GREAT post, Trying! I second and third your sentiments. And I'm excited beyond words to hear that your husband now believes you about all of your pain and fatigue! Woo hoo, let's hear it for showing the conversations on this site to our loved ones! May all of you be as fortunate at getting loved ones to understand about fibro.
I’m tired of feeling non productive.
I’m tired of people saying why don’t you try…(fill in the blank) I have heard it all and tried it all.
Most of all I’m tired of not being who I was before I had fibromyalgia.
I've got a couple more things...
I'm tired of the tingling numbness in my toes.
I'm tired of my cane.
I'm tired of the way people act.
I'm tired of my illness controlling me.
I'm tired of being exhausted.
I'm tired of not being able to move like I used to and at 21 I don't think people can use age as a suggestion.. I used to play soccer, do kickboxing, swim a lot and be more active than most and now walking hurts.
I'm tired of not being able to wear the cute shoes I want to.
I'm tired of it being a huge chore to shower never mind shave my legs.
I'm tired of being incapable of giving myself a pedicure as it is so painful.
I'm tired of the looks after I say I'm disabled.
I'm tired of the amount of signatures and money spent to recieve said signatures just to show I am disabled and I must get them over and over to the point it seems like a money grab on their part.
I'm tired of the mix ups with meds and the interactions.
I'm just so exhausted.. so damn tired!
Thanks and hugs back.. I've had my fibro for 3+ years, diagnosed for 2 and a half years. Fibro and I are becoming acquaintances however friends is gonna be awhile off. What are your coping methods?
Hugs!
One of the hardest things about Fibro is getting control of it and getting your life back. Because I "look fine" and I'm pretty active, I've been accused of "faking it". I get it. No, but if you were diagnosed back when there was no name for it and you had permamono, it's a slightly different reality.
It took me probably 2 years to really, REALLY get it under control and even then, because I had to manage parts of my life that I never gave a 2nd thought to before (hello, my keys ALWAYS have to go in a specific place, lest I be staring at them and end up in tears because my brain won't wake up and look at them and realize THEY'RE KEYS.) That's just one example.
I get the frustration and I'll do my best to help any way I can. The thing is, where to start.
You will get your life back, you will do the things you once did, you might do them differently now. Or you might have "bursts" and not "marathon" energy. For example, I work for myself. I know that doing more than 20 minutes of anything without at least a short break will cause fog to drift in and my "squirrel!" brain to awaken. Don't want that. But it's learned. next year, October will be 20 years. Holy wow, that's a long time...I just realized that.
I'm exhausted for you but I want to help you get out of that prison, even if it means baby steps which, having lost my memory totally back when, it likely does.
I think this group is awesome!