I was diagnosed with fibro about 2 years ago and lately it seems as though my memory is fading. Has anyone else experienced this? Also, sometimes I feel as though my family doesn’t quite understand what i am feeling and i find it hard to explain to them to help them better understand. Are there any suggestions on this or has anyone else had any interference with their memory?
Hello Jada,
I just noticed your reply to Mickey, so I hope my response to that may help in some way.
As Mickey said, and I have observed and experienced, Fibro Fog is a feature of this condition, so you are not alone! As for your family not understanding, it is incredibly hard for anyone who doesn't have this to understand, and it is so difficult for us to explain. There may be some articles on this site that can help with that. I can't remember the exact names of them, but two articles on-line were particularly helpful for me. There is a letter from someone experiencing chronic pain ( you could google that maybe). Try typing in 'the spoon theory', that is also very useful in explaining to your family. You could give these details to your family, so they can look and digest. Wish you well
Take care, Anne
I was having a discussion with my husband the other day and I kept saying um um um… I couldn’t find the right words I wanted to use. It was like they were there some where in my brain but they just weren’t coming out. It is so frustrating that I couldn’t find the right words I wanted to use. My husband got a little frustrated because he didn’t know what to do or what I was trying to say. I found this very frustrating because now I have lost my words upon every thing else I lose.
I’m sorry you are expirencing this Jada. But you are not alone. Some days are better than others.
Mickey
Thanks Anne for the reply. I did read the spoon theory which I did find to be helpful. By joining this group I am learning a lot more about this illness and some of the symptoms that go along with it than I have since I was diagnosed. Thanks again for your insight.
AnneV said:
Hello Jada,
I just noticed your reply to Mickey, so I hope my response to that may help in some way.
As Mickey said, and I have observed and experienced, Fibro Fog is a feature of this condition, so you are not alone! As for your family not understanding, it is incredibly hard for anyone who doesn't have this to understand, and it is so difficult for us to explain. There may be some articles on this site that can help with that. I can't remember the exact names of them, but two articles on-line were particularly helpful for me. There is a letter from someone experiencing chronic pain ( you could google that maybe). Try typing in 'the spoon theory', that is also very useful in explaining to your family. You could give these details to your family, so they can look and digest. Wish you well
Take care, Anne
Thanks Mickey for sharing your story with me. It's good to know that I am not alone or going crazy because I am forgetting things. Unfortunately, when I was diagnosed they left out the memory loss part of the symptoms so I initially thought that it was everyone else except me with the problem until lately. As for the encouragement, thanks and you're right some days are better than others. I just miss my good days of not having to worry so much about overdoing it, but through it all I try to stay positive and thank God through everything. Thanks again for your response and I hope we all (everyone suffering from this illness) are having a good pain free night.
micmo1219 said:
I was having a discussion with my husband the other day and I kept saying um um um.. I couldn't find the right words I wanted to use. It was like they were there some where in my brain but they just weren't coming out. It is so frustrating that I couldn't find the right words I wanted to use. My husband got a little frustrated because he didn't know what to do or what I was trying to say. I found this very frustrating because now I have lost my words upon every thing else I lose.
I'm sorry you are expirencing this Jada. But you are not alone. Some days are better than others.
Mickey
Hello Jada,
I have been in your shoes until I educated myself more on Fibro. I thought I was going crazy, family kept pointing out that I had difficulty processing and remembering things. Being 63 which is still young it got me rather concerned. At first my body was learning to adjust to different medications and I think that was part of it. I kept in close contact with my Rhemotologist who has adjusted medications along the way and I am in a better place now. There are still days now and then that I have trouble processing things but have found that typically it is when I am dehydrated. So when taking our medications we need to eat right, exercise and keep hydrated so that our bodies and minds work well together.
Good Luck!
Ron
Thanks Ron for the advice. I'm still not there yet on pinning this thing down and which meds are going to work best for me but I plan to get it worked out soon. Thanks again.
Hi Jada,
I was diagnosed in June 2015 and due to work comittments had to slog though lst year, with the help of loads of meds and entire weekends spent sleeping. I have been put on temp disability from Feb 1 and am taking it decidedly slower at the moment. I used to have the memory of the proverbial elephant....these days my family and friends jokingly say i have oldtimers, because I have gotten so 'senile'. On top of that I find my concentration going as well, not a good combo.
I have realised though that with relaxation and loads of sleep - I currently sleep about 12hrs a day the symptoms are getting better. Here is hoping to returning to some semblance of normality soon.
Good luck with your journey
Carla