So much has been happening

I’ve not been on here for awhile and I have experienced a worsening of symptoms. I am now only working part time. I thought it would help to get more rest. But really all its done is make it easier to cope. Migraines happen almost every week for 2 or 3 days. Along with that is the requisite " hit by a mac truck" feeling. Can no longer tolerate yoga, and walking only occasionally. Constant neck and shoulder pain make it harder to drive comfortably. That particular pain also makes it painfully difficult to sit through church services, usually resulting in said migraines. And who am I, to complain, at least I’m not bedridden like some. But see, that’s my secret fear for my future. My activity is so much more restricted than it was just 2 years ago. My husband and I are going to a fibro conference next week, hoping to get something out of it. My husband has been SO understanding and supportive. Anyway, thanks for listening.

Hi denamc, Im so sorry for your pain. I totally get it. Where is the fibro conference at? I have never heard of one.

Hello denamc

I am glad you have a supportive husband. Have you seen your doctor lately to check for other things or reajust your meds? I hope the conference goes well for you keep us posted.

It’s the North Texas Fibromyalgia Conference. This is the first I’ve heard of it so I’m not sure what to expect.

Tapered off meds in January then went back on them. Dr says he doesn’t know what else to do. He referred me to a neurologist but have lost my insurance since then so I am unable to go now.

purplebutterfly said:

Hello denamc

I am glad you have a supportive husband. Have you seen your doctor lately to check for other things or reajust your meds? I hope the conference goes well for you keep us posted.

HI Denamc, I am sorry you are having an increase in pain and migraines. It sounds like you are taking good steps toward taking care of yourself and I am glad that working part time is helping you to cope. Please let us know how the Fibro Conference goes, that sounds interesting. Hugs.

Hello again, Dena.

Wow, that's so much to deal with. I'm sorry that your fibro has become so much worse. I have been saying for quite awhile that I think it's progressive. Maybe not in all of us, but a lot of us.

The fibro conference sounds like a genius idea to attend. I'm excited for you and hope you come away with useful info. Please feel free to share it with us.

I don't think that most fibroites become bedridden. I am close because of my horrid back pain plus arthritis of the knees and back but I don't think that's typical in fibroites. Some of my knee pain came from being hit by a car. That's why I say that I don't think it's typical for people with fibro. But I understand the pain and confusion that you are feeling. It's hard to fathom the things that can happen with fibro. No medical site prepares us. That's why it's imperative to find a discussion group.

Yes, it really is a wake up call when you stop working, only to discover that you don't feel much better. In fact, I wish I would have kept working if I could have. But it's hard to know what the best actions are, isn't it? I imagine that reducing your work hours is helping you overall, even if you don't feel it. I think that our bodies need the extra rest and benefit from it.

I don't know why so many of us feel it so severely in the back. That's the component that seems to stop many of us in our tracks. What can you do when your back is in "run over by a Mack truck" mode? It's hard to answer that question.

Do know, though, Dena, that we care about you and wish your pain was decreased. Hopefully better meds will be available shortly, along with a possible cure.

And please be gentle with yourself. We have no control over what's happened to us. We can only try to deal with it.

Hugs for you, my friend,


Hello & welcome. I'm still pretty new here myself. I've not been on lately but need to be better about checking in. I'm sorry that you're dealing w/ so much. I feel that my fibro is progressing as well but I'm trying to hold on to just a few more years at work until my youngest graduates HS. Than I want to find something easier to do as far as work goes.

Anyways, again welcome & please share how the conference goes (or went, since I'm alittle late to this "party") :)