Another diagnosis with a different Name. Maybe more exceptable than Fibromyalgia. I do have inflamation which fibro doesn't give you so maybe treatment plans for the pain and discomfort will be better. I was given prednisone which seems to be helping the pain in some ways. Since I was not given anything but antidepressants which don't work on me. Any one have Polyomyalgia Rhuematica, or have tried prednisone for pain?
I have lupus which affects my lungs and have taken prednisone many times. My rhuemy doesnt give it for long term use due to complications after many years of taking it. I do no off several people on the lupus site that take a low dose and seem to be having very good results with it.
very good questions Tina, I was going to ask the same thing? Because on my must painful days I hurt or if i stop taking the Elavil and an anti-inflamatory, prescribed to me . My feet do tend to swell very bad .I have been told I have Fibromyalgia
I don't know how the doctor came up with the new Title (diagnosis). I'm not sure there is a test for it, but recently went to a new Rhuemotologist and brought 9 years of medical records with me. Who has 9 years of medical records filled with no conclusive test results, but constant pain. I thought that being that fibro. is so taboo that maybe another name for it would be more acceptable. The really only thing I can see that differs is that my inflammation is always high. Fibromyalgia supposedly doesn't cause inflammation. I have scolliosis , stenosis, fibro, and now polyomyagia rhuematica. I don't know, I'm not even sure they really know. I did recently call Pain Managment Assoc., and received a really nice package from them with several articals and pamphalets about fibro. I had recently been told pretty much that if i learned to ignore the pain it wouldn't be so bad. (pretty much saying it all in your head). It's very upsetting knowing all the things I've passed up, and given up due to this condition because of pain. No One can tell me this is in my head. Yes agreed that it has something to do with the way are brain sense pain and process it, but it is REAL PAIN, and needs to be addressed with some thing. So since for the past 9 years I haven't been able to get to much relief I was happy that maybe if the rhuematologist wanted to call it polymyalgia rhuematica , and there was a little help from the agonizing pain I would go with it. She said I had both the symtoms sound pretty much the same to me except for the inflmation issue. TinaWi I was getting really bad migraines with weather change so far I haven't gotten one. I hate medication and know the long term use of prednisone is not good, but then again neither is anything else. I was just sharing my new experience for thought, for maybe some one else who is having such opposission from there doctors in treating this disease in hopes that one day it will be addressed with respect.
Sorry about my spelling it's pretty bad. LOL have a great day.
My grandma has Polyomyalgia Rhuematica. She said it was triggered after a horrendous car accident where she was thrown from the car when she was much younger. I don't know if she's tried prednisone... (sorry, I know that's no help lol)