My name is Lyndee and I was diagnosed with Fibro in 2008 along with inflammatory arthritis. In addition to the above diagnosies I also have generalized anxiety, major depressive disorder, PTSD, hyperthyrodism, erosive gastritis, PCOS, and two pinched nerves in my lower back. In February 2014 my doctor diagnosed me with Chronic fatique syndrome. I am on several medications for everything but Fibro. I have tryed lyrica, cymbalta, gabbpentein, and abilify none have worked and cause some pretty sever side effects. So I now can only manage the symptoms with hydrocodone and zanaflex, I take advil on occsion, but due to the gastritis I am supposed to several limit my advil.
I am looking for support and friendship with those who have the fibro as well. I am struggling with how much the fibro has changed my life. I am fairly introverted and manage friendship better online then in person. For the past 5 years I have had my ups and downs dealing with the changes and the pain. But the past year I have been becoming more and more depressed dealing with fibro. So I decided to search out help and support.
Welcome to the site Lyndee! (I like the LadyHawk reference) I have only been on the site for a few weeks now, but it helps to sign in and see what is happening with everyone. It doesn't make it all go away, but it helps to vent, or just commiserate, to/with people who get what you are going through. Everyone here has been so accepting and helpful that I think you will find many who will gladly be your friend and walk this path with you .... me included!
Welcome to this site! I think you will really like it. I have been on for probably a year now, I don't very often write anything but every once in a while I will. Everyone is very kind and understanding here. No issue is too small to bring up. I look forward to seeing you on here. Sorry for what you are going thru but please know that everyone on here gets it and we all understand.
Here's hoping you enjoy this site as much as I do!
Hi Lyndee. I'm sorry you are going through all of this. :( I got diagnosed with an autoimmune on Oct. 11, 2013 and I was just recently diagnosed with fibro on May 23, 2014. It's a lot to deal with I'm not going to lie. My mom suggested I join a chat room so I can talk to people that can relate with me because no one understands more than somebody else going through the same thing as you. I know depression is a serious thing and I felt it after I found out about the autoimmune, however I do not like feeling depressed. The only thing I can say is try to stay and be positive. Stress and negativity can make you feel worse. Keep your head up. I'm here for you. Whenever you want to talk or vent feel free to write me. Everyone needs support and you came to the right place. I love this support group and the people on here. (HUGS) Xo.. <3
Hi Ladyhawk and welcome!!! What a beautiful name you've chosen!
This is for you. I think you probably need it:
Oh my, it sounds like you have all of the fun stuff that fibro likes to throw at you, as if fibro wasn't enough!
It really is easier to talk to people on-line about fibro. It's so stressful going out to a site, meeting new people, trying to be comfortable on the seat and probably not being, being too cold or too hot, etc., etc. Ha ha, I guess you can see that I'm a bit more introverted these days! My sister tries to nag me into going to a real, in-the-flesh fibro group but I'm like you. She doesn't understand that being here is helpful to me. I'm committed to being here and I like being here. It's helpful.
It's really too bad that Lyrica doesn't work for you, nor does Cymbalta or gabapentein. But at least you've found something that offers you some measure of relief. That's our rock of Gibralta that keeps us grounded: a product that provides us with some measure of relief.
Our group offers some measure of relief too. Certainly it's partially the social aspect, and it's such a relief to know that others go through the same things and understand what you're saying without belittling you or not believing you. Also, we try to offer support to people because we know how stressful this illness is and try to save you some of the grief that we've experienced. Sometimes we're successful, other times we aren't. But we try.
This site is also a very good place for asking questions about your illness. If you've experienced "it," then most likely so have we! No matter how weird the symptom, be assured that at least some of us have had it too.
My hand is cramping up so it's getting hard to type, so i'll end here. I hope you keep coming and find some help and friendship with us.
Hi Lyndee, I just joined a couple days ago. I am introverted and timid, but even if you can't interact you can read posts and get a lot of good information. This seems to be a good place to find info, support and friendship. Glad you joined
It is nice to know that I am not the only one out there who hasn't responded to the drugs for fibromyalgia. It has been a very frustrating journey. I have seen several Doctors whom just seem to get frustrated with me and how my body responds to medications. Even the Norco makes me hyper and I can't sleep, it only takes away a little of the pain. The muscle relaxers help with the muscle spasms.
No. If you go to the top of this page, you'll see a list of things that you can do. Chat room is among the list and that's where you to to chat. But I don't think there are any moderators on there.And people come and go, so you might go on at a time when no one's on. But then again, you might well find someone on who is going through what you are and wants to talk!
Thank you. I am really bad at making friends. I have been fighting a really dark depression for the past month. I had to have a hysterectomy and have not been able to do anything. I started flaring last week and the pain is intense. Everything always seems to snowball and I get so lost.
You are not alone there. I don’t like meeting new people. But I enjoy talking and meeting new people on here. Weird I know. But you can just talk about whatever you or just vent. We are here. It’s a great support group and I’m happy to be a part of it. I hope you start feeling better soon. Xo…
I hope you start feeling better soon. Xo…