Hi All,Just added some pictures of happy times, but to look at them now makes me so sad, we miss out on so much with fibromyalgia,but i try hard to look at it this way we did get to do things with our family at one time in our lifes some did not have that. i try not to live in the past but sometimes thats all we have.Life goes on with us or without us so we must ty hard to do what we can. Its hard but we can do this I just know we can.Hugs to all
Hi sorry to hear your sad. It is very hard having this condition ( I have 5 conditions and I am 31 years old, all due to doctors giving me wrong tablets. ) I miss out on seeing my son play football, walks on beach, days out etc. I try and stay positive,( I have an amazing partner and our family help so much I used to teach and drive but cant now.It is so hard looking at pictures or thinking back to things you used to be able to do. All my love and best wishes . Victoria xxxxxxxxx
HI BET -IM SORRY YOU FEEL THAT WAY I HAVE HYPOTHYROID MARFAN HABITUS SCOLIOSIS AND FIBRINYALGIA IVE HAD TO CANCEL PLANS THAT IVE MADE PROPLE UNDERSTAND WHEN I VILUNTEERER TI.E TO RHE OBAMA/BIDEN REELECTION CAMPAIGN AND HAD TO EXPMAIN THE SITUATION WIRH RHE FIBRO I REWUESTED 4 DAYS OFF TO HELP WITH THW CAMPAIGN I HELPED 2 DAYS BEFORE WENT TO CHURCH CHANGED CLOTHES WENT TO CSMPSIGN HEADQUARTERS WENT HOME WALKED RBE DOG RBE NEXT DAY I B
COULDNT HELPED WITH THE CAMPAIGN FOR 3-3 AND A HALF HOURS I ACCOMPKISHED THAT CAME HONE ABD WAITED FOR THE RESULTS LIKE MY DRS SANTIAGO AND SWENSON TELL ME DO WHAT YOU CAN AND DONT WORRY ABOUT RHE RGI GS CANT I TRY TO NOT TO THINK ABOUT RHOSE THIBGS
MY DOG KEEPS ME OCCUPIED PLUS THE GSNG AT WORK AND. CHURCH I WATCH HAPPY FUNNY MOVIES AND TV SHOWS TO KEEP ME LAUGHING AND HAPPY
Thank you for those words. Life does keep going on, maybe just in a different way. I find myself thinking about the past, and the good happy times that make me smile. I'm grateful to have those memories and to still have my memory at all. :')
I don't have children or grandchildren, so I live vicariosly through others. I enjoyed looking at your generations of family members. Just knowing that they are out there and they came from you is pretty awesome.
People tell me "when life gives you lemons, make lemonade", kind of simple but true. I know one thing, fibromyalgia is a real pain, but it has sure helped me to develop my imagination, creativity and sense of humor. I do enough goofy things to keep me laughing all the time. When I do something nice for someone else, though, this always makes me feel the best.
Thanks for posting the pictures Bet..
I am going through the exact same thing right now. It's not so easy since every time I move, the pain reminds me how little I am able to do. The empty space in my bed reminds me what I have lost. The sound of the phone not ringing tells me how I no longer have people around me on a day to day basis, especially those who actually show that they care about me. That damn reflection in the mirror mocks me and tells me every time I look at it how far I have let myself go.
I am at a point in my life that is so low, I look at the past and realize how good things used to be, even when at the time I thought they were bad. Sigh.
I have also found my creative side since being ill. I never knew I could write poetry, do origami, or make little plush dolls. I love that I found this side. What do you do with your creativity
Thank you for stating our struggle so eloquently. It is hard to keep a good attitude but on good days I can see the hidden blessings.
Re-reading the original post, one thing is said so perfectly I feel the need to point it out - "Life goes on with us or without us so we must try hard to do what we can."
For years, I've told people with chronic pain that "Every single day, whether I want to or not, I'm going to wake up in pain. What I choose to do with that day is up to me. I can live my life despite the chronic pain or succumb to it. FM makes you choose how you want to live your life."
I seriously thank you for your perspective. It's going on a post-it note so I can see it each morning when I wake up.
I agree, it is a choice that only we can make for ourselves. No one's gonna come knocking to tell us to do it, unless we are reminded on this forum by our friends. Good discussion. Thanks Bet.
Bet, I'm sorry you're sad. There is a lot of grieving that comes with fibro. Sometimes I forget that I can't plan things and in my mind I have the idea that I can start a new hobby, like snow shoeing or running. Well, maybe I can, but not right now...and that's a tough one.
I have had happy times! You have had happy times! For that we must be grateful! I sure like what Maria said about finding her creative side. I'm experiencing the same type of new awareness that she is. It is good. The website Pinterest is a great place to find new ways to explore your creativity. Careful though, cuz Pinterest is a time user.
We all have happy times ahead. They may just be different than our old happy times.
I agree with your wise thoughts. It is that time of year for reflection, and there is always a sadness that touches our lives. Mourning our 'health' has to be a huge one for us! We really have to embrace the good in our lives and realize that there are still things we are able to do, just maybe not as well, or as often.
Keep looking up, my friend. We have a new year to look forward to. Hang on to the hope, and the goodness!
Love and hugs,
I love this, Maria. It's so true and inspiring to me.
Beading, jewlery, photography and framing, altering clothes to make them more individual, making cat toys and cubbie, sewing, simple needlepoint, making stationery on computer, woodburning, decorating. I like making things and fixing things, or improving on them. I can take a pile of useless items and make something useful out of them. Sounds like I have too much time on my hands, huh? ha ha l'll have to try poetry. Good idea. My guitar lessons went to the wayside due to swelling tendons in my arms, really hurt to do the chords. Grrr! Finding ways to do everyday things without causing pain, now that takes some creativity. :') I'm gonna find new things this coming year. Ally
Depression is difficult to even say. I am so sorry you are feeling this way. A lot of people feel this way this time of year. It is a difficult time just because of the hustle and bustle.
I too was a teacher and have many incurable diseases. It was tough to have to walk away. Hugs and hopes for a better day.
How wonderful they sound. Do you take pictures of the finished product? Would love to see the cat toys, stationary, and clothes to name a few. Later today I think I will start another discussion on "hobbies" so we can show off our creations!
No, I don't take pics of them.
I would have never thought I would have thought I would leave my house without make-up or real clothes. Now, I’m lucky to leave the house so I go anyway I can, and I don’t care. I’m happy to get out.
I don’t look at the mirror as much, but I do love myself. I am me.
I will keep you in intensive prayer. I really cling to these Bible verses:
New International Version (NIV)
11 For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.
Psalm 56:8 You keep track of all my sorrows. You have collected all my tears in your
bottle. You have recorded each one in your book.
Wow, every tear goes into a book! Our books and bottles are full I am sure!
Thank you for the reminder, Graveyardnerd.
Hello Bet, hope that you are feeling better. Hope things are looking up!
Sending some love your way,