I was diagnosed back in November with Fibro and have read all the Fibro 101 things but there are so many more things that go on with my body that I have been looking for a place to talk about them with someone who understands and will not change the subject in mid conversation. I hope to get a little better understanding of what I can expect in the future. I am currently taking 50 mg lyrica in the am and 150 mg at night, then cymbalta, and a timed realeased pain pill I can’t remember the name. My doctor says that FM is not progressive but I am wondering? Thanks in advance for listening.
Momo52
Hi Mom52, Thanks for sharing more about yourself. This is a great place to connect with people who understand. I noticed you had shared some on the fibro symptoms page too, great way to jump in and get involved. If you type into the search box on the discussions page "progressive" you will find several discussions about this subject. It will give you a whole variety of views. I have found for myself that my symptoms have increased and to some degree intensified, but each person is so different. Also I am heading into the menopausal years, and suffer from severe osteoarthritis, both which compound my symptoms. My suggestion to you is to focus on what can help you today and the near future and worry about other concerns as they arise. As you are aware too much stress can exacerbate our symptoms so focus on today. Sending you lots of hugs.
I take time release tramadol and find that it with celebrex and gabapentin have made a huge difference in my daily life. I usually take them around 4 in the morning ( I wake up around then due to pain) so when I get up out of bed two hours later they have started to kick in and my stiffness and pain are more manageable. Last night I slept the whole night through which was wonderful, unfortunately I didn't take my pain cocktail until after 6 am, and I was in a very bad way for a good part of the morning. It is noon now and I am feeling more with it. heheheh, the irony is not lost on me, sleep through the night and have pain or wake up through the night and manage pain. Nonetheless, today is Friday and I have two whole days to look after me. I hope you get that opportunity too.
Hugs a many to you!!
ST
Hi Mom52, Singingtrees made excellent points. I have had Fibro since 1998 and for me, it has ebbed and flowed a bit. Initially the symptoms were hard to manage and seemed progressive. Then I managed to kind of re-group, I started focusing on some non-med interventions such as mindfulness/meditation, gentle exercise, etc. The symptoms overall improved for many years. In the past couple of years it has seemed more progressive again with new things popping up. The days I find that my attitude it more positive I feel better - it isn't easy that is for sure but I try to keep upbeat and focus on what I CAN do versus what I can't. Everyone's journey is different but I wanted to share my experience. Please keep us updated on how you are doing. Hugs!!
Thank you so much for the replies and sharing. I guess I am still getting used to the idea that my life has changed and will not be what it once was. I am going to search and read on the proggiveness as suggested. I bought a recumbent bike to try and get a little more exercise. It is hard to get started though. I too am looking forward to this weekend. It is a long one for me which means I can get a little more done than usual and still have my time to plug back in and re-energize. ST I hope you get some sleep and relief. Sleep is one thing I do not have a problem with, it is waking up and getting out of bed I struggle with.
Gentle hugs back to you both!
Welcome, Mom52.
You've heard from some terrific members. I just wanted to encourage you to read up on past discussions and feel free to continue to ask questions. I think the key to managing Fibro is managing stress, maintaining quality sleep and, of course, the all-important support! I am glad you're here with us.
Hugs,
Laurie
I am glad I found this group as well. It is nice be be able to talk… Thank you all for the warm welcome. It is much appreciated.
Mom52