Problem with my medication

After being on Nortriptyline for 12 years I have had to come off them. I did this very slowly. I didn’t think they were working much anyway so didn’t mind. How wrong I was! They certainly were doing some good if only a little bit. Mentally I feel much better not being on them. I was off the tablets for 12 days altogether before I was prescribed something else. That was hard 12 days to say the least. Then last week I was prescribed Pregabalin Tillomed 25mg. The first couple of days I felt like I was in a daze. On Monday of this week for 3 hours I felt elated. No pain, just felt good. Then I got deflated as I experienced awful side effects. The Phamacy told me to come off them immediately as I was experiencing a very bad reaction. Now my GP has taken me off all pain control tablets to help manage the fibro. I am finding it so hard to walk or even lift my arms. The problem is I just cannot tolerate medication. I just need a little TLC to get me through this bad patch.

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So sorry for this issues with pain medication. Have you tried cbd or medical cannabis, if you’re interested in that type of relief? Prayers that it gets easier

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Thank you for your prayers they are appreciated. I have not tried cbd or medical cannibus but will think about it. My doctor more or less told me to learn to live with it!

You’re very welcome. Oh. heavens no on your doctor. I have been dealing with the fibro & other issues for over 20 years. Going to share a great piece of advice I had to learn the hard way…FIGHT FOR YOURSELF!! If your doctor doesn’t listen or have any compassion then find another one. Some doctors still don’t believe the issues of fibro and are not a fit for anyone. It may be a good idea to ask if anyone knows a good doctor in the state/area you’re in. You don’t have to give town or anything like that, privacy it good, but a general area. Best wishes!

Hi, I have been where you are ….fibromyalgia for more than 20 years, medications for more than 15 years then coming off them because the side effects were just too brutal and my life was like most people with fibromyalgia. I have been off meds for 6 years and managing my life much better than when I was on Lyrica, Cymbalta and sleeping pills.
I manage my own pain now the best I can and I have more reasonable days then severe days.
I could not even do simple tasks like raising my arms to shampoo my hair but now I have success with the restrictions that usually limited my activities. Muscle groups and bones are much more mobile and freer to do many activities.
It took me about 6 months to get my mobility back after I came off the meds by doing Tai Chi exercises “every day” to start my day. I switch it up every second day by doing ChiGong exercises as well. I still have issues but way less brain fog and crash modes having come off the meds permanently.

It does take a lot of dedication every day to get through these exercises, some days it is a real challenge to complete them but my day is so much better doing them faithfully.
I thought I’d share my experience with “life without drugs”. I made it work for me but it may not suit everyone. I wish you all the best in dealing with your condition….cheers!

Thank you for your encouragement, which has given me hope. Earlier this year I started to do chair based exercises for the over 60s online. Not able to manage much more than the warm up exercises. It is on YouTube with More Life Health. The chap is a physio from Australia. Before I started with him I told him about having Fibromyalgia and he was understanding and said just listen to your body. If your body hurts then either stop it or go very gently and do less of the exercises.

I am 75 years old and I am also quite aware of my limitations and respect the fact that everyone’s tolerance / limitations are different.
It took me a long time to get to where I am today, I do wish you all the best in your quest to change your life style and improve your mental focus for improvement…cheers

This physio sounds like mine (I checked, not the same one, but glad to know there are more out there like him). I don’t tolerate meds well, but the CBD has helped for me and physio has been a huge positive (10 years with this physio, first person I ever worked with who got fibro and din’t want to push drugs). I have worked with some specialists who wanted to help, but had limited options as meds are often all they are really trained for. Alternatively wholistic therapists, Bowen, reiki, reflexology, kinesiology, accupuncture might help (been down that path too, with benefits). Definitely back yourself and keep looking for alternatives. “You’ve got this”, even on days you don’t feel like you do, try to remember how much extra strength you show just to get through the day than those living without complicating conditions.