Is anyone else having memory issues with the fibro? I don’t know what to think lately. I am thinking one thing and doing or saying another. My husband is constantly correcting me which is not helping either. I do plan to talk to my doctor about it but was curious as to whether or not others are having the same issue.
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Absolutely! I am learning not to insist my version of a conversation/event is correct. I have popup reminders and sticky notes everywhere, but I forget what the reminder chime is for and frequently overlook notes unless they are taped to the middle of my computer screen. I have searched for iPhone, keys, wallet many times to the point of exhaustion. I have interrupted important meetings to tell my boss something, only to forget what it was. I’ve only been diagnosed for a year and may be a slow learner. Even so I am learning - throw away the unnecessary, keep essentials in a predetermined spot, laugh at mistakes, “bite-size” my hobbies, etc. You are definitely not alone. Hang in there!
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Thank you so much for sharing!!! I am starting to feel like I am in the early stages of Alzeimers or something. My husband is so supportive but is getting annoyed with my forgetfulness. I am trying to be patient. I am getting so frustrated because I know that I am doing it but when my husband corrects me and he is annoyed when he does it, I feel worse and just cry. It must be bad if it is bothering him that much. It’s depressing.
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Don’t be discouraged. Although I obviously don’t know your husband, I’m wondering whether he is just being normal. When I searched last month for how to live/cope with fibromyalgia, I accidentally discovered many healthy spouses were suffering grief, anger, self-doubt, etc. as they cared for their sick partner. (I knew I felt those things but I hadn’t considered that he might.) I remember feeling so relieved to see that my husband’s reactions were a normal part of learning to live with chronic illness. Could that apply to your husband too?
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I thought my memory was bad a year ago, but it is even worse now. I will be talking about someone I have known for years and forget their name.
I forget to do things I need to do
It is tough.
Some doctors will give ADHD medications for this.
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I never thought of it that way. I suppose it is possible that he is trying to figure out ways to deal with my fibromylgia. Thank you for this imput. I honestly never thought of that. I just assume that he will just be there and know what to do. obviously he probably has no idea what to do with this new symptom that has come along. i really appreciate this. It will make me think differently about it. Thank You!!1
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Hi. It was encouraging to read your response. All marriages face challenges. Fibromyalgia is definitely a challenge! I think your comment that your husband doesn’t know what to do would apply to mine as well. That’s ok though, because I don’t know what to do either.
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i know what you mean. I just assume that my hubby will just always know what to do. I don’t know why I think this way given that I myself do not know what to do! We just have to keep that line of communication open at all times and talk out the issues and what helps us.
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I told my husband the same thing, that I thought it was early Alzehimers or something. Maybe, it’s the Neurontin, or Tramadol I take. I keep forgetting simple things. It’s frustrating. I feel your pain.
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Me too. If it is not written down, I will not remember. I have paper calendars and notebooks because I am not trusting to put my life in my phone (misplaced it too many times). Everything has a place to live and trying to train myself to put things back where they belong. A little china dish on the cabinet where I keep my purse, trying like Pavlov’s dog to train myself to the “ching” when the keys hit the dish 
Worse is the lost words. I know what I am trying to say or type but can’t find the word in my mind.
I don’t think it is the medication because I am newly diagnosed and only started the medication last month. But the symptoms have been years.
Trying to remind myself it is a journey.
My husband is very supportive but I can tell sometimes it is difficult for him. I am so slow now of both mind and body and have to keep telling him to slow down, I cannot go so fast, or I cannot answer so fast, or whatever.
Thank you all for your sharing, it helps to know that we are not the only couple in this boat. I will pray that we all sail along safely together. R.
“The lost words”,exactly. I’ll be talking and can’t remember the name of something simple. It’s frustrating for sure.
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I’ve been having problems with this lately, too. Just last night, it took me 2 hours just to remember the name of a website that I use frequently. Finally remembered to save it in my favorites after that. It feels good to know that there are other people out there with this same issue and it’s not just me having a terrible memory.
I find it reassuring to hear that others have similar symptoms. I really struggle with remembering words or the names of things. It doesn’t help that my office went through a major re-organization and my position was eliminated. So now I work with a new group of people. My rheumatologist suggesting doing a cognotive testing with my neurologist. She said that would show where I am in relation to common baselines. I haven’t done it because I still have accepting my illness. One thing I did do was go to an ENT doctor to check my hearing and for dizziness. Turns out I have 30% hearing loss in both ears. That might explain why I forget things and have to take so many notes. You may want to see your ENT and have your hearing checked out. Good luck with what’s a very frustrating process.
In peace and justice, Amy
I too have issues with my memory. I think the “best” one is last night I was writing a check for a bill and got the envelope sealed and ready to go. My husband looked in the check book later in the evening to see that I never ripped the check out and put it in the envelope. Man I thought I am really losing it! He is really worried about me now because he says he has noticed I leave lights on and may not flush a toilet etc… I can’t remember a conversation I had a week ago without being REALLY reminded of the content. I am going to talk to my Dr about it when I see her next month. I feel like my memory has gotten considerably worse over the last few years. I am sure the medications that I am on are not helping the situation. I just have to leave notes for myself every where so I don’t forget to do something. Please know you are not alone.
Is hearing loss because of fibromylgia? Bc I hv noticed this in me.
I am having memory issues from 2 years. I am now afraid to join any where, I am looking for a job. I am not sure if I would be able to make it. My life has changed a lot.
I hate Fibro, I do. Memory, ha! I used to have, a sharp, agile mind, no longer. I’m lucky, if I can remember the nearest cross street, within a day or so. I went to the gas station.
I’ve had the same car, for 4 yrs, and I simply couldn’t remember, what side , of the car the gas tank was in.
So , I sat there, for 10 mins, just in total brain fog.
I didn’t have even enough sense, or thinking to get out of the car, to look for the gas tank! Finally, it just came to me.
This is daily brain stuff. I really don’t know how people, can work, w/ this stuff, not to mention, the acute pain.
Note: I’m having a really rough wk, I’m not always this pessimistic!
I know few days are so bad. Few days are okay. Just living with it.
I can relate to memory loss completely. Looking up symptoms one of them are what is known as “fibro fog” guess just another thing to deal with having fibro. Has anyone ever seen a neurologist and it helped them to manage the pain?
Fibro Fog!!! It’s why I lost my job. I hate it! My sister told me to try something called Choline. I’ve only been taking it for two weeks but dang! I feel more awake today than I have for the past 5 years. I did a little research on it. It seems that as we age, we build up plaque in our brain synapses pathways, much like the way we can build up plaque in our blood veins and arteries. Choline, taken with 10 mg. pantothenic acid (in all multi vitamins) creates acetylcholine, a neurotransmitter, and clears out the plaque. I understand it can also clear plaque in your circulatory system so it would interact with blood thinners, and not in a good way.
I take it in the morning. If I take it before bed, I’ll never get to sleep.