Every day it seems like things just keep getting worse. I have been on Medicaid, I can’t work a regular job due to the onslaught of symptoms I constantly experience and now they are canceling my insurance. I have no way to pay for my doctors or meds. I don’t know where to turn or what to do. I really just want to give up sometimes.
I had to cut all ties with my family yesterday because that just don’t get it and the stress from the bashing and insults they sent my way left me crippled yesterday and not doing so good today. I just don’t know what to do or where to turn.
I didn’t choose this, I have it, and can’t seem to get continuos help that I can afford. Life is really starting to suck.
I am sorry, I wish I could give you a hug. You came to the right place for support, we may not have all the answers, but we understand what you are going through.
Hugs
Teri
hi.i am not clear on why your medicaid is being canceled.. what are the grounds for them to do that? i dont know if you have applied for social security disability but that is a way you might go. i dont know if you live with anyone and how your rent is being paid. if you live alone and cant work i think you need to file for some benefits. maybe even emergency food stamps. i am just kind of suggesting things since i dont know your details. i dont know if this was much help to do but i wish you the best of luck..xoxoooxoxox
Benefits yanked because unemployment put me over income level. I guess I’m supposed to live on $9600 a year. I can’t buy insurance because of pre-existing conditions and my medications are almost $2000 a month. …that’s not including doctors visits. I am lucky to have a friend that allows me to crash here for free…I just help
Out around the house and with the kids. They reduced my food benefits to $21 a month.
I have 15 days to figure out a solution or I will have no meds left and have to start picking and choosing which ones to fill based on my affordability…which determines how I feel for that period. I either neglect my diabetes or my fybromyalgia, it’s stupid.
Our Government has made many changes regarding assistance programs, and I am not sure what the new guidelines are. I am sure there are other programs out there for you, it is just finding them that will take some work! Search online for assistance programs in your county and state, search online for assistance from the drug manufacturers. Many times the drug manufacturers will assist with your meds just to keep you on their med. The companies use to get credit for all the scripts filled, their acredibility was based on the number of scripts filled not the amount of money they made. If this is still accurate you may be able to get some of your meds for free! Also, call your doctor’s office and speak to a nurse. Briefly explain your situation and ask if there are any other diabetic meds that you could use in generic form. Also check your local Walmart store, if you purchase a 3 month supply of the meds they have on their list, you in turn save money on your meds. I know on limited income paying a larger amount at one time isn’t always easy, but if it saves money in the long run, it can be worth it.
I know this seems like a lot of work, but most of it is searching online, from home. You can get contact info and make calls to find out what you qualify for! And if you are disabled, I would look into social security disability, get things started there!
GOOD LUCK!! Keep us posted on what services you find!
Do some of the medication makers have a support program that pay's for your meds? enbril does and so does cymbalta those are the two that I use . also try to get exercise daly even if it hurts because i always feel better when i exercise.
Hi my name is Jeannie I'm so sorry to hear about what your going through although I am Australian, I was a registered nurse and am familiar with the American health system and no how it just cuts you of you have no insurance. I have got an idea which may help you out I am on a drug here for my migraines which the government has stopped it is the only thing that works the alternative is morphine injections. So I buy them from India you can buy anything there without a prescription, the only thing you can't buy is narcotics but pain meds like Tramadol. sleeping meds, anxiety meds exactly the same as in any other pharmacy it is of proper quality because dispensing shonky drugs is a death penalty offence all you do is google Indian Pharmacies and get a secure site and you will find what you are looking for. I don't think I could cope with this illness without the aid off medication I did that when I first got diagnosed and a very bad rheumatologist told me to just ignore the symptoms there's no medication to help goodbye I did that and 8 yrs of total hell later I nearly died Fibro burnt my body out so badly it started shutting down. Partners, family, and even good friends can be your worst enemies when it comes to support I have heard it so many time it all starts off OK and then they get to a point that they think you should be over it and the pool of sympathy soon dries up It becomes the elephant in the room they all know it's there but nobody wants to talk about it. They do not relize fibro does not go away, and they can't wrap there heads around being in pain 24\7 with the pain comes the fatigue and then comes not being able to sleep it's a vicous cycle that unless you have fibro you can't understand. I feel your desperation and the disappointment in your family. it's easir for them to except your crazy then in pain. this is very sad but common it doesn't mean they don't love you it tells me there ignorant of this condition as are so many people, you have found this site at least so you will be treated with kindness and understanding the people here are a wonderful lot and as bad as it gets we will be here for you send a friend request if you would like to talk to me again I do care about you and am so sorry to have to meet you like this I hope I have given a few ideas and wish you only the best let me know how you are going Warm Hugs Jeannie
Just a follow up on how I’m doing. I managed to get the state to afford me coverage under a different program. It’s ridiculous that my social worker doesn’t help me and I have to hunt around to find another simple addition which allows me to keeps Medicaid. What a relief.
I want to thank everyone who responded to this. The hardest part of this illness is the lack of support from those around me. Just reading your comments, suggestions, and personal struggles helps me to get through my own.
I also wanted to say I just finished my application for disability benefits. I know this is a difficult process, usually. If anyone has any suggestions about the process or experience they can share it would be a big help.