Eeyorelover, how did you make out at ER last night??? I so hope the latest ER helped you out and gave you some meds!!! I am anxiously waiting to hear from you and I'm so sorry the stupid drugstore was so freaking rigid. As was your doctor. Please let me know how you're doing today, kiddo!
sorry it has taken so long to update all of u. i ended up sleeping most of the day. i was not able to get to another er. i had no one to take me. i feel asleep sometime in the wee hours of the morning. i finally got the antibotic and pain meds. my mom ended up having to charge it and gave me a hard time about it. she is forcing me to find some work. my fibro has gotten so bad i dont know how i will b able to work even part time.
i am really hoping the z pac is the right antiboctic cause i need this to go away. i will let u know how things progress as the week goes. thank you for all those offering to help me so i can see the dr. if i dont feel any better in a few days i will need to see them and see what they suggest to help clear up this infection.
thanks for offering to help. i cant believe i have had so many offers to help me. it means so much to have so much support. thanks for the prayers i do need them too. i hope u have gotten relief with your hand and wrist pain.i know u were having quite the battle getting any help or relief.
I'm just so glad to hear from you! I'm hoping the meds work this time or else something isn't right. Let us know how you're feeling tomorrow if you can.
I know what you mean about the fibro and work. It's a challenge. Have you applied for disability? At the age of 30, you only need to have worked 2 1/2 years since you turned 21. If you haven't applied I suggest you do.
i worked full time from age 18 till age 27. i applied for disability last april. i am on my 3rd appeal. i have a law fime working for me they just filed the last appeal as well as the paperwork for me to b seen infront of a judge. i know this last process can take up to a year but at least its been started.
i dont mind working again i just dont think i can. i also know i cant b reliable. as i work in child care i need to b reliable. i have no good computer skills so i cant get any type of desk job. the only other job i have done is i have worked as a waitress but that was over 10 years ago. and working in a resturant is very hard work i dont think i could ever do that type of job again.
So glad to hear from you. Keep us posted how you’re doing!
thanks the pain meds r really helping to keep the pain under control. that is a very nice change. i wont know for a few days if the antibotics r working. thr er dr didnt even know antibotics help pleursy so i hope i got thr right one or not. i am allergic to two different classes of antibotics so that makes being able to give me the right one hard at times. i am allergic to doxicycline and amoxacyline. i have lots of other allergies as well as do most of us.
i will keep everyone up to date as much as possiable. having my sleep all messed up i am sleeping at all different times and for all different lenghs of time. i cant wait to get back to some sort of pattern. i know many fibro suffers have no sleep pattern. so i am not holding my breath on sleeping like a normal person.
Eeyoreluver, I hope that the antibiotics have kicked in and that you are feeling a little better. Sleep when you can- sleep helps the healing process. I don’t know if you saw this when I posted it but you go to this website for help with your meds. This is only for meds you take on a regular basis, thoug, not the nes you need right away. It is worth a try
Gentle hugs. Feel better.
MB
thanks for showing me the site. i actually use them already :) i get 3 meds right now free. i had a 4th but i stopped taking it but i think it might have been a mistake. it was a med to help with my migraines and it didnt seem to b helping. well i guess it was helping cause now they r coming way to often.
well i thought i would sleep last night but for some reason my room was very hot and i just tossed and turned and then finally turned the air down a few degrees to make it a little cooler and i finally feel asleep around 8am. i am so very tired right now i did manage to get a few hours of good sleep in but not enough. i didnt wake up feeling any better. i hope through out the day that will change.
Keep us updated, please. If the antibiotics have not started working in 2-3 days, I would definitely go back to the doc.
