Just voiced how I feel about Fibro. I feel like I am in a nightmare. Use to be so healthy. Worked very hard in my lifetime before Fibro. Now I can't even open a jar of pickles. Have been in and out of hospital for tests which were negetave. Have had cat scans , ultra sounds, e-xrays, milograms, countless blood tests. Been to every specilast you can think of except a baby doctor. Every doctor every tests etc. was negetive. To top it off I was cut off all my meds and called a drug addict.They even took away my prozac which I was told was a no no. You have to be weaned off of it. It helped my moods and I finally liked me. Have asked for it back but was told , no. They said to many problems with it. I never had a problem. Kind of hard going without pain meds when your in so much pain.Finally , after a year of begging I have been given Tylenol 3. Have been told only for break away pain. So use it sparingly. Not sure what I will do when I run out. Have sleeping pills so I can sleep. Even then I get about 4 hours. I'm all ways tired. Have a real problem keeping my eye lids open. So the doctor said we have to talk about the sleeping pills. I gather she will take that away from me to. Am now a diabetic and had to buy blood pressure cup. Doctor wants me to keep track . One more thing to worry about. And I am so hungry and am over weight. Now have to watch my carbs , salt, sugar intake. Eat tiny meals. Just more to worry about. I'm going to stop as I could go on for ever. I need to wake up from this nightmare. I want to be thin again and walk my three miles a day. I want to eat what I want and do what I want. That is buggered to. We had planned to travell in our retirement days. Please let me wake up and this is all just a very bad nightmare.
Yes, it stopped our plans to travel too, it kills me to ride 5 minutes down the road, even though my husband bought me a very comfortable, beautiful car. It is now 5 years old and has hardly been used! I had a 4 wheel drive truck, loved it, never had to shovel it out when it snowed, it went right through it. But I got to the point that I could not use the clutch, or shift the gears.
Shirley, have you checked your family history for autoimmune disease? They just don't always show up in the bloodwork, but as I recall, in your country, to get anywhere, it ialways has to be in the bloodwork, even though in actuality, a very low percentage of people show autoimmune diseases in the bloodwork.
Before I found my current Rheumatologist, I was treated poorly by several Drs, but was lucky to have such a good GPand DC. We are in such a grey area of disease here, ti is still misunderstood, underdiagnosed, frowned upon, and most Drs don't know as much about it as they need to.
I hope tthat you can get the treatment and respect that you deserve!
Thanks SK , it is tough changing doctors here. Had to sign a paper when I changed to this doctor. No autoimmune in my family. Just curviture of the spine.
I swear you should be able to sue your docs for all of this. i know you can't but you should be able to. What rotten treatment! Why can't you have your Prozac? What justification is there? If not Prozac, what about another anti-depressant? I know what you mean, I'd be in terrible shape without anti-depressants. And how coincidental that docs are trying to wean people off narcotics at the exact same time that the feds are coming down on docs for prescribing them. And then they have the nerve to call you a drug addict! This is disgusting treatment. Can you see another doc?
Let me tell you how sincerely sorry I am that you're going through all of this in addition to the fibro. It's so terribly unfair. Just please know that we're here for you. We hear you. We truly know your pain. All of it, even the rotten treatment by docs. Please feel free to come here and spill how you feel. It does help. It's good to know that other people experience what you do too. And again, I'm so sorry for your current situation. NO ONE deserves to be left in this pain without adequate pain meds.
No, Shirley, the one completely positive part of having fibro is that you aren't alone and you've found a great support group for dealing with it. We all grapple with the exact same things as you do. We can offer advice and ideas to help you. I wish we could offer more than that. I wish we had an answer and a cure for you. But being as we don't, we all come together here and try to help one another get through the rough days.
