2nd: 80% 3rd: 80%

Sleep 70% / Feeling 75%-ish / nausea 0%, fog 10%
Successes:
Woke up at several times at 5 with burnt tongue after brushing teeth, so histamine high, first thought from mould in shed, then checked the banana and tuna I’ve been trying to increase my appetite and eating with: Banana is high in histamine (2) and tuna very high (3)!
No need to refrain from those, I’ll try DAO on them, been looking for some histaminey food I react to to try it, as I haven’t been using it for ages. “Just” have to wait till the burning stops, didn’t today…
Vague pains40% in left clavicula/shoulder and right hand will be from the gardening, a bit of exercising, Traumeel and time will heal → yep, better.
Learnt:

New Habits: Click for details of what I'm working on. Last change Apr 9th: food-switch carrot mouthfuls.

At X = 19:00 a self-care gate comes down curbing further web work. ()
Bed 23:30-8:30/9:00. ()
Gulp supps better, food-switch mouthfuls of carrots. ()
Note thoughts and emotions (ACT) ()

Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +1 = 10 = headache afternoon + evening. Adjusted basic stiffness to st3 = 30% since Feb 24th (click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-30%, stiff 30%) + spine-pain 3 (10-25%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (86%), insomnia 3 (30%), fog 2 (10%), headache 1 (0-10-30%, 6h+), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight... Apr 4th: Found out that we'd got CoV from a person who hadn't taken their's seriously and hadn't told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense 'work' phone call. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Feb 26th on: Energy up to 14-20% from T4. Feb 3rd-25th: 10% energy.

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight…

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.

SLEEP (click for details): 6h01, up 4x (67'), deep. Histamine attack at 5 from foods, showering helped. No sweats, all winter stuff back out. ✅ ➔ Feeling 70% well, Ache 2 of 7 :x:, getting up: 80%/2 ✅. Nostrils 0-30% stuffy 100% of the night. Changed basic stiffness to st3 = 30%.

A3 A4:0 teeth0 cold shower0 p0 HWB#0 6 77kg Sleep 1:10- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
2:23 5’ 70%/2/15% p0 st3 sip fw1’ cough0% deep/ air/ A4 plugs0 cream/ gel0 HWB#(0) Full bedclothes cos wet0% teeth0 alternate shower0
(nostrils5/0% sinuses0% headache0% sore throat10%, nausea5% stomach0% stools0 loose%) FAC#0
3:28 5’ 70%/2/15% p0 st3 sip fw2’ cough0% deep/ air/ A5 plugs0 cream/ gel0 HWB#(0) Full bedclothes cos wet0% teeth0 alternate shower0
(nostrils0/10% sinuses0% headache0% sore throat10%, nausea5% stomach0% stools0 loose%) FAC#0. Dream of being crucial for someone in a meeting of spiritusl people. And neighbour being unwell. And she’s running around above me…
4:53 5’ 70%/3-4/15% p0 st3 sip fw2’ cough0% deep/ air/ A6 plugs0 cream/ gel/ HWB#(0) Full bedclothes cos wet0% teeth0 alternate shower0
(nostrils0/40% sinuses0% headache0% sore throat10%, nausea5% stomach0% stools0 loose%) FAC#0. Neighbour running around above - hope my wife can sleep…
Vague pains40% in left clavicula/shoulder and right hand will be from the gardening.
5:17 52’ (awake - do a few things, praps shower) 5’ 70%/3-4/35% p0 st3 sip fw2’ cough70% (after cold showering for a few minutes) deep/ air/ A7 plugs0 cream/ gel/ HWB#(0) Full bedclothes cos wet0% teeth/ alternate shower/
(nostrils0/30% sinuses02% headache10% sore throat10%, nausea5% stomach20% stools0 loose%) FAC#1, HWB#1 Tongue60% hurting (right hand side this time, strangely) after brushing teeth 5:25.
Took quite a while, to get back to sleep, feeling totally awake but 3h ain’t bad, showering as often didn’t fail!
8:18 70%/3-4/25% p0 st3 sip fw8’ cough10% deep/ air/ B plugs/ cream/ gel/ HWB#(0) Full bedclothes cos wet0%
(nostrils0/30% sinuses02% headache10% sore throat10%, nausea5% stomach20% stools0 loose%) FAC#(1), HWB#(1) Tongue40%. Try gel on tongue. Hang. Traumeel.
-: B1-4 0‘ in sun, stools loose20%
Sum: 8h18-1h10-(5+5+5+52=)67 = 7h08-1h07 = 6h01, up 4x (67’), deep. Histamine attack at 5 from foods, showering helped. No sweats, all winter stuff back out.

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3, TT 1:0 (picking up 0 balls) ➔ 80%/5 , gardening ➔ 80%/2 .
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite a little better from going back to pure veggies (), esophagus: food-switching carrots works , pee pain: 0xp1-2 , lower back unrest , finger tips: better. (). Lips still need tea tree salve, pressed to white (). De-hydration(?) headaches.

Click for details on Touch, Covid, Weather, last seizures Mar 31st, Jan 14th/15th, last esophagus block: Apr 4th, Mar 26th, Mar 23rd, Mar 13th, Feb 26th + 20th + 5th, last jaw pain praps Jan 30th.

Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.

Treatments

Click for details: Update Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): 94'

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft 6x1’, teeth 1x2’, HWB 2x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch 10x1’, acupressure 0x1’, palpate 0’, belly 1’, back 10’, !!aloe vera 0x1’, twist-stretch 1x1’, yoga/stretching 2x1’, hang x1’. wart 1x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Mar23rd: Now halving B2, B3 and TMG to 3x1 and stopping T4 until my appetite's back and my blood pressure and pulse improve. Increasing GABA in the evening as needed till my bladder pain is down, as well as sinus burning, Tuesday Apr 4th evening 10x0.3=3.0g(+2*0.6=4.2g!)! Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
OK-ISH
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #633 Apparently still need to drink more.
Reasons to be cheerful #675 Got things done in garden that had a bit of a deadline, freer now, sowing flowers a day at a time.
Simplified #81 Leaving gardening shoes with jacket and rain legs is easier.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

• 8 weeks after jab#3: stabilized
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My food apparently minus broccoli…
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries
• Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read