Hi all, and thanks for the add to the group. My 18 year old daughter has just been tentatively diagnosed with Fibro, just waiting on blood work to rule out any other autoimmune disease. Although this diagnosis is a bit daunting, we are very relieved to finally be getting some answers. My daughter has been ill with periodic bouts of incapacitating nausea and fatigue for the past two years.in the last year, she developed tingling in her extremities. She has seen a gastroenterologist, and had every test there is come up negative. Ditto for neurologist… Being under 18, it had been required that she see pediatric specialists for any consultation. Problem was, no pediatric specialist would see her without a diagnosis, so we had been at a loss. Well, she turned 18 three weeks ago, and was finally able to see a rheumatologist this past Wednesday , who is pretty sure it is Fibromyalgia. So happy to get some explanation to all her issue, but I know there is a lot we need to learn. I am a member of another of Bens Friends groups, and I know the type of support and advice I can get through theses groups is invaluable!
My biggest question right now is if any of you had to get accommodations at school? She is a senior in HS, and despite lots of absences, she has an excellent GPA. Just wondering if putting a 504 plan in place seems reasonable, and what , if any, limitations need to be addressed. I know we also should talk to her doctor about this, just interested in what those of you who live with this disease think.
Again, thanks for the add!
Christine