The fight goes on

Hey everyone, sorry I have not been on in a long while. Life has become completely chaotic as of late and my fibro is "in the trenches" mode. It's so hard to make myself get up in the morning, I find that I am so exhausted I sleeping well into the afternoon (highly unusual for me) and eat about one meal a day if that. I know that isn't healthy but I just can't force myself to eat when I am in pain and nauseated, even protein drinks are out of the question. I'm praying that this seemingly never ending fibro flare will calm down, but its been about a month now which worries me quite a lot. My doctor is of no help and just insists that I keep taking my medications he has prescribed, which I already do.

Anyway, thanks for letting me rant about my current sob story. My family is patient with me but I can tell they are getting annoyed at my lack of energy and extreme brain fog. I've stopped talking about my symptoms with them for fear of becoming a broken record. It's so hard to see healthy people living life and constantly asking myself why that can't be me, how do I break out of this flare up and try to be myself again?

Deeply frustrated.

Hey there Ahava31,

I’m so sorry to hear about your current flare & the pain levels you’re in. I completely understand where you are, when I was first diagnosed a couple months ago I was literally going through the same thing. Not eating, sleeping all day, forgetting everything, & just not me. I was compliant with my meds and it was seemingly doing no good. My friends and fam saw that something was different and tried to be supportive but weren’t able to understand and eventually it wasn’t as pressing to them as it is for me (because I’m in the pain and have to constantly educate and remind them on how prevalent Fibro is).

I know it’s hard to get back to yourself, but I say find something that you love (listening to music, watching tv, reading a book, etc) and take it slow and work your way to doing a little bit of it everyday (or as often as you can). Don’t put too much on yourself but also give yourself something to look forward to in the day and slowly but surely, you will (prayerfully) start to see “you” resurface. Of course, some days you just need to rest and that is super important especially bc recovery time can be long when we run ourselves down, but I really hope that you can find small pleasures to get you through everyday and in doing that your days/flares become more bearable.

Wishing you the absolute best and gentle hugs,

Queenie

HUGGGGGGGGGGGGGGGS
Love,
Suzie

Thank you so much, DaughterOfTheKing. I love that username by the way.

It's comforting to know I'm not the only one because when you don't have others around you who suffer from fibro, sometimes you wonder if you are just losing your mind. I will try to find something that makes me feel like I have a purpose again until and after this storm passes. I have been getting back into poetry and sketching, those are some of my greatest outlets I have neglected for too long. I would love to get back to the gym but I suppose everything in small doses is the wisest option right now. Thanks so much!

Blessings and prayers