Struggling

I am struggling to cope with life.I am in so much pain that i throw up sometimes.I am very depressed and i am thinking people are sick of me moaning about my pain because people ignore what i say irl and online.Maybe i deserve to be in so much pain that i feel like im going to explode.I am on a form of morphine and lyrica but they dont help me much.I am out of ideas for pain relief i have no bath to try epsom salt baths i dont have the money for a tens unit.Sorry if im moaning i just need some support right now and to vent.It seems like noone in my life understands me.

Hello Queenpink,

I am so sorry to hear how much you are struggling. First, and this is important, you don't deserve to be in so much pain! Please keep telling yourself this, and don't listen to anyone who tells you otherwise. Many people have this and for sure we don't deserve it!

I can relate to you thinking people get fed up with you moaning about your pain, I felt that when I was very depressed. I had to work out who could cope with listening, and I think you have to do this, so you can maintain some friendships. People do get fed up, I'm afraid, recognise the ones you can moan to! You can always vent and moan on here. We do listen here. Hopefully having this vent has helped you a little.

I do urge you to go to your docs tho, try and get some meds which are right for you, sometimes it takes a while. Also I urge you to explore other coping therapies, and be open-minded. There are groups on here that you could join. What have you got to lose - and you might gain massively! Hope so anyway!

Take care, Anne

Thank you for your kind words annev.I will be careful to whoi vent to.I will go to my dr and ask about pain meds.I will be open minded to different pain relieving methods and coping strategies.

I am one of those people that be leave venting can be good for us at times. Anne gave you some really good advice. Some people have found that keeping a diary helps some people keep 2 one to write their feelings in and one that they write positive sayings in that they can look at ofen.

Hi. I am wondering if you can be provided by the insurance for a tens unit . I don’t know how it works in your country . I know in the US people can get them paid through insurance.You do not deserve to be sick and in pain. No one does .
HUGGGGGGGGGGGGGS
Suzie

Queen, I just wanted to send you a hug also. You have some wonderful support here. Hugs!
Laurie

Also, suggestion on the lack of tub for epsom… They make an epsom lotion. I haven’t tried it but know of others who say it helps. I also like Tiger Balm.

http://www.mortonsalt.com/for-your-home/epsom-salts/epsom-salt-products/189/morton-epsom-lotion/

ill ask my gp about a tens unit ty suzie.Ty purple butterfly and baltimorebaby for your lovely comments..I will look into the lotion and see if i can get it here.

Hi Queenpink,

Interesting name you have - I like it.

I can understand what you are going though. As a fellow fibro sufferer I have been were you are. When my fibro pain was out of control, I was severely depressed, scared, and sad too because I really was always complaining about my pain. At that time of my life the pain controlled me. I saw your other post where you mentioned that you have clinical depression and severe anxiety. That was me too. When your pain levels get so extreme so does the depression and anxiety. I know because my anxiety levels which are always high were insane when I was in the height of my pain. I wanted to die. I had gotten to the point where living in the pain made me question if living was really worth it. And I am a person of faith so having those kind of thoughts only increased my depression. I tell you truly I would not have gotten through it or still be here doing what I can today if not for my reliance on and trust in God to see my through.

It sounds to me that you need to continue to visit with your doctor until you can get in a good pain relief regime. If the morphine and lyrica are not working for you then why take them? Sometimes you have to keep trying different meds and differing degrees of prescription strength until you get the maximum relief.

Have you tried Cymbalta? I swear by it. It has been the only thing that has helped knock down my pain. Lyrica by itself doesn't do much for me but I continue to take it in con-junction with the Cymbalta and my pain has decreased significantly - enough so that I can cope each day and feel good. I still get flare ups whereby the meds seemingly don't work during those times, but those are every now and again. Also, fyi - Cymbalta is not only for chronic pain but it is also for severe depression. I really think it may help you. Note too that I have a friend at work who has severe arthritis and her doctor (after trying everything else) just prescribed Cymbalta to her. She tells me that she sees a difference (for the better) already and she hasn't even been on it long.

Please go back to your doctor for the help and support you need. And, consider a local fibro or chronic pain support group if one exists in your community. Online is great but actually having someone right there with you who understands can help so much more.

Thinking of you and wishing you well. Hang in there.

Thank you for your reply.My gp is not willing to increase the strength of my painkiller or change it to a better one.Sorry but an antidepressant wont help my pain im already on one and it does nothing for my pain.There is no local pain support group unfortunately.Thank you for your kind words

I'm sorry the pain is so bad for you right now, and it certainly doesn't help depression to be in pain and vice versa. There's always more things to try for pain - new med combos, non-western approaches, stretches, etc. But I know sometimes you just feel defeated and need to vent and feel heard. So just know I hear you, I feel you, and it sucks, and I'm sorry it sucks.

I dont believe in alternative medicine.I dont exercise as it makes me ten times worse and extremely tired.I am getting an mri on Saturday to investigate the arthritis i have and i will get the appropriate treatment when the rheumy looks at the mri.I have tried yoga and it isnt for me, too painful to do.

Queen, I also think it’s worth mentioning your level of Fibro pain and discussing the possibility of different pain relievers with your rheumatologist if you can during your arthritis MRI review. My rheumatologist is the one who suggests pain medications for me though my Primary. I only mention this as you had said your GP doesn’t seem willing to consider switching pain medications for you and often as doctors speak the same language with each other your GP may be more receptive hearing it from another doctor. Good luck with your MRI, hon.

What type of arthritis do you have? We also have a PSA community here you may consider checking out.

Hugs!

I have mentioned to my rheumathologist about better pain relief and they wanted an mri before changing my meds.I have ankylosing spondylitis and its apparently affecting my shoulder hips and knees and hands and feet as well as my lower back.I did look for a community for it on the sidebar on the home page but there doesnt seem to be one thanks for the suggestion though

Hi, I found the Epsom Salt Lotion on Amazon, it was under $10. I find it helps me when soaking in a tub isn't possible. Hugs.

Queenpink said:

ill ask my gp about a tens unit ty suzie.Ty purple butterfly and baltimorebaby for your lovely comments..I will look into the lotion and see if i can get it here.

Hey Queenpink,

I am so sorry to hear that you are in so much pain. I completely relate. I got about two hours of sleep night before last because I was throwing up all night from pain and spasming. It is horrible what we deal with every minute of every day. Let me say this though, neither you nor I nor anyone on this earth deserves to be in so much pain! We did not ask for fibromyalgia or any other pains, I know it is difficult but don't let your mind tell you that you some how deserve this - because you really do not.

I do not have money pretty much ever, but one thing I highly recommend saving up for (and they don't cost loads of money) is an electric blanket. I usually will take a hot shower at night and let my blanket heat up while I am brushing my teeth, etc. The hot shower helps calm my muscles and then staying under the heat of the blanket (especially because it is getting really cold here now) greatly helps with my pain. I hope this is helpful for you also.

Hang in there, and please know that I am here if you would like to talk. YOU ARE NOT ALONE. <3

Blessings and prayers

Thank you ahava.Sorry to hear about your bad night last night,i hope you pain eases soon.I have a heating pad that i siton or lay across but thanks for the suggestion :)