How's your level of pain? And your pleurisy? I still can't believe the drug store wouldn't take the cards. That really stunk. I hope you're doing better, Eeyorelover! I was so worried about you yesterday, esp. since I hadn't heard back from you until way later. What a rotten illness. I just hope you're starting to feel better.
thanks for all u did. i am sorry it took all day to update everyone. i do feel a little better tonight but the pain isnt any better so far. the pain meds r helping the pain but when they wear off i am in alot of pain. i am hoping tomorrow will b different.
i was in bed all day due to not falling asleep till around 8am. i did get up for about an hour around 2pm took my antibotic and pain meds ate and went back to bed.
my mom is driving me crazy. she walked in my room around 6pm and said u need to get up not sleep all day. i told her i was just falling asleep as she ws getting up. she didnt seeem to care. she doesnt understand that this whole illness has gotten mee to the point i have no sleep scheudal at all. last night i went to bed around 3am i was very tired and couldnt keep my eyes open yet i didnt fall asleep till around 8. i cant seem to get her to understand i do want to sleep at night and b awake during the day it just isnt working. she is stressing me out i know she isnt tring too but she is. and i dont need any stress just tring to get over this whole thing is putting too much stress on me.
after getting up and eating dinner then taking a shower i feel ok. not really better just kinda feeling better since i ate and got some caffinine. the pain is starting to really bother me and i just want to go back to bed.
ok i give up. not as in ending my life but on hope of getting over the pleursy. last night i was back in the er cause m throat was closing due to the antibiotics. i only had 2 days of the z pack. i have had it before but now i cant use it agian. this now means i have 3 antibioic familys that i cant take. the er drs first thing was to get me breathing and then i asked well what do i do now to get over this. i didnt give me any other antibiotics. so my mom just spent $25 dollars for an antibotic i cant take.
i have no idea what to do. i am beggining to hate this disease with a passion. so now i guess i wait to somehow get into the dr and see what they will do. why am i not getting better this so sucks. well i am off to bed. i will let u know what happens.
Eeyoreluver, my prayers are with you and I hope that you can find some help and get some relief. Is there a teaching hospital anywhere near you? It would be great if you could get in there as I think that the teaching hospitals are better at diagnosing things because there are many people working together and they have more time.
thank you i will look into that and let u know what i find out. i am sooo very tired and i just want to sleep but the pain is keping me from that. the narco is not helping as much as i would like.
well i tried to sleep but was unable to. i started have alot of trouble breathing so i went back in. they gave me more benadryl cause it was about the time i could take it but they gave it in pill form along with xanax. it didnt help. i was sent home and they said it was just my aniexy. well they gave me xanax and it didnt help so why stick to tha theory. i just want to go insane. i am so sick of drs saying its one thing and its not. i found out the antibiotic has a half life og 68 hours for the dose i had taken so that means friday morning sometime it will b half way out of my system. the dr didnt seem to understand that this isnt like other meds. it will b in my system working full force till friday . why he thinks i will b any better in the mean time is just crazy. i was kinda of made he gave the meds by mouth since that didnt work at home. i was thinking 1 i need them iv and 2 i need to stay cause my throat never fully opened. and i just got worse at home. well i guess i will try to sleep. i dont know how other than pure exhaustion. i have lost so much sleep with all the pain and without rest i cant heal. i also am thinking i need iv antibiotics to get over all this. my o2 sats were only at 93% they got up to 95% but that for me is not good. i think it should have been higher. i was still having alot of trouble breathing as i left but i figured i might as well just go home no matter how i feel and try to sleep.
i will get back on as soon as i wake up and let u know how things r going.
Eeyorelover, is it possible that the fibro is making the breathing situation feel worse than it is? I'm not trying to be a doctor here, just know that our GOOD FRIEND fibro likes to do this with other ailments so thought maybe that could explain why the doctors are treating it as relatively minor when it feels much worse than that? Just a thought BUT I'm no doctor. And I have the bad feeling that you're right on all of this and the docs will only realize it AFTERWARDS.
If you're no better at the end of the course of meds, can you get more antibiotics? I think the suggestion to try and find a teaching hospital is a good one. You might be able to get some real answers from there.
Also, this weather is messing with a lot of people here who have breathing problems. I hope your weather wasn't as hellacious as ours was today and that you're doing a bit better today.
i have no idea if its the fibro or not. all i know is that i am in lots of pain and its not getting any better. the dr did not give me any more antibiotics. the z pack will b in my system till sometime friday and thats only the half life of it. it will take till monday to b fully b out of my system. meanwhile my throat will not b fully open. i hate the feeling of it being only partly open its very hard to breathe.