I've found 3 distinct types of Fibro pain. *Skeleton's On Fire Pain. *Skin's on Fire/or Terrible Sunburn Pain (w/no sun exposure) *No Cushion in Joints (bones rubbing on bones)
I'm having the bone on bone pain today. I described it to my husband as an irritant similar riding in the car with a 2 & 4 yr old arguing while looking for a house in the country of a relative you weren't really wanting to visit for Thanksgiving.
Has anyone else had these different pains?
Plus a new thing I have started having is a burning pain in my stomach when I'm leaving my house. :(
Yes, Ambient Girl, you are not alone! I have experienced the pain types you describe as well as the following:
*Crawling skin (feeling of ants under the skin)
*Stabbing sensations (as it says...knives or ice picks stabbing in various areas of the body)
*Extreme hand and foot pain (makes it very hard to walk and to use hands)
*Knots
*Spasms (random all over...never predictable)
Also...the overwhelming sensations of Fibromyalgia/Polyarthralgia/Chronic Pain Disorder also aggravate my IBS...which can cause a nasty knot in my gut, muscle spasms.....and sometimes a burning/churning type ache in my gut.
Have you been diagnosed with IBS (Irritable Bowel Syndrome) or other condition of the stomach/bowels?
I would definitely bring up the new symptom to your doctor. It could be stress (nerves), another condition or another symptom.....our bodies are so unique!
Same, feet and hands numbing, wrists, elbows, knees, ankles feel bruised like they have been hammered in my sleep, shooting pains in literally every part of body so sharp it brings tears to my eyes, aching is the worst I find, flu like aches and pains but ten times worse than I have ever felt before, I find my body feels so stiff that the only thing to give me the muscle loosening sensation that I so took for granted before is a steaming red hot bath so hot I can barely get into it, (rarely feel the pain of burning water on my skin nowadays anyway) and I can literally feel the heat and feel the relief of my body like I am melting from the hips down and for one single moment I feel pain free in my legs, something I never ever feel anymore, my mentality is the biggest pain I have, it scares me mentally that I can’t run around with my children, it scares me that I am 26 and have the body of around 66… Still struggling with it all to be honest, looking for some support from people who know exactly what I mean by “I’m dithering on the inside” every time I miss my pills or its cold, and who understand “I can’t make plans anymore I can’t rely on my body to carry me through these plans” nobody gets it I feel like shaking them! Ignorant and stupid gossiping people who don’t deserve the pain free life they take advantage of so much, these people I know for a fact would crumble given the life we have been given xx
Completely understand Jodie! It is so hard!! Thankfully my Hubby and son are supportive! We often cannot go out when invited because of my symptoms.
No day is the same. Just know my body will be out of control. I am unable to take most meds so just have to deal with my body. Curling under heated blanket.
When I see someone walking, I just quietly tell myself that that will be me one day! I may never walk as fast as they do but I will be able to walk…even if it means walking into the grocery store to use an electric cart!
For now I can only take advantage of my wheelchair…and rest as much as possible for the important things! Like our son’s Choir concert today that my hubby will take me to!
We need to spread awareness because I had never heard of it before it smacked me in the dace last year, mind didn’t creep on it just whacked me one… I would love to help support someone else with this illness one day as only us who have it truly know how to deal with the severity of it xx